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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    1. Ellen added a post in a topic Yummie Hushpuppies.   

      Bob's Red Mill makes a gluten-free all purpose flour that is fabulous! I'm using it in all my old recipies now to make them gluten-free. Thought this would help, since I know alot of the plain grain flours don't always work in substitutions.
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    2. Ellen added a post in a topic How Long After Being Gluten Free Did Your Sleep Improve   

      My daughter has the same problem...but she's 5.5 years old and part of that is a kid just plain fighting going to sleep! Her doctor told us the melatonin was good for getting you to sleep, but it doesn't keep you asleep. Magnesium is what keeps you asleep once you get there. He reccomended epsom salt baths twice a week to help boost her magnesium levels. That seems to have helped alot...she's sleeping through the night after 2 weeks of baths. Since she's only 5 they only do it twice a week, but I imagine an adult could take the baths more often, or even take a magnesium supplement. Hope this helps!
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    3. Ellen added a post in a topic Broken Bones   

      First, I hope she feels better soon. Second, when both my daughter and I were diagnosed they did bone scans and checked the blood calcium levels and we were really low. I know it depends on who you are and how celiac effects you, but our doctor said it was very common for clacium absorption to be one of the first things effected by celiac malabsorption. Now that my gut has healed (my daughter's is taking a bit longer than me) I'm able to just take over the counter calcium supplements and a once a month prescription Vit D. Her doctor should have checked this for her when she was diagnosed.
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    4. Ellen added a post in a topic Cilantro As An Antibacterial For The Healing Of Your Stomach   

      It's also a chelator...helps pull toxic metals (lead, mercury, aluminum, etc) out of your system. It doesn't, however, flush them from your need garlic for that. So this wrap mix sounds like a good healthy flush for people with metal sensitivites too.
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    5. Ellen added a post in a topic Is It "dangerous" To Eat Other Foods You Are Intolerant To?   

      The pregnancy itself may be causing an increase in the intolerances. I couldn't touch tomatoes when I was pregnant...but I love them now. The chocolate you may want to double check...alot of chocolate has malt (from barley) in it. Most just list it as "natural flavoring". Also, careful on the amount of chocolate you eat while pregnant anyway. It has tons of caffeine in it. Honestly, I didn't go a day through both of my pregnancies that didn't involve indigestion, gas and bloating.
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    6. Ellen added a post in a topic Celiac Disease: Not Just A Gi Problem   

      Fabulously put! Thanks!
      I personally never had any symptoms of celiac disease...I have another auto-immune disorder that went bonkers...diabetes... and they tested me and now celiac disease is added to the list of disorders.
      My daughter was diagnosed with autism when she was 15 months old. Needless to say when I was diagnosed with celiac disease we had her tested. Come to find out her "autism" was mostly celiac based. With a gluten free diet she has improved her gross motor skills, fine motor skills, she's finally starting to the age of 5.5 years. We are still struggleing with the National Health Department with having her diagnosis changed from autism to celiac disease, because just like the typical doctor they don't see celiac disease as effecting the neurological system.
      Thanks so much for maybe I'll have something to refer doctor and lawyers to to base my argument on.
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    7. Ellen added a post in a topic Help Against The Gerd! (reflux)   

      Check with your doctor about Eosinophilic Esophagitis. It's a type of reflux associated with food allergies that alot of people with celiacs have. It is untreatable with the typical GERD's not caused by the proton pump so taking a proton pump inhibitor doesn't help. I'm waiting for the biopsy on mine now.
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    8. Ellen added a post in a topic Thanksgiving   

      Butterball is safe, as well as the others listed earlier. I do not use the enclosed seasoning packets or basting packets in any of the birds I buy...chicken or turkey. And don't get pre-stuffed ones. That's definately a gluten no-no. If you have a home recipie for stuffing you can easily make your own with gluten-free breads or bread crumbs. I recommend using Glutano's Corn's in the frozen section of the health food store locally. It is not old fashioned corn is sandwich bread made with a corn base. It toasts better than the others and is easier to make into crumbs after toasting for stuffing.
      I've tried Maxwell's Kitchen gluten-free Turkey Gravey. It's not bad, but I like homemade again. My brother always was in charge of making the gravey and he just substituted corn meal for the flour and it always turns out great. Hope this helps.

      Get your son tested!!! I've got a daughter that was diagnosed with autism 4 years ago. We found out a year and a half ago it was a combination of gluten, metal poisoning, severe intestinal yeast infections, and a couple of other things...she's developing hypoglycemia now Now that we've been treating her and giving her a gluten-free diet she's smiling alot more, talking some now, cuddling, making eye contact...We've got our baby back. She's 5.5 now.
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    9. Ellen added a post in a topic Could Gluten Be Causing Behavior Problems ?   

      Yeah! I was going to say get her on a gluten-free diet but it's great you already have. Both my daughter and nephew had sever problems with schoolwork before going on the gluten free diet. My nephew was falling asleep in class, sloppy work...handwriting especially, inable to concentrate. You name it! And he was a straight A student proir to the diagnosis. Now he's on a gluten-free diet and he's back to normal, grades and all.

      My daughter on the other hand was falsely diagnoised with Autism...mostly because she was unable to speak or concentrate. Now that we have her on a gluten-free diet, as well as other supplements and a few therapies for metal poisoning, she's talking, making eye contact, and beginning to cuddle again. We actually have our baby back again and they're taking her out of special ed classes at school.

      PS if the Cheez-its are just a gluten issue, not a lactose or caisen issue, there are a few gluten-free cheese crackers. They don't really compare, but they will curb a seroius craving.
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    10. Ellen added a post in a topic Natural Medicine For Healing   

      L- glutamine is working wonders for our daughter. They also have her on an enzyme supplement to help her digest proteins (like gluten, lactose and caisen) that seems to be help-ing her too. Our daughter is on a wide range of supplements for all kinds of issues. The one's we've seen the most improvement with has been the natural or alternative ones. You may want to check about some enzyme digestive aids to help you out too for the digestion. Also, avoid mint if you do get an upset stomach. It can actually cause reflux in "problematic" digestive systems. Ginger is a good one though to aid in digestion. I actually found a candy called Gin-Gins that is spicy but sweet that I like eating after a meal. It may just be psychological, but I'm hooked.

      For the depression, have you tried homeopathy? It depends on the type of symptoms you have but homeopathy is a very safe way to go about things. Unlike St John's wort it wont cause sun sploching and sensitivity. Here's a really quick referance guide to some of the basic homeopathic remeidies http://www.Lame Advertisement/p/articles/mi_..._32/ai_89812955

      Hope this helps.
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    11. Ellen added a post in a topic Eosinophilic Esophagitis   


      Thanks. I actually have an excellent doctor. After reading the posts here and thinking this is what I have, then going to him with the idea that this is what I have, he actually said that was what they were checking me for anyway. He didn't do the colonoscopy, but just from his comments in my drug induced state afterwards he said he was pretty sure it was EE. He has to wait for the official biopsies before officially diagnosing me, He even showed me photos of my esophagus, stomach and intestines and explained everything right down the line.

      As for the chip, it must be moving finally. I was able to eat dinner without much pain, but I haven't seen it pass through. Yuck! Just in case anyone has the Bravo system thingy's taking me about 5 days to start the passing of the chip.
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    12. Ellen added a post in a topic Not Eating   

      It sounds like some type of food allergy. But it may not be related to Celiacs at all. I am personally going through getting tested for eosinophilic esophagitis (EE) in addition to Celiacs. My oldest daughter (5.5 YO) has a ton of issues...mostly sloved by putting her on a gluten free/caisen (milk protein) free diet. Her reflux is starting to act up again so we're thinking of having her tested for EE as well. My vague understanding of EE is it's acid reflux caused by an allergy...most likely food. I'll have the diagnosis for myself hopefully Monday (11/21). Then they test me for waht the aditional allergy is. Then I can get a real understanding of it first hand so I know what my daughter is going through. She's non-verbal so sh doesn't really let me know when her stomach is upset or how.

      In addition to this Celiacs tend to get a ton of other allergies...mostly in the grain category. One thing that is safe for Celiacs to eat but you may want to avoid for awhile is buckwheat. It is closely related to wheat but dosen't have the same chemical structure and therefore doesn't have true gluten in it...similar to corn. This contains a substance that is similar to gluten, but is digestiable by Celiacs. You may want to just try eliminating stuff till you find out what's bugging her. My 10 year old nephew was put on the infant diet of food introduction when he was first diagnosed. They took him off everything except rice and slowly...once a month...added a new grain till he was back up to the regular Celiac diet. I hope for your sake you don't have to go through that!
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    13. Ellen added a post in a topic gluten-free Homeopathic Teething Remedies?   

      This stuff is FABULOUS!!! It's gluten free and milk/lactose/caisen free. It comes in a box of wonderful little single dose tubes. You just break the top off and squirt it in the baby's mouth. Within 15 mins the stuff is working. I used this on both of my kids. We finally found out what sleep was after giving this to my first daughter! I highly recomend this to anyone with a teething baby, whether they believe in homopathic remedies or not.
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    14. Ellen added a post in a topic Scared   

      Don't forget cross contamination in things like jars of peanut butter or mayo...also stamps and envelopes.

      In addition to this celiac patients tend to be prone to alot more allergies too. It usually is a snowball effect that starts with gluten containing foods (wheat, rye, barley and most oats) then moves on down the grain line to things like corn and rice, then on to other things. If he's really frustrated check about getting a second opinion...not on celiacs but general digestive upset. If he's got a good GI doctor then they would check for ulcerations during the biopsy for celiac if his stress is that bad.

      I've got a ton of issues in my family...most allergy. Personally I'm working on EE and/or EGID...acid reflux caused by an allergy, most likely food related. I've been gluten-free for 1.5 years and this started 6 months ago. Now I get to go through the fun of finding out what the new "intolerance" is.

      Does anyone else find it funny... our diets sound like a food malitia...Intolerant to gluten!
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    15. Ellen added a post in a topic Question About Family's Reaction To All This   

      I have a family that pretty much fends for itself...we eat what we can, however there are alot of bizarre allergies. I understand my husband's lack of conformity...he's philosophy is he can't eat chicken, but doesn't expect me to not eat it. He's severely allergic to ALL antibiotics. When they slaughter animals for food they heavily dose them with antibiotics before hand. Poultry and fish don't seem to flush it out of their meat, so when you eat poultry and fish (not shellfish) you're getting a good dose of antibiotics too. He's gotten to the point where he dosen't even want to try "organic" chicken that hasn't been given antibiotics, because when you stop breathing when you even get a taste of this stuff you just grow to not like the flavor of it.

      My oldest daughter is 5.5 and has severe gluten intolerance but has not been biopsied for celiac. She's been diagnosed with "autistic symptoms disorder" which we're finding out is a combination of heavy metal poisoning, gluten intolerance, upper GI problems involing yeast infections and ulcers, hypoglycemia,etc, etc, etc. Thankfully we found a doctor that wasn't happy with slapping the autism lable on her, otherwise all of these issues would have been ignored because they cause autistic symptoms. Whew! Needless to say she eats a gluten-free diet happily.

      My second child is the "normal" one. She shows no allergies YET! She seems to be content to eat a mostly gluten-free diet, but she LOVES bread. She'll eat gluten-free anything...pretzels, pancakes, cookies, pizza, spaghetti, etc...but if you try to give her gluten-free bread (or hotdog buns) she acts like she's going to vomit before she even picks the food off of her plate! But this is a 4 year old we're talking about.

      Basically we have the gluten free side of the fridge...bottom half where the gluten intolerant daughter can reach, and the gluten side. The top shelf of our fridge holds one loaf of regular bread and a pack of regular hot dog buns. Our cabinets are arranged the same way...the bottom ones are gluten-free the tops not. We have a toaster oven for toasting and cooking in that is easy to clean so there is no gluten contamination...and it's been designated the left side is for gluten-free foods, right for non gluten-free foods just in case my husband forgets to wipe it off after using it. Thankfully we don't have to worry about cross contamination too much. He can't stand mayo so that isn't a problem there. And he likes chunkey peanut butter and me and the girls like creamy so no contamination there either...the non gluten-free daughter doesn't eat peanut butter on bread, just gluten-free crackers or out of a spoon. Other than that we live peacefully in the same house. We do always joke about that old thing where you know you love someone when you know how to kill them but just don't!
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