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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About TGK112

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  1. Thanks all- I still eat dairy - almost daily - yogurt, cheese - since I am also dealing with osteoporosis. I will try to be a bit more aware when this bloat happens. I know it's usually after a meal - even if the meal is primarily salads or fruit.
  2. I have been gluten free for two months. I was relatively asymptomatic prior to my diagnosis - it was a bone density specialist who suspected and had me tested for Celiac. I can't say that I feel any differently after two months- but again I didn't feel poorly before going gluten free. However - I do notice after most meals I feel quite bloated. Is this typical? It's hard for me to know if I've been glutened - since I never really had the classic symptoms - but I was thinking that after two months being gluten free ( I think) - that I shouldn't be feeling bloated so often.
  3. I went to Five Guys and ordered a bun-less burger (I brought my own). I asked them to keep the burger away from their buns. When my order was being prepared - all the workers on the line automatically put on new gloves. Another plus for Five Guys is that they have a small menu- so I had no worries about their fries - there was nothing to cc them with.
  4. Before I was diagnosed, I kept getting blisters on my lips. I thought that maybe the sun was having some weird effect. Once I was diagnosed, I realized that my lipstick was probably the culprit. I threw away all of my lipstick - but am still bothered with dry and sometimes blistering lips. I'm coming up on 2 months gluten free. Since I had no "classic" symptoms before diagnosis, I have no idea how well I am following the diet. I finally, just today, replaced my face moisturizer. Anyone else with lip problems??
  5. I went for Thai food for the first time since diagnosis. They cooked my meal with fish sauce which is gluten free.
  6. This is also my first Thanksgiving gluten free. Any idea how to make green bean casserole. Cream of mushroom soup seems hard to come by, and french fried onion rings are out.
  7. I guess what I am asking is more about internally. I realize that we all have different reactions - from none - in my case - to severe. What I'm wondering is - do we all have different degrees of internal damage? Does one person get inflamed by a speck of gluten, while it may take another person a slice of bread to get the same amount of inflammation?
  8. I have been gluten free for about 6 weeks now. I never had typical symptoms prior to going gluten free - except for osteoporosis and weight loss ( about 10 pounds in the past year). I eat out about 2 -3 times a week - and have been careful to explain to the servers that I am on a gluten free diet. I have never felt sick after eating out ( but I didn't feel sick prior to being gluten free) What I am wondering is - are some people more prone to issues with cross contamination than others? I don't know if I am less sensitive to cross contamination or I just don't get that immediate reaction?
  9. I went to Gracies 5 in Redmond, WA last night. The entire menu was gluten free - and many items were dairy free as well, The food was delicious - for the two of us who are gluten free as well as for the two people in our group who are not gluten free. What a pleasure being able to order anything I wanted!
  10. We had a guest come to town - and wanted to take him to a classic Seattle restaurant. I'm newly diagnosed with celiac, so I explained to the server my dietary restrictions - and he came back with an already printed fairly extensive gluten free menu!
  11. I have had the same experience. What led me to being diagnosed was osteoporosis. I was shocked when I tested positive since I have never felt ill by eating gluten. It makes me a bit nervous - I feel that I am a very poor "barometer" - never knowing if I am accidentally eating gluten. I have just reached my 4 week mark. I am anxious to be tested again after 6 months to see if there has been any improvement. It's very difficult to know if I am truly gluten free.
  12. Doctors With Conflicting Advice

    Thank you - your response is very helpful. Although I am not happy with all the doctors' conflicting advice - it is somewhat nice to know that I am not alone.
  13. Thank you so much for such a helpful response. I - surprisingly - have no typical symptoms of celiac. I wound up getting diagnosed due to worsening osteoporosis. So, because I never felt ill from eating gluten - I feel that I am a very poor "barometer" in knowing when gluten may be in a product. I keep saying " the good news is that I never had symptoms, but the bad news is, I never had symptoms" I will never know when I may be accidentally ingesting gluten. So, thanks for the helpful guideline
  14. I'm big fan of Trader Joes. I'm very newly diagnosed - just 3 weeks. I nearly had a melt down during my first trip to Trader Joes, seeing many of my favorite products that I can no longer enjoy. However, I printed out their gluten free list and was surprised to see that some of the products that they list as gluten free - and have a "g" on the labeling, also have a disclaimer on the same label saying " made on the same machinery as...wheat..." I brought this to the manager's attention- he seemed surprised as well. Anyone else run into confusing labels? Which part do we believe?
  15. Here's my story: As a 56 year old I've been losing bone density over the last couple of years despite taking calcium, vitamin D, and Fosamax. I went to a bone specialist who ordered up some tests to see if anything else may be contributing to the osteoporosis. My levels for gluten antibodies came back very high. I had no symptoms besides the bone density issue except for some weight loss ( about 10 lbs) over the last year. Interestingly, over the course of the past 3 months, I've had three doctors giving me drastically different advice. The bone specialist suggested an endoscopy and biopsy, feeling that if it was celiac, he would know that there was a malabsorption issue going on, and if it wasn't celiac, he would still consider me to be gluten intolerant, but that it would not be a contributing factor to the osteoporosis. I went to my primary physician with this information, and she said that considering my blood test results I should go gluten free and not bother with a biopsy. She said that I would feel better - even though I told her that I didn't feel bad! She disagreed with the bone specialist, saying that gluten intolerance or even celiac had nothing to do with osteoporosis. By this time I had done enough reading/research to know that she was wrong! Then I had my gastroenterologist consult. I asked him what if the endoscopy comes back negative? His reply was that I should not bother going gluten free, that without symptoms it may have just been a false positive blood test. I did have the endoscopy, and the gastroenterologist was easily able to see and confirm celiac. Has anyone else had such confusion?