This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I'm originally from The Woodlands, but I'm living in Austin right now. I might end up moving back in February when my current lease is up. I do go back on occasion to visit whenever I get a long weekend from work.
I'm glad to hear that you're feeling a lot better! I know it must be difficult at first, but it does get easier as time goes by. Since being diagnosed I've discovered that I don't react well to other foods like milk, soy, eggs, and yeast. So I try to avoid those as well.
Like Amybeth said, Outback has a gluten free menu in the restaraunt, you just have to ask for it. PF Changs also has a gluten free menu as well as Caraba's, Z Tejas, and Pei Wei. Amy's has started making a gluten free frozen pizza with a rice crust. I've had it a couple of times and it's actually quite good! It comes in plain cheese, but you could probably add your own extra toppings if you'd like. Kinnick kinnick also sells gluten free pizza crusts, as well as many other products, that are really good so you can make you're own pizza.
Stick with it. I know the diet is difficult to handle at first, but it's definately worth feeling better right?
It definately sounds like celiac. And like you said, your recent spike in symptoms can very easily be related to the beer, which has a lot of gluten in it. Luckily I was diagnosed when I was 18 and didn't drink in high school, so I never acquired the taste for beer. But I have tried the Ramapo gluten free beer and think it's pretty good. Before I was diagnosed I would sometimes share your experience of feeling very ill on the drive home, especially when we'd eat a Jason's Deli. It was the WORST. There is gluten all over that damn restaurant.
My advice to you would be to do a little basic research, try the diet for a few days to see if you feel better, and NOT see a doctor about it. When I initially went gluten free, my diahrea stopped completely within less than a week. Before the diet I would probably get diahrea once or twice a week. I say to do this for a few reasons. Doctor visits/bills are never fun. There is nothing the doctor can do to help you. All a doctor would do is diagnose you since no magical drugs are required, only a diet. My final point is that you mentioned you have no insurance. If you have a positive diagnosis of celiac in your medical file, getting health insurance will be much more difficult and/or expensive. My dad cancelled our health insurance to try to get a lower rate with another company (which was an idiotic thing to do) and they saw I had "Celiac Disease," got scared, and declined me. Even though studies have shown celiacs on the diet are healthier and live an average of 5 years longer than the normal population. Insurance companies don't know sh*t. But unfortunately thats the world we live in. To tell you the truth, I've been thinking about going back to the doctor, getting tested again (since I've been gluten free), and the test should come back negative. Then maybe the insurance companies will think I don't have it anymore and will accept me! Anyway, my point is that there is no benefit in getting a positive diagnosis, except piece of mind. But, if you're feeling a lot better that should be all the piece of mind you need. After I was diagnosed, my mom did some research and thought "wow, this sounds like something I might have too." So she started the diet and noticed she was feeling better. She had mild symptoms like irritability, occasional diahrea, tingling sensation in the legs, etc. So she is self diagnosed and has been gluten free ever since. And trust me, the diet is NOT hard. It just takes some getting used to. But it is definately worth it. Hope this helps.
My mom and I both have been diagnosed with celiac for three years. We did gluten free for little over a year and still were not feeling all that great. We heard about the SCD and tried it out. I'd say after being on it for a couple weeks we were both feeling really great. One morning I felt like a 10 out of 10 for the first time in a couple years. But then we started introducing the yogurt, nut flour and meals. My mom has fybromyalgia (sp?) so that wasnt working to well for her cuz of the nuts, and I react to casein and eggs, so the wasn't working too well for me. We ended up stopping the diet, but lately I've been thinking about starting it up again, but limiting it further. I know it's slightly more difficult than just being gluten free (which is ridiculously easy in my opinion), but if you can do it, I highly recomend trying it for a few months.
It's at this website in paragraph #16:
"The protein composition of cow and goat milk is fairly similar, although the typical major alpha-s-1 casein in cow milk is absent in goat milk and the formation of casein curd under rennin action is different."
This is actually a very interesting article that campares goat and cows milk. After reading, it kind of makes me think that everyone should be using goat instead of cow milk.
I've been gluten free for almost 3 years now but have still felt kinda crappy. I did the Enterolab test for yeast, milk(casein), and egg sensitivity a few months ago and the results showed that my antibody levels for all three were around 30 and normal is less than 10. So I'm immunologically sensitive to these foods. I was just wondering if anybody knows if there is any casein in goat's milk? I don't miss milk too terribly, but it would still be nice to have something to put in my cereal. Thanks a lot for any input.
I too have had this before. It actually started after I'd been gluten free for awhile, about a year or so. I would be half asleep/half awake and want to move or get out of bed, but can't. I've also had the feeling of something or someone being in the room. I was watching some show on Discovery about aliens abducting people while they sleep, and of course after seeing this show, it made my incidents of sleep paralysis even more terrifying.
I've also had dreams where I would be trying to walk or run, but have difficulty. It's sort of like when you run through water that's up to your waste. It's very slow and frustrating, but there would be no water or anything in the dream, I just wouldn't be able to go.
I've been eating healthier the last several months, more than just the gluten free diet, and also have been jogging on a regular basis. Both of these I think have helped me. I haven't had sleep paralysis in probably half a year or so and my dreams are getting better. I find it fascinating how your dreams can reflect or kind of show you how your overall well being is, and how what you eat effects your brain and subconcious so much.
You're going to A&M? That's cool, I live in the Woodlands, about 2 hours away from College Station. I'm actually going to a community college right now because of my disease so i can live at home and watch what I eat. I was diagnosed as a senior in high school, so going off to college in my condition would have been extremely difficult. I'm going to apply to UT and A&M for the spring of 2005 semester. Hopefully I'll get into one of them, I've got a lot of the basic classes out of the way. I want to major in Nutrition and be a dietician, for obvious reasons. How long have you been in College Station? and do you like it?
I'm 20 and was diagnosed when I was about your age. I started feeling a little better too, my diarhea stopped immediately and haven't had much trouble with since for that the past few years. But I still feel tired a lot. I keep a food diary like Yankee does and through trial and error found out that I react to soy. I cut it out of my diet literally about one week ago. Since then I've actually felt a little more alert and awake most of the time. My friend told me that I seem more energetic also. So maybe you're reacting to foods other than just gluten. I know that's not news you want to hear, gluten free is bad enough. But if you can figure it out and elliminate it, you'll feel 10x better. I'm starting to.
You should look in the Sleep section under a thread called "Can't Stay Awake." There are a couple pages where people have replied with our same problem and give many good suggestions. Might be something good for you to check out. I know it's hard and very frustrating, but keep with it. Eventually you'll figure it all out and feel better than you ever have. I'm not quite at that point yet after 2.5 years, but I've actually felt better this past week than I have in quite a long time.
I gained 12 lbs. in a little more than a year after going gluten free. Tiffany's right, if you're underweight you're probably gonna gain weight by goin gluten-free. This makes sense too cuz your intestine will start to heal and absorb more of the foods that you're eating then before. Besides, if you're worried about losing too much weight, just eat more gluten free food. It's not like one of those weight watching diets where you have to watch all the calories you intake.
Well my mom and I got to go see the doctor today because there was a cancelation. So we go and he fills out a subscription for provigil. Then when we get home my mom looks it up and finds out that it's not gluten free. Why in the hell do these drug companies put gluten in there products?? If they were smart they'd know that there is a large group of the population with symptoms that their pill claims to solve that can't ingest gluten. Oh well, their loss. Went all the way there for nothing... so now I guess we'll try adderall.
I haven't checked this site in awhile but i'm glad, in a way, to see that I'm not the only person suffering from fatigue and excessive sleepiness. I hope this thread is helping people as much as it has me. I PMed a few of you with extra questions concerning your replies. I ordered the Medipro powder that Emily suggested yesterday. Hopefully it'll get here soon so I can start using that to see if it helps. I also cut soy out of my diet, mainly chocolate and vegetable oil, about 4 days ago and have actually noticed a little difference, I'm 90% sure I react to soy. My friend even told me yesterday that I've seemed more awake the past couple of days than usual. It always promising when someone else notices your improvement.
I'm going to be seeing my doctor within the next week and talk to him about trying adderal or provigil. Has anyone here used either of these and if so has it helped? I know adderal has worked for a few people but no one has mentioned provigil. Supposedly it helps with excessive sleepiness quite a bit. Thanks everyone for replying with suggestions and encouragment. I know it's helped me and others a whole lot.
Been reading a lot about chicken. The added broth is suspect and now I'm told that the "minimally processed" might be soaked in a soltuion to make it moist that is not gluten-free. This is getting so frustrating! Any suggestions or comments-Thanks!!
I went to DisneyWorld with my family last year. We went to Magic Kingdom and MGM, they were a lot of fun. My mom and I both have celiac and found a cart at both parks that sell nothing but McDonalds french fries, which are supposed to be gluten free. They were very good. There are also various karts and stands there that sell sliced fruit in small plastic containers. So if you look, there are things in the actual parks that you can find to eat. I would probably avoid any of the fast food burger/pizza joint type places inside the park however because they probably wont be as accomadating and I would think cross contamination would be a big problem. Hope this helps.
Aimee - What restaurants there do you remember having gluten free rolls in? Are you talking about restaurants inside the actual parks? or just different restaurants around Orlando. We might be going again in late march or april and being able to eat rolls at a restaurant would be nice to experience again.