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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Leeloff

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    1. Leeloff added a post in a topic Is This Diagnosis Accurate   

      Thanks everyone. Based on the way I feel after being gluten-free, I will probably still maintain a gluten-free lifestyle even if I come back negative for celiac. I just don't think there is enough long term data out there to say that someone with gluten sensitivity/intolerence can eat gluten with no long term impact. I'd rather play it safe. And as much as I support medicine and doctors, the best proof is how my body feels. Being gluten-free has helped
      • 0
    2. Leeloff added a topic in Celiac Disease - Doctors   

      Is This Diagnosis Accurate
      I went to the celiac center at Jefferson in Philadelphia today and I have to question their analysis. I want to run it by the group here and get some opinions.

      I tested positive for a gluten sensitivity via a test from Cyrex labs. I've been eating gluten-free for 4 months now and feel slightly better. Less gassy, more energy. But nothing earth shattering. The reason I was tested and decided to go gluten-free was because of sleep issues I've had for 15 years. Nothing else has worked, so after the blood test showed I was sensitive, I went gluten-free. Despite felling better in general, being gluten-free has not improved my sleep issues at all.

      So, I went to the celiac center to show them my positive bloodwork showing I had a gluten allergy. I don't think I have celiac, but why not ask the experts. From my symptoms they didnt think I have celiac either, but want to test via endoscopy as well as do bloodwork for the genetic markers for celiac.

      The Dr. said that if the genetic markers come back negative, I will never get celiac. Fine, I'm not predisposed to it. Here's where I have qestions. She also said that if its negative, and I do have a gluten sensitivity/intolerance that eating gluten will do no long term damage. Those who are sensitive/intolerent have short term reactions (headaches, gas, bowel issues) but that there is no long term damage.

      That doesn't sound right to me. From what I've read there are few long term studies on gluten sensitivity and the long term health implications. How can seh definitively say there are no long term effects? Isnt is safer to not eat gluten and play it safe until we have further information from long term studies?

      Any thoughts?
      • 7 replies
    3. Leeloff added a post in a topic How Come Gluten Didnt Bother Me In Italy   

      Thanks for the replies. I'm newly diagnosed, just about 3 months ago. After years of sleep maintenance issues (I can fall asleep, but wake every 2-3 hours. I don't get much REM sleep, no dreaming, very restless) I decided to try accupuncture as sleep studies, melatonin, valarium, ambien and lifestyle changes have not worked. The accupuncturist gave me a cross sensativity test and I came back with gluten sensitivity.

      I've kept on a strict gluten free diet for 2.5 months after the diagnosis. I saw slight improvement in my energy levels, less digestion issues and gas, but no real impact on my sleep issues. I made the decision that while in Italy I'd eat whatever I wanted as I couldnt imagine the impact of 2 weeks of gluten (after eating it for the past 30 years) would really cause any long term impact.

      Now that I'm back in the US, I'm back to my gluten free diet. I accidentially had some cross contamination yesterday and had a horrible headache. With my experiences in Italy, eating everything and having no symptoms, I wondered if Italian products made of Italian wheat could be part of a gluten-free diet.

      Again, I'm 3 months in and despite the 50 hours of reading I've done on the topic, I still have a ton to learn.

      Again, thanks for the help.
      • 0
    4. Leeloff added a topic in Gluten-Free Ingredients & Food Labeling Issues   

      How Come Gluten Didnt Bother Me In Italy
      I recently traveled to Italy, and although I've read they have many many gluten free options, I decided that I was going to eat whatever I wanted, even if it had gluten. When I mentioned this to my doctor, he said it actually may not bother me since the wheat outside of the US is typically less genetically modified and more "natural".

      So after 2 weeks in Italy eating pasta daily, pizza, and all kinds of baked goods, I felt great. No headaches, upset stomach or any symptoms of gluten digestion.

      Has anyone else had a similar experience outside of the US? If thats the case, could I buy imported flours and pasta made in Italy that arent "gluten free" and be okay eating them at home?
      • 36 replies

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