Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

12 Good

1 Follower

About anti-soprano

  • Rank
    Advanced Community Member

Profile Information

  • Gender Female
  • Location I'm a Yankee in the deep south of the US
  1. Gluten In Prescription Med.

    Just wanted to come back and let anyone in a future search involving that medication know that it was perfectly fine.  No issues and I've been taking the pills for almost 2 weeks.
  2. A paraphrase from Peter Green and Rory Jones' book Celiac Disease: A Hidden Epidemic: Celiacs show higher amounts of insulin antibodies, which tend to go down on a gluten free diet. Therefore, undiagnosed celiac disease can put you at risk for developing diabetes and many people end up with both.  Those with both tend to get their celiac disease diagnosis second.    What I gather from the above is that if you haven't yet developed diabetes and stay off gluten successfully, there is a good chance that your pre-diabetes situation will resolve itself. Best of luck in that! 
  3. Gluten In Prescription Med.

    Thank you!  You are a fount o' knowledge, as usual!!
  4. Hi All, I am about to start a new prescription, so I just checked with the manufacturer. Online this is their statement: Contains Gluten:Product contains corn starch which contains a small amount of gluten, so it is not gluten free. However, it does not contain gliaden gluten, the type of gluten associated with celiac sprue.   I called to talk to someone, which was of no further help.  How can something contain gluten that won't affect me? I asked if they tested the product.  She said no, but again that the corn starch contains gluten.  If corn starch doesn't bother me (which it doesn't) then I should be able to take it.   So are there trace amounts of gluten that are below the detectable amount (20ppm) or is there something else in this that really doesn't bother celiac patients??? I find their response absolutely confusing.  If any of you can shed some light on this, it would be great!     The drug I'm hoping to take is a generic version of a known gluten free drug, so I can easily go back to the pharmacy and exchange it.  But, with a partner out of work, I'm hoping to save 25 beans   Shellie
  5. Thank you!!  This is exactly what I wanted to know.
  6. Hi Ladies- The first thing I thought was allergies- most likely something related to food (as a child I broke out in hives to strawberries and chocolate milk and it eventually faded away).  But seeing as though I don't have and therefore aren't familiar with DH along with her genetic chances, I wanted to check.  So I'm assuming that DH sticks around without fading quickly while hives can come and go- is that correct?
  7. Hi All, This question is regarding my 2 year old niece who has been breaking out in hives as of late.  I am a celiac without DH symptoms, my sister is likely a celiac but undiagnosed (gluten free), my niece's paternal grandmother and great grandmother are also celiac.  So the kid is in the middle of a genetic minefield.   Apparently, she has been breaking out mostly at night and wakes up in the morning with hives/rash all over her belly, back, and sometimes her arms and legs depending on how bad it is.  The rash disappears pretty quickly.  The first time they took her into the pediatrician and it was no longer there at that point.  This morning, it disappeared as they were eating breakfast.  She is left with a few random hives throughout the day, but not the all over rash.  She does eat gluten, especially at school and she had a roll last night at dinner.  This could be so many things, but I know very little about DH.  Does it come and go that quickly or does it stick around for long periods of time???   She does have some GI symptoms (Constipation) which is leading me to ask this question..   Thanks for your help! Shellie
  8. Going To Paris - Need Your Best Tips I found the Italian version of this book helpful.  A helpful and thorough blog particular to Paris may be all you need, though.
  9. Hope he is better by now!!  For future readers, I would suggest checking all medication.  Sometimes we forget that we're taking pills for other things.  I too was struck with a mild fever, exhaustion, loss of appetite and I KNEW I had stupidly glutened myself the day before. So I searched this forum and found a couple people who said they experienced a mild fever during a glutening and went about my business. A day or two later, I developed hives. It never crossed my mind that I could be having a reaction to the antibiotic I had been taken without incident for 7 days previous to the ingestion of gluten.  As Karen said for a different reason, "it's not very scientific", but I think the boost from my immune response to the gluten caused my body to react to the medication.   
  10. Your daughter's reaction is typical.  What Barty said absolutely applies to American schools.  They have special plans they are required by law to adhere to if a child has a medical diagnosis.  I'm not sure how that works in Scotland, but I would suggest having a conversation with school officials to start.  Being glutened is too horrid to make a habit of it.  It is up to both her and you (obviously more you, since she is a minor) to protect her from eating things that cause her physical pain with advocacy for her special needs, regardless of whether it is celiac or gluten intolerant.     Best of luck to you!  I'm so glad you were smart enough to figure out her problem before she endured years and years of damage to her body.  Kudos to you, Mom!!!   Shellie
  11. Also helpful in general:
  12. Sweetheart, Go to this thread and read immediately:   Here is a full list of symptoms:   It can explain: itchiness brain fog (impaired cognitive function) rashes hair loss joint pain low iron low B12 depression anxiety dizziness tingling face/numbness low energy   Is that everything you listed?  It is not celiac, but many of us celiacs seem to be afflicted with this after going gluten free. Best of luck to you.  This sucks- trust me, I know!   Shellie
  13. So Many Thoughts

    No one in their right mind would eliminate gluten unless it didn't make them feel better.  It's far too much work!!  Continue to do what you know is best for your body.  The celiac blood tests are also very fickle.  Do you have DH?  The blood tests for people with DH are only positive 40% of the time and 100% of people with DH have celiac disease.  You most likely have a gluten intolerance, but thought I'd mention the other complications to celiac testing just in case.   Have you read "Wheat Belly"?  The author, also a doc, really lays into the whole high fiber diet for diabetics as being counter productive and actually unhealthy.  Shameful is right!
  14. Mast Cell Activation Syndrome is another possibility.   Here is a complete list of symptoms:   Makes sense with fatigue, headaches, dizziness, muscle weakness, depression, anxiety, iron deficiency, GI issues including bloating and reflux, thyroid problems, racing heart, and cognitive problems.  What doesn't fit is high blood pressure and high B12, both of which are usually low.
  15. Recurring Issues

    I have not been gluten free as long as you have been, but I have tried the Paleo Autoimmune Protocol recently.  If anything it has been successful in highlighting my sensitivities and giving me the space to see that I react negatively (less negatively than gluten, but still negatively) to other foods.  It is also supposed to help to heal the gut lining.  It isn't easy and the first thing you see is everything you aren't supposed to eat.  But I do believe it has been helpful.  I felt like garbage at first, but slowly I gained back energy.  (not a ringing endorsement, I know!) My sister, who has done a bunch of crazy cleanses, says that the garbage feeling is typical and it is the body releasing all the bad stuff.  Whether that's true or not- I'm not sure.  If you try it, stick to it for 30 days to be sure.