This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Yes, I wondering too about the malabsorbtion thing. I'm sure it must vary from day to day. And also, their test test for the malabsorption of fat, correct? So what is the correlation between absorption of fat and minerals? I would think that it might be harder for your body to absorb certain minerals than fats...but I really have no idea.
I get terrible sinus pressure and congestion whenever I eat gluten or dairy. Sometimes it's so bad i can't sleep. Since going strictly gluten-free and dairy free for about 2 weeks it's gotten much better but I still wake up stuffy sometimes. I also have a deviated septum (sp?) so that's part of it.
I just got my results from Enterolab and I am so confused! My IgA results are just above the normal range, but I do not have malabsorbtion (see results below). This is surprising to me because I've had a lot of hair loss and an iron deficiency. Could these problems still be caused by celiac or should I keep looking for something else that's causing them? I guess it could be because I have been on and off of a gluten-free diet for the past few years. (I know now that that's not the way to do it!) I am also wondering about the gene tests. They said that I have the gene for celiac sprue (*0201 or DQ2) but what does the second number *0303 represent? Does everyone have two numbers? Also I thought for sure I was sensitive to milk...I always get a stuffy nose and water retention and gas after eating it but according to the test I'm not. But does a value of 8 mean that I could be having some sort of immune reaction? Should I have other food sensitivity tests done to see if it's something else? Thanks in advance! Kallie
Fecal Antigliadin IgA 12 Units (Normal Range <10 Units)
Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10
Microscopic Fecal Fat Score: 180 Units (Normal Range < 300 Units)
I have lost a ton of hair over the past few years and my doctors told me the same sorts of things...everyone loses hair as they get older, your hair looks fine, and my favorite--you certainly don't look malnourished! All of my tests have come back normal (except for once my thyroid was slightly low but then it recovered). They always told me I was fine. Then in my most recent bout of tests, a month ago, I had low iron levels. So then I asked to look at all of my test results and pretty much everything they tested was at the low end of normal....and the normal range for these things is huge! So I'm wondering is normal for me the same as normal for a 60 year-old man? If anyone knows how these normal ranges were developed I would like to know.
Thomas, thanks so much for the info. I just realized I called you Richard earlier. Sorry, I have no idea where that came from. Must be the brain fogginess. I have many of those symptoms. And I eat sushi all the time. That site looks like a great resource.
I'm so glad that your doctor is finally starting to be understanding! And hopefully they will send you to someone who is knowledgeable about gluten intolerance. I now exactly how you feel. My fluid retention and bloating and GI symptoms have been going on since I was 17 and now I'm 29! To be honest I just accepted that that's the way I was until the past few years when I was exhasuted all the time and my hair was falling out in gobs. I still have doctors that don't believe that my hair is falling out! I even had my mother verify that I had twice as much hair when I was a teenager. I think if they don't have a quick fix, then they just tend to downplay your symptoms to make themselves feel better. So I'm really thankful for enterolab. I'm hoping the same thing will happen to me when I bring my test results in. I was on vacation for awhile so I sent in my test on monday. So I've been gluten-free since sunday. I already feel SO much better. My fluid retention is starting to go away and my stuffy nose is much better. I really hope that my hair stops falling out soon. I've lost like half of it since this all started. It's so good to know that there is someone out there with the same symptoms as me! Keep me updated!
I have recently gone gluten-free (still waiting on test results) and I'm feeling so much better. I was wondering what people's recommendations would be for the types of foods that will heal my intestinal track the most quickly. I hear so much conflicting information...for example high fiber or low fiber, how much protiens and fats, etc. Should I be only eating foods that are easily digested, or more high fiber stuff? Should I avoid all grains for awhile? Also, will taking a probiotic help me at this point or should I wait until I am healed more?
also, I have read that if you don't drink enough water your body will cling onto what's there, causing more, not less fluid retention. So drink lots of water! Also I think midol is not the best thing, I was reading it's too harsh of a diuretic and will flush all of the minerals out of your body along with the fluids. We sure don't need that!
I just went gluten-free a few days ago (still waiting for the results from enterolab). I have a terrible time with water retention when I ingest any gluten or dairy and some other things which I have yet to figure out. I've been reading up on it and apparently any type of immune reaction can cause fluid retention. Basically the body is trying to "wash out" the invaders by filling up our cells with fluids. For me it's mostly in my face but it used to be more in my hands and feet. Some things that have helped me are taurine (an amino acid that is supposed to balance fluids), pineapple juice, and 100% cranberry juice, both of which are supposed to reduce inflamation and fluid retention. Fluid retention is a symptom of many autoimmune diseases including lupus, arthritis, diabetes, etc. I think whenever there is any type of inflammation, fluid retention can result. So you are not alone!
Rachel, I think we are twins! My thyroid tested low once, so I went on meds, then I went to another doctor and it tested high so she took me off of it. I really think now that the hair loss is due to mineral deficiencies. I know that low iron is usually a cause and who knows how many other minerals we are deficient in that they never even test for? Oh, by the way, I went to a endocrinologist for my hair loss when it first started and he looked at me (I was slightly overweight at the time) and said "well, you are definitely not malnourished." Isn't that awul? I probably was very malnourished!