Thanks so much, I feel so hopeless today. I basically thought that with this sensitivity I have can handle gluten once in a while, and I wanted a regular hamburger with the works. I am wrong. That's why I'm still baffled that I was not diagnosed, I've been tested twice and I don't think I can afford a specialist to get a biopsy. I am happier and lighter without consuming gluten at all. It seems like if a tiny amount like I mentioned is consumed I don't feel as horrible as I do when I full on eat something with flour. This sucks. oh well...we have to do what we have to do, right?
I read that people with type 0 blood types with nordic, british isles, and mediterranean ancestry have a high frequency of gluten sensitivity. I am both of nordic and british aisles decent. Oh well, I'm sure I'll feel fine in a few days.
I've been gluten free for quite a while. I let little ingredients pass such as modified food starch, as long as I don't consume them often. I'm pretty rigid otherwise, make my own food don't even buy 'gluten-free' products too often with potato starch and all that. This week I ate a hamburger bun, 2 beers, very questionable popcorn, and a cookie. My intestines are kneading (I can feel it in my back)...but I've not been diagnosed with celiac disease! I just say 'gluten sensitive.'
Today I felt suicidal! Granted I don't like my job, i am quitting to move onto bigger and better things and I'm looking forward to the future. I just read an article about depression and celiac disease, I was consumed with ridiculous thoughts and I've felt worthless all day today.
Has this happened to anyone else?
I am very new to this forum, and i'm so relieved that there are people to talk with about this. I have felt pretty low about this, because it's an adjustment to maintain a strict diet. I'm going to be making all my foods now and follow an atkins style diet from the book called 'Wheat Belly.' My reactions are now so that if I have a tiny little drop of tocopherol (in a dressing) I react pretty badly, but I tested negative for celiac. Someone mentioned on this forum that I could have a false negative test for celiac, but I don't know. All I know is that if I eat stuff with gluten I have issues.
I just wanted to ask...does gluten senisitivity/celiac disease get worse with time? Did you have suspicions that you had issues with gluten, or felt like you had some kind of problem, before you were diagnosed? If you were diagnosed as a kid what were the symptoms? Are they coming up with new tests for celiac disease?
I identify with you about the depression. I am maybe two months gluten free and when I accidently ingest it, the last symptom and longest symptom is depression. It doesn't seem to exit my system for days. If I stay away from it I don't get it...I will have normal 'bad days.' Also, if I limit my caffeine intake to just tea I do better as well. I believe I have been suffering from a gluten intolerance since I was a kid, and it can definetely explain the physical comfort issues I had. Lots of bloating...I think the kind of bloat I get is not a normal kind, it sticks, it feels yucky. I was a very depressed teenager. I'm starting to believe that feeling physically horrible brings you down, like a mind - body connection. Gluten in our bodies either does damage or causess uncomfortable symptoms, so it makes sense that depression goes along with it.
I went to the doctor and tested negative for celiac disease, but when I eat wheat and products with gluten I have a bad reaction. I have cut everything out ofmy diet, and just to see, I ate 2 or 3 desserts with wheat flour. My chest tightened up and I got bad anxiety. So no wheat, then yesterday I forgot about veined cheeses. I bought a salad and good dressing from the store. The dressing had soy sauce and I had a really bad reaction, probably more from the blue cheese. I had a very uncomfortable hot flash, brain fog immediately, and I could literally feel the bloat spread all over my body (still has not gone away the next day), and anxiety, now I feel depressed. This was just from 1 oz of cheese.
Is this a typical reaction? At first I thought the hot flashes I was getting was from high carb foods, but blue cheese doesnt' have hardly any carbs, but I had this terrible reaction. It seems like I am becoming more and more sensitive to gluten, but not celiac? Any thoughts?