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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Dnwestover

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  1.     My biopsy showed blunting of the villi, but not totally damaged.  It also showed that I had numerous leukocytes in the biopsied tissue.  That is why he wants to give me the gluten intolerance instead of celiacs disease diagnosis.  I'm leery to not get a true celiacs diagnosis now, because I have gone off gluten already.  My cancer diagnosis was missed for 18 months because my test were inconclusive and my doctor thought, "it's probably just messed up hormones from having a baby 6 months ago."    I am the queen of inconclusive testing. 
  2. Thanks everyone.  My endocrinologist states she views my diagnosis as celiac disease as there was damage to the villi and the biospy report states that it is consistent with early celiacs disease.  It's the GI doctor that isn't wanting to give the diagnosis.  After talking with him I have decided he doesn't understand much about Celiac's/gluten intolerance.  He was suppose to call me back today, but of course, he never called.   I have already had a total thyroidectomy due to thyroid cancer secondary to Hashimoto's Thyroiditis. I also have vitiligo.  So I already have a few autoimmune disorders.
  3. I'm a little frustrated today.  About 6 months ago my endocrinologist requested the celiac blood tests.  I don't know what she requested or what my results were, but at the time I was told they were negative.  Then 6 months later, I am still not absorbing my Synthroid the way I am suppose to, so my endo sends me to the GI doctor.   I had my endoscopy Feb 11.  My endocrinologist called me the results today and told me that my results were positive for "early celiac disease".  The GI doctor called later and told me my results showed a gluten intolerance but not celiacs at all. When I questioned what my endo had said he back tracked and stated if my blood work would have been positive he would have given me the diagnosis of Celiac's Disease.  I asked him to get copies of the said blood work from the endo and call me back.   I'm frustrated by the two differing diagnoses. Although I know in the end, the result is the same for me.  Off gluten I go.    Has anyone else ever had a biopsy showing early celiac's disease and not gotten a diagnosis?
  4. Hi everyone. This is my first post. I've spent several days reading over the forum before deciding to join. I am currently awaiting some last test to determine if I have celiac disease. My story is a little different. Four years ago (at the age of 27) I had a total thyroidectomy. My pathology results of my thyroid were papillary cancer secondary to Hashimoto's Thyroiditis. Prior to this all my thyroid levels were normal, so the diagnosis took me a little by surprise. I also have Vitiligo, which is also autoimmune. Ever since I have had my thyroid removed I have never been able to have a stable TSH level. I get my TSH, T3, Free T4 checked every 6 months and then my thyroglobulin checked yearly. Last Friday I went to the endocrinologist to go over my labs and my TSH was at 11. I am suppose to be under 1 due to my previous cancer diagnosis. Six months ago my level was 2 and my synthroid dose was increased, so there is no reason my TSH should be at 11. My doctor suggested testing for celiac disease since obviously I am not absorbing my medication the way I need to be. After reading through this forum and multiple other websites, I am positive I have celiac disease. My symptoms include: diarrhea/constipation easy bruising extreme fatigue (could be thyroid related) gas/bloating irritability upset stomach canker sores heartburn I have decided regardless of what the blood test state, I am going to go gluten free. I would like to see if any of my symptoms improve or if my TSH levels reduce to within normal range for myself. I am overwhelmed with how to get started. I will not be able to have a gluten free kitchen at first. I live with my boyfriend and we each have one child from a previous marriage. Our children are 5 and 6 years of age. I have every intention of eventually getting our picky eaters to go mostly gluten free, but also realize that I will not be able to accomplish this overnight. While my boyfriend probably won't follow a strict gluten free diet, he will eat whatever I put in front of him and on his cooking nights will cook totally gluten free. I need to know some good ideas for a starting place to start gluten free. I am also starting with whole foods. I think it will be easier than trying to read lots of labels. I am going out today to get a new toaster, cutting board, etc. Any advice would be greatly appreciated! Deanna