This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Something must have got to me and now I am in question?
Thinking I have it narrowed down or do I?
Drug in Question Cefuroxime Axetil Tablets 500mg - Manufactured by Lupin Pharmaceuticals -
I called the manufacturer, there claim is that there is no gluten in there product, they were very short with me, very rude....twice now after taking this product I have had reactions...
Both times I was taking this product I also consumed Tostinos Corn Chips and there Medium Salsa...
Last Time I had more running to the bathroom symptoms and stomach pain...
This Time I have stomach pain/swelling/ but very very bad joint pain/swelling/neck & back pain ... I can't seem to get comfortable my body just aches...
Anyone else experiencing symptoms with these items??
This is so frustrating, I feel like I'd be happiest with a diagnosis but no way do I want to put all of that back in my body for a test that could come up negative!I am two months into eliminating it from my diet and I have had airboorne reactions, and significant bodily reactions after the elimination, I have had many symptoms that seem to be in a healing of sorts. I just wanted something that could back me up....My daughter had the panel done recentlly and her results were negative but I have not seen them with my eyes, I am awaiting the copy. My son will be tested next!
Thank you for explainning it to me...Left wondering why this is all they have for testing, it seems so inaccurate for many! Thanks again, Cathleen
If I order the genetic testing kit will this be enough? What do you think of the genetic tests in comparison to bloodwork panels? (so many have negative results with blood panels ) will the genetic testing serve more of a purpose?
Angela, God Bless You!! Thank you for your reply, I am so sorry you are sick and going through everything that you are going through...I hope you find your answers and your releif! How are you feeling today? Have you received your tests results back yet?
I'm unsure how much of things for me went unnoticed like you in the past, but it was about 5 -5 1/2 years ago that I started feeling sick...I went threw a really stressful break-up with a man who I had pictured marrying who lived with my two oldest kids and I (6 years ago), life moved on, I bought me a dog, quit a very stressful job, started dating, met my husband, got engaged, (seen a few docs not feeling well)found out I was pregnant, got married, had my son... got very, very ill...lost a ton of weight, foggy head, migraine headaches (had never had these), undescriable anxiety, hair loss,(my dog got hit by a car and died) I had confussion, muscle weakness, I had flu like symptoms but wasn't getting the flu....had tests run to check for MS, I had that contrast test done where they look at the functions of things, they said I needed to have my gall bladder removed (actually this test was done days prior to finding out I was pregnant with my son), I kept my gall bladder, I had a mri done on my head to see why I was having all the migraines, they told me there were a few spots that look like they could be associated with hormone problems & causing the headaches, but my regular doctor said that maybe it was MS, so I had tests done for MS (spinal tap), they said those were found normal, my stomach continued to look like I was pregnant (bloating), constipation, vitamin D & Iron I usually test low on...
After all of this I prayed that I would get pregnant again because I felt better during the pregnancy then I had in a very very long time...so thats what I sought out, and that is why my daughter Averi is here, I was sick and I needed some refief, the doctors were not finding anything, family & friends kept telling me I needed to eat (I was eating) ... I was literally a crazy person with confusion and anxiety...doctors suggested fibromyalgia a couple of times, kept hearing the words depression...Now do not get me wrong after going through all of this stuff and some financial difficulties, selling of a house, living in a place I wanted nothing to do with, switching schools, jobs, loss of a dog, new husband, a baby....I mean ya I was probally a little depressed but if I know one thing just one...I know my body and I know my body was not right!
So I got pregnant, many many things subsided and I started to feel better...I dreaded feeling sick again...I had Averi and she will be two now in October, I started feeling real sick again about 4-6 weeks after she was born, it never got as bad as after my son but there were even diffrent things...so I went to see a hormone specialist, now they said that I had some vitamin defficincies, and that my progesterome was a .5 no where near the normal range so they gave me hormones...basically until the day that I sat down and rocked her I have been awaiting answers...I have lived with all of these things for so long with no answers, that day I started this was a day of hope, and these past 40 some days have been my answers, I am healing!
I started doing jumping jacks at night just to test out how many I could do before it hurt, or taking a stroll with my son to find us racing because I could and I wasn't cringing and waiting for the pain to become unbearable...I would and still will eat something and my whole body will tighten up waiting for an ill response, pain...I am still getting used to the idea that it may just be better, hugging my husband kids, letting them sit on my stomach on the floor, or doing crunches...I would avoid all of these before because my stomach used to always feel like it could just pop... after I had Averi I called the doctor one day and told him I thought my spleen was swollen because it hurt so bad, they ran me through a cat scan, and said maybe I should try the fibromyalgia medicine again....no doctor not one has ever suggested to me that it could be food related...
Angela, I hope you find some answers! I know that I am so new to this, and I am learning so much about myself too but please do not hesitate to ask questions or come chat with me! Thank you for your support!
Thank you so much for your knowledge and support, it is so good to have someone to talk to and who knows what you are going through! Being a mom of 5 kids is tough, being a mom of 5 kids who needs to be so dietary restrictive is even harder. I suppose I will learn and hopefully it will get easier. My oldest son is 14, diagnosed with PDD (autism spectrum) when he was just 1, I will be having him tested soon, 13 year old step daughter with no concerns on her diet at this time, my 10 year old daughter whom I had blood work done on last week and am anxiouslly waiting the results, I also have a 3 year old son and a 1 1/2year old daughter - these two I may wait for tests on - they did have issues with milk when they were infants...actually all of my children did...
No sympathy will come from them, this is true! I need to be the one to change how this kitchen works, let them make there choices outside of the household for now (tests pending) ... I do like the idea of a "little area" for there items.
Do you make your own bread, household bread?
Can you suggest your favorite go to site for meal ideas?
Thank you again for your support, it is much needed, and very much appreciated!
I love your knowledge, and your support, thank you!
I agree stay gluten free! I'm also thinking I should try to cut out dairy and see how I feel...after all when I was an infant I was intolerable, hospitalized 4 times directlly in relation to reflex, milk & soy intolerences...why would't I try this too!
I need to set up a blood test for my 14 year old but last week I had my 10 year old daughter tested and am hoping for those results this week.
If her results do not show me anything I still want to try her on the diet if she will cooperate.
Thank you, Thank you!!
Thank you so much for your reply!
I think Im so new to this that rolling along with everyone and there needs/wants,putting mine a side (knowing this is helping me to feel better)but allowing them there lifestyles, its disasterous...to say the least!
We went camping this weekend with the husbands side, I'm pretty sure I've come back glutenated, my stomach burned lastnight, I've turned into a zombie, very irritable this am...hands big and small were in everything, every dip, fruit bowl, I can never just have my own drink someone is always taking my cup/water from me...
This is exhausting!!!
My husband wants me to feel better, but he likes his food & his beer, I see him caught in the middle...
My oldest son when he was 1 was diagnosed with PDD (Autism Spectrum) I have seen that this could be linked to that, I will be setting up some blood testing for him..
In the mean time I had my 10 year old daughter to the allergist last week, I set that up when I found out this is helping me, I thought since I can't be tested that I would get them all tested, so we are waiting on her blood work, they did however tell me she was allergic to grass, ragweed, dust, & mold, treating her for asthma issues, and she has had excema since an infant...also seen that celiac can be in relation to asthma and excema...excited to see the results of her blood work!
I do not wish ill on my children but if one of them would just test positive I could maybe feel like I wasn't crazy feel like I had substantial ground to back my findings up, to help with the explanations to family and friends around...
A major symptom of mine was constipation, I could easily go 8 days without having one single bowel movement, I have been pretty dang regular since the elimination, and I believe that when I have been contaminated that it is actually causing things to run threw me...
My mother's side has Chrone's and Colitis...
My father's side is unknown and he is deceased..
This is great insperation for me, and I thank you!
I think its time for a garbage bag and some bleach...kitchen makeover!
I am so new to all of this, today is day 40 going gluten free, with a few unwanted glutenations along the way! This is a whole new world, a whole new life! In short I have been sick for along while but 5 years with symptoms I beleive related to Celiac Disease. I have had many tests done over these years,by many doctors trying to figure out what is "wrong" with me from cat scans, blood work, x-rays, MS testings,spinal taps, hormone testing, gall bladder testing....not one doctor ever mentioned to me that maybe I had an allergy or an intollernce to foods. In short about two months ago I sat down to rock my 1 year old, turned on the TV and there was Dr.Oz with guest Elizabeth from The View, talking about Celiac Disease and the symptoms, as I sat and watched the symptoms being explained I could check off every single one of them and then some...(if anyone is interested I could list them for you)right then a light bulb went off in my head...this was a sign nothing to loose, maybe something to gain, but absoutlly nothing to loose!! So that was it for me the rest of the day I watched what I ate, and then the next day and every day since then...after 72 hours the gall bladder pain and stomach pain started to subside, I had a burst of energy, I was running with my 3 year old on a "walk", I could hug my husband without pulling away because it was to uncomfortable...I can go on and on...but the best thing is I am feeling better then what I had in a very long time, with no help from the doctors! (Still thinking of billing them the $7K in medical bills accumulated/ but they are good samaritians after all, right!) I am by no means healed, but I feel as if I am healing!
So about two weeks ago I went to see an allergist so excited to get this show on the road...I want to know everything so I can fix it, and move on. In short the allergist came up empty handed..I had NO blood work done for the Celiac Disease because they informed me that I would have to be digesting it for the tests to come out correctlly. So my friends this is a PROBLEM for me...because NO way would I take a million dollers to feel the way I had felt before all of this.
Does having the underlined diagnosis sought out worth my pain and suffering?
What if it showed negative? But what if it shows positive?
I have a husband that is a gluten 'LOVER', 5 kids that go nuts for cakes/brownies/breads...you name it they digest it!
The two times that I am well aware of that I was contaminated was not pleasent for me or for them but I am DROWNING in possiable contaminations here in this household...Do I move out...?LOL
I just want support/someone who gets all of this, gets me. My family just does not understand as I am making there turkey sandwhiches with plastic baggies over my hands and itching like crazy, my throat swollen and snot draining, foggy head as Im pouring there gravy on there mashed potatoes...later washing all the dishes...
Is having the diagnois going to be worth it, is my main question, I guess,? Does that help with support in the long run through all of this? Do your families/households just take it out completelly? How do I cook for all of them while I feel like S*&%, with a smile on my face knowing what I am going to feel like by the end of there dinner!
AHH, THANK YOU FOR LISTENING TO MY BABBLES!