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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About scarlet_willow

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    scarlet_willow's Activity

    1. scarlet_willow added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Do You Buy Kraft?
      "However you should know that we do not guarantee that our products are gluten-free because we sometimes purchase flavoring, color or spice ingredients from suppliers who do not list every possible source of gluten beyond what is required by law.
      We do not have a list of gluten-free products and, unless labeled as such, do not guarantee that our products are gluten-free. Formulations and ingredients change too frequently to ensure that such lists are always up-to-date and accurate."


      Would you feel comfortable eating anything from Kraft after reading this? I am really thinking of not buying any of their products anymore. But it isn't going to be easy! They make everything from my mustard to my baking chocolates!
      • 21 replies
    2. scarlet_willow added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Pediatrician Won't Test For Celiac
      I am a newly diagnosed Celiac. My gastro advised that we get my 3 boys tested, regardless of symptoms. Well... their ped will not test them unless they present with symptoms! I find this incredibly frustrating because I love our pediatrician. He has been my boys' only Dr and he's been very, very good. But everything I have read says that all 1st degree (and sometimes even 2nd degree) relatives should be checked for this.

      I have a well-child appointment scheduled for October, so I can try to convince him again then. Maybe I can get him to reconsider. My other options would be going to a pediatric gastro (which will be a huge hassle with 3 very young children) OR paying otu of pocket for one of those any labs places to do it... which would probably be even more expensive.

      Any thoughts or suggestions of what I can say to help convince out ped to test my boys now? I don't want to lie to him and say they have symptoms when they don't.
      • 18 replies
    3. scarlet_willow added a topic in Dermatitis Herpetiformis   

      I Wonder If My Dad Has Dh
      I was just diagnosed with celiac disease a month ago. But my dad has had a pretty severe rash on the tops of his hands and fingers for years now. It's bright red and itchy and bumpy in places. He has tried pretty much every cream and hand lotion out there. He finds some relief with intense treatments and wearing gloves. But nothing makes it subside that much. He has flares when it gets worse but it never fully goes away. He's had a dermatologist tell him it was excema, that was a few years ago.

      I'm trying not to over-diagnose all of my family members hehe My mom has RA and has already decided to put herself on a gluten-free diet. I'm wondering if my dad should get a biopsy of his skin or just try the diet and see (since my mom is going on the gluten-free diet anyways). How long (at the most) after being on a gluten-free diet should his symptoms improve?
      • 2 replies
    4. scarlet_willow added a post in a topic The 100% Positive Thread   

      The gluten-free Banana-Nut muffins I made taste better than the old ones I used to make with wheat flour
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    5. scarlet_willow added a post in a topic Having Trouble Accepting The Diagnosis   

      When I have my boys tested, what should I have them checked for? They are 4, 2, and 1. Should we hold off on te 1 year old? Should we check for the genes and the same bloodwork I was checked for? I can't imagine putting them through an endoscopy right now, so could I just DX them based on labwork?
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    6. scarlet_willow added a post in a topic Having Trouble Accepting The Diagnosis   

      Thanks everyone for your responses! I think I really needed to hear from some more actual Celiacs.

      My labwork from March 2012 is as follows

      Gliadin IgA Ab 79 (0-19 reference range)
      Tis. Transglut. Ab IgA 225 (0-19 reference range)

      I was also tested for the gene and have the DQ2 variant and DQA1*05 allele(not that that says much). I had read on Chicago University's Celiac Disease Center's website that the TTG can be falsey positive for people who have another autoimmune issue (like Hashimoto's) so I always wonder if that bloodtest was falsely positive. But I guess the endoscopy is more reliable and since that was positive, then I really have no reason to doubt it.
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    7. scarlet_willow added a post in a topic 34 Weeks And "mildly Positive"   

      I realize you've had your baby already, but I wanted to respond in case anyone else reads this looking for reassurance

      I got my first + blood test for Celiac when I was around 30 weeks pregnant with my 3rd child. I am pretty sure that was the only pregnancy I went through with undiagnosed celiac disease. I did not go gluten-free during my pregnancy. I tried to initially, but I was dealing with a tremendous amount of stress from my oldest son's hospitalization, my husband's crazy working hours, and moving to a new home, that I just could not put any effort into a new diet (and I didn't even know if I REALLY had celiac disease). I had my son 2 days before his due date and he weighed 9 lb 3 oz (and I am a small girl!). He obviously did not suffer from my celiac disease! I feel incredibly blessed! I also had not tested anemic.

      It wasn't until my son was 13 months old that I had the endoscopy and it was confirmed that i have celiac disease. I breastfed him the whole time and still do (he is almost 14 months) nurse him 3 times a day. No problems with my milk supply and he has grown beautifully I will warn you that i craved carbs like crazy those first few months of breastfeeding, so if you really think you could have celiac disease stock up on some good gluten-free carby snacky options for the starving nursing mom stage

      Oh and one last thing.. if you want to get an endoscopy while breastfeeding, they can use propofal to sedate you, which leaves your system sooner than the sedative they typically use
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    8. scarlet_willow added a topic in Celiac Disease - Coping With   

      Having Trouble Accepting The Diagnosis
      I am a brand new member, so hello everyone. Let me give a little background. And thank you in advance for any experience or advice you can offer.

      I have had positive bloodwork for celiac disease. Earlier this month, I finally had an endoscopy. By just looking at my small intestines, my Dr said that she saw extensive damage, indicative of celiac disease. When the biopsy came back, it indicated Marsh 3B level damage. My Dr said she was very confident in saying that I have Celiac Disease. I started a gluten-free diet right away and have been very strict with it.

      My problem is that I am having trouble accepting this diagnosis. For one thing, my symptoms had really calmed down 2 months before I had the endoscopy. I had just cut out gassy foods (onions, beans, bell peppers) and that seemed to help me a lot. So finding out I still have Celiac Disease without many symptoms is just really weird for me. I never seemed to notice reactions to gluten when I had eaten it (accept for intermitant bloating). I notice way more problems when I eat high-fat foods (like avocado and bacon) than when I ever ate gluten.

      My only other symptom is that I have been 15 lb under my normal, healthy weight for 3 years now. I was always a good weight before and filled out my clothes nicely, but now all my jeans from college fall off my hips. I was also having a hyper-thyroid episode around the same time I lost this weight though. The thyroid problem and weight loss all happened after the birth of my second son. So if i do have celiac disease, I think it probably began around the same time my thyroid problem did, in response to the pregnancy.

      So.... I am internally fighting this diagnosis. I keep wondering if my Marsh 3B damage could have just been caused by the other foods that I had trouble with? (gassy and high-fat). Or if if is at all possible to just have that amount of damage and NOT have celiac disease? My Dr did mention a few other very rare things that can cause that kind of damage but basically said that my chances of having any of those is pretty low. I am a 28 year old woman of irish ancestry already with a diagnosed autoimmune disease (Hashi's), so she said with that information combined with all of my tests done... it is fairly certain that i have celiac disease. But it just seems surreal to me. I still don't feel like I have it. I'm just looking for advice or anything. Thank you.
      • 14 replies

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