This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I'm a little confused by my results. Are they indicative of Celiac or gluten sensitivity? My symptoms have gone away since I have gone gluten free, so I will continue that path. Since I have genes from both parents, should I have my children tested? They have been gluten free for a couple months, but I'm wondering if I should have them do the gluten challenge and do a blood test for them. They (triplets) are almost two, but I only saw symptoms in one of my daughters. Not sure where to go with my kids, as I'm seeing improvements with their gluten free diet, but it would be helpful to get an official diagnosis.
Any insight or advice is appreciated. Thank you!!
These are my results:
Gluten/Antigenic Food Sensitivity Stool/Gene Panel
Fecal Anti-gliadin IgA 8 Units (Normal Range is less than 10 Units)
My symptoms also got much worse after my pregnancy. I found out I was severely Vit D deficient after going to the drs multiple times with a slew of symptoms. I was pretty amazed how many symptoms went away within a couple weeks of going gluten-free. Hopefully you get some answers and start feeling better soon!
I didn't really have blistering lips, but they were always chapped. Then I developed a rash at the corners of my mouth. I was told this was caused by a Vit b deficiency. Since going gluten-free (and adding a B Complex supplement) my lip problems have gone away. Before I was constantly applying Chapstick, now I occasionally use Vaseline, but that's it. I do noticed if I'm glutened my rash on the corners of my mouth comes back.
I went gluten free around mid-July. I've been keeping a journal of improvements for the last two months. The majority of my symptoms are now gone.
Gluten-free one month (August 2012)
night sweats are gone
Less intestinal issues, gas, and stomach gurgling
Rash on corners of mouth are gone (occasionally still itches around my lips)
Rash under right eye is getting better
Noticing less hair in the shower
Noticing a little more energy
Sleeping better at night
Tingling in arms (mainly) and legs are gone
Chest pain (left breast area) is less, but not gone
Irritable (comes and goes)
Still occasionally wake up with a racing heart at night
Still have some intestinal discomfort and D
**added probiotics and B complex supplements in mid-August
**added digestive enzymes at the end of August
- accidentally glutened on our anniversary dinner and mouth rash and intestinal issues made a reappearance.
Gluten-free month 2 (Sept 2012)
Less painful periods (still heavy flow) - little to no cramping, didn't even have to take Advil
Not constantly hungry - feel satiated longer
No hip pain (was on right side when trying to sleep)
Lips are no longer chapped all the time
No more dryness and cracking on heels of feet
I was told my newer symptoms of night sweats and waking up with a rapid heartbeat was probably peri menopause (I'm 39). They did a blood test and found out I wasn't peri menopausal, but severely Vit D deficient. So I was prescribed weekly Vit D supplements, and left it at that...
Thanks Eternal! I appreciate your advice and opinions (newbie or not ). I am still considering genetic testing as a starting point, and then getting her tested from there (after she turns 2), but I don't want to wait to long because I've heard symptoms can get worse the longer you're off gluten.
I agree that it's a healthy diet, but I also realize she'll have to miss out on birthday cake and other treats growing up if she is celiac. I would rather she knows for sure, I'm just worried about all her symptoms coming back. I guess a little pain now will be worth it in the long run.
Well, it's been over a month of gluten free now and I've seen quite a few of my symptoms improve. I no longer get night-sweats and the rash around my lips has cleared up. Also, my GI issues have been so much better. I slipped up and was accidentally glutened when my husband and I went out for dinner. Reliving all the GI issues and having the mouth rash come back has made me think twice about doing a gluten challenge.
I'm still trying to decide what to do about my daughter (almost 2 years old) who has symptoms. Should I put her back on a gluten diet to have her tested? My husband thinks she should be tested because it is a restrictive diet for a child. She's been gluten free for over a month now, and I've seen improvements (her rash is gone, she's less fussy, and less constipated). I'm also worried thy her symptoms will be worse if she starts eating gluten again. Help!
For years I have had GI issues, mainly diarrhea, bloating, and gas after eating. I went lactose free for awhile, but that didn't seem to clear up my intestinal issues. I must admit, I didn't know much about Celiac until recently (and still don't know a whole lot)
My symptoms became worse after being pregnant. I've been to the doctor's office more in the last year than in my entire life. My symptoms include (not sure if they're all related to Celiac or GI, but I'll list them anyway):
- bad toenails (ridges, pulling away, susceptible to fungus)
- dry/thin hair
- Infertility (IVF treatment to get pregnant)
And new symptoms since giving birth include:
- night sweats (not premenopausal, I was tested for that)
- vitamin D deficiant
- angular chelitis (cracks and rash on corners of mouth)
- UTI - bladder infections
- weight loss / muscle loss
- tingling in arms and hands
- breast pain/tenderness on my left side (mammogram was clear)
- bad tooth infection
I had been feeling like there was a new symptom daily. I am the full-time caretaker of my babies, so it's difficult to keep making dr appointments - I really just want to figure out what's going on. Friends, and even my OB have blamed a difficult pregnacy (bed-rest, pregnant with triplets), and say it probably just took a toll on my body. Some of my family members that have gone gluten free for GI issues, but to my knowledge no one has been oficially diagnosed Celiac. I decided to try it because I wasn't getting answers from doctors, and my sister claimed it helped with her sypmtoms. I am a few weeks in gluten free and notice some of my symptoms decreasing (night sweats and cracked lips mainly). I also am suspecting that my smallest daughter may have an issue as well (underweight, constipation, fussiness, and a rash on back of legs and front of elbows). since going gluten-free (3 weeks) her rashes have cleared up and her constipation is less.
In reading some posts, I see that some people suggest sticking with a gluten free diet if it's helping without diagnosis. I get that, but I feel like it's a lot of sacrificing (especially for my kids), if you don't know for sure. Now that I'm feeling better, I'm having a tough time deciding if going back on gluten to find out for sure is worth it. My sister mentioned DNA testing, and I'm wondering about pros and cons there. Sorry for the ramble, I'm just conflicted as to where to go from here.Thanks in advance!