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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About ValyntineM

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  1. How Do Pregnant Women Stick To This Diet?

    It is VERY hard to not have it in the house. I have 4 children under the age of 7 (2 stepchildren and 2 biological) and they're not gluten free. I struggle with the diet to begin with due to that... and I've tried making us a totally gluten free household... but then I'll take one of them to the store like an idiot and then one of them starts crying for croissants or goldfish crackers or whatever and I feel bad and give in. It's not the taste that's bothering me... it's the consistency. Something about the texture of the breads just grosses me out. I do bake my own gluten free things for the most part... but the pizza crust for example just feels so gummy... Usually, I like it. But not right now. I'm eating a lot of fruit, eggs, vegetables. I LOVE avocados. Most of the food I eat normally is naturally gluten free. But I'm desperately craving bread. Real bread. I did a massive psoriasis treatment on my scalp and face tonight to try and get motivated to go back to totally gluten free. I think I just need to slap myself in the face and remind myself that the cravings are all in my head.
  2. I'm at a total loss right now and feel completely defeated. I got through 2 pregnancies as an undiagnosed celiac. My first son was born 7 weeks early for no known reason and I was on constant and complete bed rest for the majority of my pregnancy with my second son. He was not premature, thankfully, but a little underweight. I am now offically diagnosed with celiac disease and 10 weeks pregnant... totally an accidental pregnancy as I really didn't have plans to have any more kids... and I'm trying SO hard to stay gluten free but it's as if my motivation has completely left me. I have awful morning sickness and can barely keep anything down... except bread. And muffins. Pancakes. Pie. It is all. I. Want. And I feel like a total failure as a mother because I know I'm making myself sick and probably hurting my baby as well. I've tried gluten free substitutes for these things, but they make me violently ill. I just don't know what to do. My skin looks terrible... I have bleeding sores on my face and scalp. I'm hugely bloated... I swear, I look 5 months pregnant. And it just feels like a repeat of my last 2 pregnancies when I really hoped this one would be different. I just KNEW that if I could do it completely gluten free, it would be so much better... but I suck at this. How do people fight the cravings and aversions? I'm completely miserable!
  3. More pieces to the puzzle are coming together: Like I said in my first post... I was originally looking for a fix for my psoriasis when I came across this site. I have THICK hair... I've honestly never met someone with hair as thick as mine. It's also LONG... to my waist. I've always had psoriasis issues... some worse than others... but the only dermatologists I went to told me I would need to cut it very short to treat it with injections or UV therapy due to it's thickness. Which I refused to do because... I don't know, because I'm vain about it, probably. Anyway, over the last several months it has gotten unbearable. The scales are so thick that they're ripping out my hair follicles. They scab over. They bleed. It's absolutely disgusting. And NOTHING I've tried is working. I don't really have a "regular" shampoo. I like Paul Mitchell's line, but will use any of his products so I tend to jump back and forth. In May, my husband got his hair cut at a salon and fell in love with Paul Mitchell's tea tree shampoo and conditioner, so we bought huge bottles of each and we've been using them ever since. Recently, my husband mentioned to me that he thought it might be making my psoriasis worse. And then one day, I realized that I still had conditioner in the folds of my ears that I hadn't washed out in the shower the night before. I was in the car, so I simply cleaned it out with a napkin. No big deal. But a few hours later, I broke out in psoriasis scales exactly where that conditioner was. That lasted about two weeks and it was very painful. I've had it in my ears before, but very sporadically. Anyway, based on that incident I definitely agreed with my husband. The shampoo and conditioner must be making it worse... but I had no idea why. Tonight, I looked at the ingredients. They both contain wheat. That's pretty much all the convincing I need at this point. I have found the problem. At the very least, I must have some kind of allergy or intolerance to gluten. Maybe it doesn't explain ALL my health problems... but it might. Clearly there's SOMETHING going on. That's just too much of a coincidence to me.
  4. Thank you so much for the replies. I'm not sure how I feel about an official diagnosis. My husband thinks I should get one... But I'm not sure I see the point, I guess? If the treatment is a gluten free diet, then I can achieve the same results myself without a diagnosis if I DO have Celiac. If I don't, life will go on as per usual. I've been tested for every ridiculous thing under the sun and they've never found an answer to all my issues... So I won't really lose out on finding out what's wrong with me if I assume this is the answer. That said, I don't want to have to convince anyone in my life that this is the problem in order for them to take me seriously. I suppose if I got officially diagnosed I could say to my husband/kids/extended family "Hey. I'm allergic to this stuff" rather than that I think I just MIGHT be. But at the same time... I don't know when I would even be able to afford getting tested for this. So until then I have to keep eating the stuff? Ugh. I don't know. It's so confusing! And going gluten free... Whew! I don't even know where to start! I suppose it won't be too hard once I make the initial leap... But it's in SO much stuff! I checked it out and It's even in the lipgloss I've been using for the last 5 years! (Coincidentally, my lips are always chapped and cracking. ALWAYS. Related or annoying coincidence?) The best reason I can come up with to be tested is my kids. My infant lost tons of weight while breast feeding and continued to have digestive issues until we switched formula brands several times. The one he is on now is gluten free. My other son was lactose intolerant for the first 3 years of his life but has outgrown it and is very healthy. But, if I do have celiac disease I would want them tested as well. Also if theres a chance that I could have a normal pregnancy with a gluten free diet... I might want another child. I don't know.
  5. And a lot of sandwiches. Wheat bread, lunch meat, mustard, cheese and tomatoes. Tons of pasta as well.
  6. I should add: Gluten is in almost everything I cook. I'm Cajun and have a large family. My husband and I have four children between us... So I generally make big pots of things. Stew, gumbo, sauce picante, soup etc. All of it is made using roux (cooked flour and oil) as a thickening agent. I use it in just about everything, honestly. I didn't use to cook this way, but I have for the last year or so and my health has been deteriorating again for the same amount of time. I eat a lot cereal (with gluten)
  7. Hi there I'm new to the forums and had some questions if you don't mind. I apologize for what I know will be a long post. Thank you ahead of time if you get through all of it. I came across this website (and many others) while on a quest to fix what has become terrible psoriasis on my scalp. It has come and gone most of my life, but over the past few months has become absolutely ridiculous. I originally came across something suggesting that aspartame would make my symptoms worse... and I drink a LOT of Diet Coke so I figured it was worth a try to cut it out of my diet. However, Celiac disease kept popping up in my searches so I decided to read an article or two. Then I read another. And another. And 10 more. I was floored by the information I discovered. I do know what celiac disease is. I dated a guy several years ago who's mother had it. To be honest, I mostly just thought she was annoying about the whole thing. I couldn't understand how eating just a TINY bit of wheat could flip her out so badly. I know better now that I know more people afflicted by it. However, I never really knew anything about the symptoms or what gluten intolerance does to the body. Now that I'm more aware, I wonder if this is what I have been suffering with my entire life. As a very small child, I was diagnosed with chronic migraine headaches, but other than that was fairly healthy. At age 11, I contracted what was believed to be Mono. I say it this way because I never technically tested positive for it. However, all the symptoms were there, so my doctor's assumed that MUST have been it. Unfortunately, even after months of rest, my symptoms never went away. My glands stayed swollen (to this day, actually. 19 years later. It perplexes doctors) and I was still exhausted most of the time. My parents carted me around from doctor to doctor. We heard every theory from sleep apnea to chronic fatigue syndrome... but nothing was ever certain. These symptoms continued for a long time. Sometimes they would subside, but they always returned. When I was 17, I was told that I was simply severely depressed and put on Prozac. That helped in the amount of ZERO, so I was eventually diagnosed with Chronic Fatigue Syndrome. Since then, I have been afflicted and in most cases officially diagnosed with psoriasis, carpal tunnel syndrome, anemia, Vitamin K deficiency, Vitamin B-12 deficiency, Sleep apnea, night terrors, ADD, hypoglycemia, chronic sore throats and throat infections, unexplained ulcers and canker sores in my mouth, chronic stuffy and/or runny nose, diarrhea or constipation (normal bowel movements are VERY rare for me. It's always one or the other). My pregnancies were very difficult. My first child was born 7 weeks premature for no known reason. I had terrible morning sickness every day of that pregnancy and was miserable. I began bloating in ridiculous amounts at 8 weeks pregnant. By 12 weeks, I looked as though I was more like 5 months pregnant. My second pregnancy ended in an unexplained miscarriage at 11 weeks. I spent most of my third pregnancy on bed rest due to unexplained bleeding, risk of premature labor due to constant contractions and poor personal health for no apparent reason. Again, the bloat was insane almost immediately. I went from a completely flat stomach (I am very small and petite when not pregnant) to looking again, 5 months pregnant at about 12 weeks. It was incredibly embarrassing. My son was born at 38 weeks gestation, but was very small and they speculated that I may not have been as far along as they thought. I have been advised to very seriously consider not having any more children. When I'm not pregnant, I take Adderall for ADD. This is also an appetite suppressant, so I only eat one or two meals a day. I am still losing baby weight (my 2nd child was born in April) but normally my body rests at about 110-115 lbs. Even when I don't take medication, I watch what I eat and it is rare that I weigh much more than that... even though when not on Adderall, I have the appetite of a teenage boy. During pregnancy, however... I gave in to my ravenous appetite and ate so much it was actually kind of funny. In light of all this, combined with everything I've learned about Celiac... I can't help but wonder if this is the answer to all my (seemingly unrelated) health problems. I feel like my body's just kind of falling apart piece by piece... and now I think that this might be why. If there's a better explanation, I would love to hear it. Does this sound like Celiac to any of you? Or am I simply web diagnosing myself with small connections? What's the best way to rule out or confirm celiac? Is it worth taking the time, money and energy to get officially diagnosed? I'm trying to decide whether or not to go through that process OR just immediately remove all gluten from my diet and see if it makes a difference in my overall health. Which is the *right* way to do things? Or is there a *right* way? Once gluten is removed from my diet, how long before I can expect to see some results? I'm sure it varies greatly... but what's a reasonable time frame for me to consider? To be diagnosed, to I have to see a specialist of some kind? I appreciate any of you that took the time to read this and I look forward to getting some feedback. Thank you