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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About freedomseek00

    • Rank
      New Community Member
    • Birthday 06/05/1989

    Profile Information

    • Gender Female
    • Interests exercise, reading
    • Location Monument, CO

    freedomseek00's Activity

    1. freedomseek00 added a post in a topic Sugar And Fruit Problems   

      Hi Celiac Mindwarp, I wanted to express my compassion for what you're going through right now. Giving up sugar is really difficult because not only does it have a physical addiction component but an even tougher psychological one.
      I did my first Whole30 before Christmas of last year and it was tough. There were a lot of cravings but so worth it in the end. After 30 days is the reintroduction period where you can find out exactly how your body reacts to sugar. I already knew I was celiac with allergies to eggs, dairy, and soy before starting my whole30 so I knew I would never "test" those through reintroduction but I was curious about the sugar. I've always known I'm sensitive to sugar but never knew just how serious it was until I reintroduced it. I reacted so violently and gained 9 lbs of water weight pretty much overnight from trying a few gluten, egg, dairy, soy free cookies and an apple. I also had a lot of the same symptoms you describe. I have come to the difficult conclusion that my body just does not like sugar in any form and have since given it up for good. This is a big change for me considering I used to eat about 4-5 fruits a day. But now that I'm more in tune with my body I know I do better without sugar and fruit.
      I'm glad you are going to do the Whole30 because it really teaches you to be aware of your body and how it reacts to all foods. I am so grateful for it. My life has improved tremendously since I disciplined myself to just do it. Good Luck and feel free to message me if you need help cutting the sugar and fruit out.
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    2. freedomseek00 added a post in a topic Angry, Frustrated, And Depressed About My Food Allergies   

      Thank you everyone for responding.

      I just signed up for a local support group in my area and I'm waiting to hear back from them.

      My tests only came back positive for gluten and egg, but whenever I eat or touch anything soy/legumes, dairy, corn, and/or sugar I get crazy itchy, watery eyes, mucuos pouring out of my nose and I have trouble breathing and can't stop coughing. I also get very severe psychological reactions such as panic attacks and depression. It's not pretty. And I've tried eating these foods mutiple times and the reaction keeps getting worse (which I've read can happen). So I stopped eating them on my own volition despite my stupid doctor telling me that the tests showed there was "no way" I could be sensitive to them. I just really hope there aren't more things that bother me. The one I really hope doesn't happen is nightshades. I loooooooove peppers and onions and garlic.

      Thanks for your suggestions. I've tried a lot of recipes for breads and snacks using different grains and they make me so constipated. Come to think of it, I almost feel just as bad when I eat gluten-free grains as I do when I eat gluten. Is there such a thing as grain intolerance? All of it makes me feel crappy
      I'm also going back to another one of my doctors to get some more blood tests. Despite being celiac and having all these food issues I wasn't deficient in Vitamin B12, Calcium, or Vitamin D. She didn't test for all the other vitamins and minerals out there so I am going back in a week to get as big of a blood panel as possible. What sort of things are the most important to get tested?
      Right now I'm taking some Vitamin C to help with my adrenals, a probiotic (for the parasite) and Glutamine to heal my leaky gut.
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    3. freedomseek00 added a topic in Celiac Meeting Room   

      Looking For A Friend Who Understands
      I'm 23 years old and was recently diagnosed with celiac and a host of other food allergies and health conditions. I was wondering if there is anyone in the Bay Area, California who can relate and would like to be buddies (email, text, chat online, face-to-face). You don't even really have to be from the Bay Area, I just would like someone to talk to (that's what's so great about the internet). Right now I only have my dad (who is sensitive to gluten but no other food allergies) and my boyfriend (who has no food allergies) and they try to help as much as they can but it's not the same as having someone who can directly relate and who will understand my story. Otherwise, I have no other friends because I've been so sick for the past 5 years until they finally figured out it was food allergies a couple months ago. I'd love having more friends I can talk to and we could support each other Admittingly, I need a lot of support right now, I'm really struggling with accepting that this is my new life.
      • 2 replies
    4. freedomseek00 added a topic in Celiac Disease - Coping With   

      Angry, Frustrated, And Depressed About My Food Allergies
      Hello everyone,
      I'm 23 years old and I was diagnosed with celiac, adrenal fatigue, anemia, and an intestinal parasite back in September. I also found out that I have allergies to soy/legumes, dairy, eggs, corn and am very sensitive to sugar. I've been attempting to eat strict Paleo (except for the egg part as I'm allergic) as often as I can since those foods really do make me feel a little bit better or at least I don't react to them. My problem is that I can't stick with my allergen-free diet. I've seen a lot of posts on similar topics but I was hoping to get some input on my personal situation, or at least some support. Until last night I was 48 days gluten free, 48 days egg free, 13 days dairy free, 20 days soy free, 2 days corn free and 2 days sugar free. But last night I just cracked! I ate all the foods I'm not allowed to eat. I feel so deprived. I've tried substitutions but I end up reacting to those as well. When it really gets down to it I know I'm addicted to food. I've used food as an emotional crutch ever since my parents got divorced when I was 7 years old. Every since finding out about my food allergies in September, I've been crying every single day. My boyfriend doesn't know how to help me and I just cry whenever we are together. I honestly don't feel like I can live the rest of my life with these food allergies. Every day is a huge struggle and most days life doesn't seem worth living. I don't know what to do to anymore. There's practically nothing I can eat and as we all know a lot of social activities revolve around food, especially at this time of year with all the holiday parties. I'm so frustrated and tired (in addition to the chronic fatigue) with having to cook all of my meals and sit back and watch other people eat the foods I can no longer safely eat at dinner parties and such. My boyfriend is a blessing. He won't eat anything that I'm allergic to in front of me because he knows how much it hurts (and he also doesn't want to have to brush his teeth every five minutes just so he can kiss me ). But it's still not enough. I'm in so much emotional turmoil. How can I get the motivation to want to take care of myself no matter what situation I'm in? I know things are eventually supposed to get better and I know I was not free from my allergens for any significant amount of time, but I hadn't seen any improvement in my aches and pains, fatigue, sleep, or emotional issues, which really makes it hard to stick with the diet. I feel very left out and isolated. I just want to be normal again. Thank you in advance for reading and responding. I appreciate any and all help I can get.
      • 12 replies
    5. freedomseek00 added a post in a topic Anyone Else Gluten-Free, Dairy-Free, And Soy-Free?   

      Thanks everyone for your help! I'm starting to feel better and getting used to the diet. I still have times where I really miss the old foods I used to eat but I'm not having the awful stomach cramps that I used to get when eating gluten/wheat/dairy/soy nor am I getting that horrible diarrhea that kept me on a leash to my bathroom. So I'm definitely seeing the benefits. I struggled a little in there but have been "clean" (for lack of a better word) for a full 7 days now! I'm starting to get my energy back too!
      I tried a few gluten-free products like those from Enjoy Life (free of top 8 allergens I believe) and some Lundberg rice chips. Enjoy Life foods were really disappointing (I tried the crisp sugar cookies and the fruit bars) but the rice chips were good! I'm not much of a salty person though. I've always preferred the sweets but I'm slowly realizing that allergen free versions are just not the same as my old favorites. BUT, I keep reminding myself that my old favorites made me very very sick and definitely not worth going back too.
      The only problem that still remains is finding restaurants that are allergen free. My boyfriend is still frustrated with this as am I. A lot of restaurants offer allergen free options but cross contamination is an issue and in these first few weeks I've found that I'm very sensitive to any sort of contamination, no matter how small.
      Again, thank you everyone for responding! has helped me so much as I'm figuring this new lifestyle out.
      • 0
    6. freedomseek00 added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Anyone Else Gluten-Free, Dairy-Free, And Soy-Free?
      Hi everyone,
      I was recently diagnosed with celiac 3 weeks ago and also told by my doctor to completely avoid all dairy and soy for the next year or so until I can try reintroducing them again. The problem I'm having right now is that my cravings for the foods I used to eat before being diagnosed are getting stronger every day that I am on my new celiac diet. I tried looking through the supermarket in addition to the natural health food stores I have in my area (Whole Foods, Trader Joe's, Sunflower/Sprouts) and every gluten free product out there seems to still contain dairy and/or soy! I don't even have options for when I'm getting a craving to safely try to satisfy it nor have my boyfriend and I found any restaurants we can go on dates too. Everything has gotten so overwhelming since being diagnosed. As a side note, due to my new wheat/gluten/dairy/soy free diet I have been eating fruit when I get cravings, but I don't want to go overboard on sugar either since I already have a Candida overgrowth and am sugar sensitive. Does anyone know of any snack foods out there that are wheat/gluten/dairy/soy/sugar free? I'm sorry, I know that's a lot to ask for
      • 14 replies

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