This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I can totally relate. From my chronic fatigue and GI issues it has been hard to keep or make friends. As well, because of school, I've had to move around the country a fair bit to go to different universities and have lost a lot of my friends that way. It is also hard to go out for fun and cultivate friendships when most of your energy goes into keeping yourself and your family afloat (and in my case getting through grad school). As a result I am more withdrawn than what I used to be, but I would like to change that once I get my life stabilized somewhat.
As ravenwood suggested, if you have any hobbies, it is a good way to make connections. Join a group that shares common interests, or if you are so inclined, a celiac support group in your area. It would probably be nice to talk to other people who share in the same struggles as you. As well, some of my best friendships have been through work, so maybe becoming a little more social during coffee breaks and lunch would be a good way to find people you can spend some time with.
Here you go! http://glutenfreegoddess.blogspot.ca/2008/02/breakfast-cookies.html
I just made these this weekend. My boyfriend threatens to steal them they are so good...hehe I never thought that would happen when I started gluten-free/dairy free baking . They do have oats in them, so be careful if you are sensitive to them.
For snacks can you have nuts? I find them really filling and something I don't need to cook (which I do enough of already with my multiple intolerances like you). If nuts are hard to digest you can try soaking them first, I find that helps a lot. For an afternoon pick-me-up I've been known to have a few squares of chocolate (dairy free, soy free chocolate) too. Rice crackers and hummus with a few veggies can be made into a light lunch as well.
I realize it is still summer (and may still be hot where you are), but you can make some pretty filling soups with rice noodles, chicken, veggies. Stews are good too if you are into that sort of thing. You can make up a bunch of either and take it for lunch.
For a good breakfast, if you don't like eggs, you can make up a batch of really hearty breakfast cookies. Let me know if you'd like a recipe. A couple of those with a glass of non-dairy milk or some tea and a bit of fruit and I'm good to go.
It might help to track your foods for awhile (i.e. food diary) so you can try see if heartburn is a result of something particular you are eating. Heartburn can also be caused by lots of other things too, for example, stress (a big culprit), lying down after eating, and/or big meals.
Like bisja, certain foods will cause me heartburn (essentially anything with potatoes in it) and my boyfriend can't tolerate fatty foods very well and also gets bad heartburn when stressed out. The reasons vary from person to person I think.
I don't remember much of mine, they loaded me up on a lot of drugs (thank god). The only part I remember is a bit of the end when they were taking the scope out, but even that is fuzzy. I was more anxious about the procedure than I needed to be, that's for sure.
Bring some hard candy or throat drops to soothe the sore throat you will undoubtedly have. If you are being sedated, make sure you have someone to take you home and help you get comfortable when you get home. If you have gas pains/cramping afterwards (they inflate certain areas with air to get a better look) lie on your left side to help move the gas along.
The idea of eating solid foods really grossed me out for awhile afterwards, so it wouldn't hurt to have some nourishing drinks or something easy to eat (like applesauce, rice crackers, etc.) just in case you feel the same.
Nausea is probably my worst symptom. While most everything else has gone away by going gluten-free (headaches, body aches, fatigue, brain fog) and being mindful of my other food intolerances, the nausea is sticking around. I will say it has gotten better, I can see an improvement over time, so I hope you will too. Like Adalaide, if I get poor sleep I feel more nauseous. When I push myself too much physically it gets worse as well. I'm hoping the nausea will eventually go away as it makes going to work/school really difficult.
If you can't tolerate or don't want to take drugs, ginger is your friend! Ginger ale is amazing, I used to keep a can of it in my purse for when I would feel bad at work or around town. Ginger tea is really soothing too (steep about 1 tsp of grated ginger in a cup of hot water) or crystallized ginger is also good to chew/suck on when you are feeling off. Also if you are feeling hungry but too sick to eat much, I found eating papaya really helps to calm my stomach down. It is a natural anti-nauseant, and you are getting some calories and vitamins in the process as well.
You said the only thing you have been 'eating' differently is black tea. Maybe caffeine is an issue for you? I know for me, I can't handle coffee or black tea (I get really nauseous and get some cramping). Caffeine tends to stimulate your GI tract, increasing peristalsis and can therefore lead to discomfort / cramping / diarrhea etc.
Perhaps try to cut out the black tea for awhile and see what happens.
More intolerances developing after going gluten free is not a surprise to me...I've had to cut out a lot of things myself after I began to see issues. Hopefully over time we may both be able to reintroduce some things, but if not, at least we will be feeling better for not eating them!
Be careful about Vega. A lot of their formulations contain wheatgrass and / or alfalfa grass. These grasses may be problematic for people allergic to grass in general (which I think you said you were). I'm allergic to grass and definitely see some reaction to Vega products that I've tried. Go easy if you do end up trying them .
I can totally relate. I still miss cheese, greek yogurt, butter...especially when my boyfriend is having some right in front of my I'm like 'arrrrrrgggggh WHY!!??!?' on the inside. Dairy products were also a great source of protein for me.
It's not a catastrophe that you caved, it happens, we are all human. Sometimes we just can't help it. Hopefully over time the benefits of staying off dairy (as well as the negatives of ingestion) will encourage you to stay off of it, but this is a process sometimes.
It could still be an allergy, but bloodwork and/or skin prick tests can be inaccurate. Have you ever had intradermal tests performed? They are more accurate (I think) than skin prick tests but do have a higher false positive rate. Swelling and blistering lips are serious reactions, what does your doctor advise you to do (even though your tests are negative)?
I'll have to agree with Jestgar, an elimination diet is probably the best way to figure out your intolerances. Listen to your body, if you get a consistent reaction from corn, oats, etc. then stop eating them.
Scratch or RAST (blood) tests will tell you if you are allergic to something, but this is not the same as an intolerance. You can still be intolerant to something without being allergic, as food intolerance is a digestive system response rather than an immune system response. Food intolerances present when a food irritates a person's digestive system or when a person is unable to properly digest or breakdown the food.
When I'm feeling a low, the best thing that works for me is to have a small portion of quick carbs to 'rescue' my blood sugar. Then I quickly follow it up with something that will sustain me for awhile like protein, so I don't have another crash.
I agree with desperatelady, prevention is key. You need to have protein/fat with your carbs. Also eating smaller meals but more often has really helped me. If I don't eat for 3 hours I start to get a little crazy, confused, weak. I always make sure I have a good snack on me if I'm ever I'm out and about.
I second this. A food log has been a lifesaver for me. Without one, it's hard to see what you are reacting to. This will also allow you to conduct 'experiments' in a more controlled fashion. For example you can take out a food type for a week or two and then reintroduce it for a couple of days and see if you notice any changes, while keeping everything else the same.