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darlindeb25

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About darlindeb25

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    Advanced Community Member
  • Birthday 09/24/1955

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    darlindeb25@aol.com
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  • Gender
    Female
  • Interests
    I love having new friends that can identify with me--I like talking to people who know what i am and have gone through and who can also share their trials with this disease with me and whom I can share mine with--my sister is also celiac, as is my father---anyone out there wanting to talk with me, feel free to email me anytime--include in the subject line that its about celiacs--I dont open just anything--thank you, Deb
  • Location
    LONG ISLAND, NEW YORK
  1. Another just like me!!! Yes, of course vitamin and mineral deficiencies can cause insomnia, along with many issues. I have been taking Vit D for nearly 1 yr now, I do finally have my levels up to a more doable level, yet, the insomnia didn't go until my dairy was gone. Low levels of iron can cause insomnia too, as can low levels of Vit B12.
  2. Believe it or not, the junk food is probably part of the problem. You don't need them for the calories, you want them, there is a difference. You like them, and sometimes we justify eating something like this by saying we need it. You can eat fresh fruit, banana's and grapes can add calories, much better calories than junk food. Junk food is empty calories, they are not good calories. Do you go to bed at the same time every day, wake up at the same time every morning? Do you exercise at night, if so, switch to mornings. My sleep doc told me to keep the lights very bright until just before bedtime, then to dim them. Do you like to read? Could you read before bed, it's relaxing. Have you tried melatonin? My sleep doc first gave me Lunesta, which didn't work, then he gave me Sonata, which also doesn't work, and then I tried melatonin..I take 6 mg every night. Yes, they do say warm milk before bed helps some, yet if you are intolerant of something, the rules change. I tested this theory, after being off dairy for 5 or 6 weeks, I tried it again, and the insomnia did come back. Believe me, I would never have believed dairy could do this, without living the situation. Usually, a person with insomnia has a mind that wont rest. I still have this problem at times...depending on the stress during the day. So, try going to bed and rising at the same time every day..this is essential for a person with sleep issues. Research circadian sleep: http://en.wikipedia.org/wiki/Circadian_rhythm Ask your doctor about a sleep study. Insomnia is a symptom of sleep apnea. When you sleep, do you sometimes wake in a panic, maybe thinking you had a bad dream? This is another symptom of sleep apnea. Many people have this problem, and never knew it. I was shocked when the doctor wanted me tested for sleep apnea, and he was correct.
  3. What was your B12 level...the normal range is 200-1000...anything below 500 is too low, even if the doctor didn't tell you it is. Yes, it could be neuropathy. Neuropathy can be text book, or it can be random. We all have different symptoms, and the same symptoms. Tingly, hot spots, cold spots, feelings of bugs crawling on your leg, numbness, burning...there are so many symptoms.
  4. We are all individuals, and can't judge how quickly we will feel better by someone else. Feeling much better in one week is great. The tireness may not pass until you build up your vitamin loss caused by the gluten. My tireness didn't go away, several years later I was diagnosed with sleep apnea, and now have a CPAP machine to sleep with every night. Give yourself time, and try to concentrate on the things that are better...keep up the good work.
  5. Don't get me wrong, I have never gotten "completely" better. I have just recently realized how I was being glutened, and by "gluten free" labeled foods. I have dealt with health issues for years, at least 30 now. I have terrible headaches all the time, headaches that most people would not even get out of bed with, and I still go to work. I'm just saying, celiac is not an excuse to get out of jury duty, not if you are taking care of yourself, and being ever vigilant with what you eat.
  6. Its a great link too. He makes it all so much easier to understand. I wish he was here on the east coast.
  7. Even with crohn's, if you are in a remission, there is no reason you can't serve. Celiac is not a debilitating disease as long as you go gluten free like you are suppose too. I am not celiac, but I am gluten intolerant, and was every bit as sick as anyone whith celiac or gluten intolerance...I stay away from gluten, I work full time, and never miss work. I also have been called for jury duty 3 times, and never tried to get out of it.
  8. There is no scientific test for gluten intolerance, not yet. I'm hoping one day they figure this out. Testing for celiac, is not testing for gluten intolerance. For now, testing for gluten intolerance is a self testing procedure. If you eliminate gluten from your diet, and you begin feeling better, then you should stay away from gluten.
  9. Oh yeah, this is true of doctors too. Nothing is better than personal experience, and often times they forget that we are not all text book examples. Doctors are getting better at thinking about gluten as the problem, but they still have a long ways to go. They need to listen to the patient, listen to what they are saying. Same thing for the dieticians...some of them do not listen either. I have many, many intolerances, although, now I am beginning to think that some of my intolerances are caused by cross contamination of products...any ways, a doctor listened to me explain what I can't eat, and then told me I had to set up appts with her dietician, so she could teach me to eat properly. She wasn't listening to me at all, just hearing what I do not eat, but not why. Much of gluten intolerance is self learning. Trial and error, and you will figure it out.
  10. Your doctor is wrong, very wrong. As momyxyz says, non celiac gluten intolerance is as damaging, well, actually more damaging to the body than celiac is. Celiac is just one autoimmune condition that gluten intolerance can cause, but there are many other autoimmune diseases caused by gluten intolerance. Gluten intolerance causes autoimmune diseases such as Sjogrens, Hypothyroidism, Neuropathies, B12 difficiencies, ADHD and ADD, MS, just to start. Non-celiac gluten intolerance can inflict real damage to your body, not just the villi like celiac does. Celiac is just the tip of the iceberg, gluten intolerance is the iceberg. A gluten intolerant person doesn't have to have celiac, but, a celiac has to have gluten intolerance. It's similiar to "which came first, the chicken or the egg?" In this instance, gluten intolerance definitely came first, celiac is just one reaction to gluten intolerance.
  11. You tell them thank you, which one is your avatar, sure is cute. Hope your birthday was good too. Thanks to everyone.
  12. I honestly do not think anyone has figured that out. If you are gluten intolerant, any gluten is too much gluten. Anything made with flour..breads, pasta, crackers, cookies, cakes...all has too much gluten. As far as that goes, "gluten free" labeled foods have too much gluten for lots of gluten intolerant people. The US doesn't actually have a standard set, they do say anything with less than 20ppm of gluten is ok...but, that is debatable. Not eveyone can handle 20ppm, or 100ppm, or even 5ppm.
  13. Happy birthday and may God bless you today!

  14. Not everyone heals at the same pace, not everyone heals, even Dr. Green tells us that...they do not know why some do, and some don't. I do have very good control over my foods, because I do not eat "gluten free" labeled foods, nore nearly anything processed. I do react to 5ppm. and if you don't, thats wonderful for you. Yet, don't try to tell those of us who do suffer, that we are wrong. http://en.wikipedia.org/wiki/Coeliac_disease I have come to not trust maltodextrin, and I do not buy foods with it in them. Even if it's just CC, it's still is harmful to the super sensitive.