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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About spirit_walk

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      Advanced Community Member
    • Birthday 03/16/1974

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    • Gender Male
    • Location Austin, TX

    spirit_walk's Activity

    1. spirit_walk added a post in a topic Villi Damage From Other Food Intolerances?   

      This is a question that I have had as well. I went from eating any and everything I wanted with no problems (although I has upset stomachs a lot growing up). Then I started having mild pain in my hands over the course of 2-3 years (tingling and sensitive), and then in March of 2012 it went full-blown crazy. My hands were hurting terribly, then it moved to my wrists, knees, hips, and other parts of the body. It was then that I realized that the food I was eating was causing much of this pain. After removing dairy, gluten, nightshades, corn, and eggs, along with other foods that came up in a IGG blood test, my pain got better. To this day, I am not sure about the blood test, but I do know that food is causing my problems. I had an upper endoscopy done last summer, and my villi were normal (I'd been off gluten for about 7 months). This makes me think that the other foods I'm eating are causing damage to the villi. However, my stomach lining was reddish and explained as gastritis. So perhaps the foods I am eating are causing inflammation in the lining of my GI tract even though it isn't necessarily damaging my villi? I don't know. I am eating as healthy as possible, and trying to gain weight (which isn't happening). I have a malabsorption issue and wonder if some of the foods I'm still eating are playing a role in preventing healing.
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    2. spirit_walk added a post in a topic Pancreatic Insufficiency   

      Just curious, but do you weight loss as well? I was taking Creon and Zenpep for a few months, b/c my doctor discovered I wasn't absorbing fat. It didn't help me gain weight, and I stopped taking them b/c the prescriptions were expensive.
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    3. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      Thanks nvsmom and janpell.
      I usually feel my best when I haven't eaten for several hours. I'm on a mission to gain weight though, so I've been eating as often as possible. Usually when I finish a meal, I feel it in the wrists first. Some days are better than others, but the popping is always there even on the good days. I've gotten to the point that I don't expect answers, but I still hope for them.  
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    4. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      They haven't been able to explain it which is why I'm reaching out to this community.
      However Irish, they didn't say it wasn't a rheumatic condition. Well, SOME (I've seen four different ones) have said I don't have arthritis. One said I have inflammatory arthritis and that he could feel inflammation in my joints. The initial rheumatologist I saw said that nothing was showing up in my tests at the time and encouraged me to check into a research hospital or the Mayo Clinic. To be clear, two of those rheumatologists simply reviewed previous blood tests. That is why I went to Mayo. My GI doctor knows that I'm not absorbing fat through fecal tests and said it's certainly possible that I am not getting other nutrients do to malabsorption. They put me on Creon and Zenpep (two pancreatic enzymes) and those didn't change the absorption issues. An odd thing happened earlier this week. My rheumatologist who I hadn't seen since last spring called to check in on me. He asked if any new symptoms have emerged (rashes, swelling, etc). When I told him that the GI doc found that I wasn't absorbing fat and that my stomach lining was reddish (found during upper endoscopy), he said he'd like to be added to their system so he could see my medical records. He said different GI issues are related to joint issues and that it was more pieces to the puzzle.
      Irish, I've had six straight days of Vinyasa yoga classes, and I feel pretty good. Yoga has been great, and I will continue doing it daily through the summer. I'm still trying to find the culprit to the joint popping. Since removing gluten and changing my diet, most of my symptoms, from the extreme joint pain, to the neuropathy, to the mouth ulcers, seasonal allergies, and energy levels (at least in the mornings) have all improved (although I do have setbacks at times). The one thing that has gotten progressively worse has been the snapping and popping in the joints. What started in the wrists/shoulders moved to the jaw, hips, knees, and now neck. It migrates from hips to knees. I've started feeling my back pop as well, and it's definitely not cool.
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    5. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      I never said neither of those things. I said I had difficulty lecturing when I was experiencing the jaw popping, and I never said it wasn't a big deal.
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    6. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      karen, I've seen numerous doctors and have been a pin cushion for blood work. I've had a joint scan and bone scan. Those were both done a while back though, and this all started two years ago. So I'm not sure what an x-ray would show today on the different joints. The last time I asked about it, there were a few people who gave some good feedback. One person in particular I have PM'd. She doesn't post on the board much and hadn't posted for months though. I guess the idea was to simply see if some new eyes may see my post who have similar issues. I never saw the dentist about TMJ. The popping in the jaw lasted only a few weeks and I feel it every once in a while if I eat things that required a lot chewing (for example whole almonds). The rheumatologists I've seen can't explain the joint popping. One said it was likely due to inflammation in the joints, but I've never experienced swelling. I've more than a handful of doctors who have told me my symptoms are rare and are likely caused by an autoimmune response from the gut. The internist medical doctor I saw at the Mayo Clinic was probably the most helpful of the bunch, and he said there are just a lot of questions about the GI tract don't yet understand. I've abused my body for years with food, so I realize healing takes time. Many of my symptoms have improved. The popping hasn't. It continues to get worse.
      Ftr, I appreciate all the feedback. I've had several discussions with Irish through PM, so she's more familiar with my symptoms. She's been a great resource.
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    7. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      I move all the time. I teach fourth grade and I am constantly on my feet and moving. I've also been in a great deal of pain over the last two years while working and wondered if I can continue as my symptoms progress. It's very difficult to stop stressing when you're in pain all the time and symptoms are getting worse. I've been doing yoga daily for the last week since out for the summer break. I've been doing a lot to stay stress free. I've been eating well even though I'm not sure how much my body is taking in with the malabsorption issues. 
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    8. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      Thanks for the John Hopkins link. Have seen it many times, and it is not describing my particular condition.
      This is not normal popping that comes from lack of motion. Irish I'm not sure how many times I need to explain this or if I'm simply not explaining it clearly. My bones SNAP. This isn't crackling like when you rise out of bed. My wrist want to lock up, my hips have movement that is painful, and there are times when I've had to use the elevator at my job, b/c my knees hurt so bad from the popping. Another example is that when I'm driving my shoulders snap on a consistent basis simply by turning my steering wheel. I'm forty years old and was on a mountain bike almost daily 3 years ago. I've been active in sports my entire life. I've dislocated my kneecap playing football, broken a wrist in tumbling, and have never had issues with joints until fairly recently. When I started experiencing severe joint pain two years ago, there still was no popping. It started a few months later in my wrists and shoulders and has migrated to other parts of the body. And it is magnified with specific foods, weather, and if I am stressed. So it's not some issue that stems from age, wear and tear, or osteoarthritis.
      And as I've stated it's extremely difficult to carry on happy-go-lucky when my body is readily available to remind me there is something not right going on.
      This is the SECOND thread I have posted on this site in over a year asking specifically about joint popping. The first time I posted a thread about it there was one person who responded who seemed to have similar issues. I am curious if there are others. Thanks again.
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    9. spirit_walk added a post in a topic Joint Popping And Muscle Twitching?   

      There is pain associated with the popping. I had difficulty lecturing to my class when the jaw popping went on. My hips hurt almost daily from the clicking in them, and when the knee popping gets bad, it is painful. When my wrists pop, they don't generally hurt, but in feels uncomfortable and they feel as if they are locking up at times. Sometimes with a harder snap, it is painful. Same with the shoulders. I don't have noticeable visual swelling, but there is definitely pain involved. 
      It's not typical, get out of bed popping in the joints that I am experiencing. This is movement in the ligament/tendon issues that was never there 2 years ago and has quickly progressed to different areas of the body.
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    10. spirit_walk added a topic in Celiac Disease - Related Disorders & Research   

      Joint Popping And Muscle Twitching?
      I posted about my issues with joint popping a while back, but I wanted to try and again to see if I would get any more responses. Does anyone have chronic joint popping? It started with my wrists and shoulders. I had it a while in my jaw but it went away. However, it never stops in the wrists and shoulders and progressed to my knees, hips, and now neck. Once in a while I can feel my back pop as well.
      I am curious if there are others experiencing this, how their symptoms have progressed over time, and if they have found a way to address it. I have been off gluten now for about a year and a half. My joint pain in my hands, wrists, and knees is pretty much gone since going gluten free. But, the popping is the one constant. My hip joints hurt because of the popping and if I eat some foods.
      I've also begun experiencing muscle spasms/twitching in my thighs and arms over the last couple of weeks. I'm wondering if this is a vitamin deficiency or just another unexplained symptom like my popping. 
      • 25 replies
    11. spirit_walk added a post in a topic Powders And Shakes To Heal The Gut?   

      Those two protein powders are the ones mentioned in Esposito's book. She claims to have used them to help healing.
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    12. spirit_walk added a post in a topic Powders And Shakes To Heal The Gut?   

      Try this one nvsmom.
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    13. spirit_walk added a post in a topic Powders And Shakes To Heal The Gut?   

      That's a good point.
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    14. spirit_walk added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Powders And Shakes To Heal The Gut?
      Anyone take either of these and have any advice on them? Have you found that products like these are beneficial for healing?
      • 8 replies
    15. spirit_walk added a topic in Celiac Disease - Related Disorders & Research   

      Sugar Causing Symptoms?
      Do many of you have problems if you eat foods high in sugar even if they are natural sugars coming from fruit? Sugar triggers joint pain for me. Just wondering if there are others who experience symptoms from eating a lot of sugary fruit and such?
      • 8 replies

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