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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Panda123

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    1. Panda123 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      8 Months In And No Improvements
      Hey all, I was diagnosed in early August 2012 and went gluten-free immediatly after. I had Iron deficiency anaemia that won't go away which led to an endoscopy (that proved Celiac). Since then, I got an iron infusion in December (which did nothing at all, other then bumping my Iron levels back to normal). I still have anaemia symptoms and overall i'm standing exactly where i was 8 months ago as far as symptoms go.
      I have an appointment with my Doctor next week and will see what he has to say about this. I am careful with my gluten-free diet. I'm 18 years old so I was looking for a quicker recovery then most but have been very disappointed so far. Would love to get some of your oponions on this. Thanks guys!
      • 7 replies
    2. Panda123 added a post in a topic How Long To Feel Better After Iron Vi Infusion?   

      Thanks for your reply. My B12 levels are in the normal range so thankfully, nothing to worry about it there.

      Two days in now and woke up today feeling absoluetly exhausted. I'm pretty sure it wasn't the drugs that they give me prior to the infusion because I was totally fine the last two days. It's almost as if I have a flu / fever. Anyone else experience this?
      • 0
    3. Panda123 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      How Long To Feel Better After Iron Vi Infusion?
      I had one today about 8 hours ago and thankfully no bad reactions to it. It went smoothly. However, the only symptom i have of celiac disease (and that led to my diagnosis) was anemia / low iron. I was really hoping for some improvements after my infusion. Some of the symptoms i have are slight yellowing of the whites of eyes (no yellow skin), cold hands / feet, light headedness, pale skin.

      I know it sounds a bit impatient of me but i've lived with these symptoms for over six years and was thinking of the infusion as an overnight solution but so far I don't feel one bit different. So my question is how long woudl it take for those symptoms to go away?

      Thanks for reading!

      EDIT: I meant to type IV in the title, not Vi
      • 2 replies
    4. Panda123 added a post in a topic Possible Celiac Disease Drug Treatment ALV003 Fast Tracked by FDA -   

      Wow that's very interesting. Wouldn't celiacs have to consume that on regular basis if they are eating gluten. Regardless, I really do hope that this works. Thanks for the share.
      • 0
    5. Panda123 added a post in a topic Recently Diagnosed But No Reaction To Eating Gluten   

      Wow that's a really good answer. Just what i was looking for! So I'll get my mum to get a new pan and cutting board for gluten free cooking. My parents are adamant that contamination of small particles of gluten won't do any harm (then again, they were adamant to not get a endoscopy too, and thought i was just fine). I have skimmed the 101 topic, sounds like a great read. Will read it thoroughly later today. But again, thanks a lot for that answer, really cleared up a lot of my doubts.

      Thanks for the answer. Yeah I strictly make sure everything i eat is gluten free.

      On more question: As stated before, my iron and B12 levels are pretty darn low (cant remember the numbers right now). It's really bugging me because iron supplements cant help (as my intestines cant absorb any iron). Any rough estimate on how long would it be before i start to absorb iron properly?
      • 0
    6. Panda123 added a topic in Celiac Disease - Coping With   

      Recently Diagnosed But No Reaction To Eating Gluten
      Hey everyone,

      I'm an 18 year old male that was diagnosed with celiac disease two weeks ago. I'm a pretty active and outgoing person and I have no symptoms of celiac disease whatsoever. Except, I have been iron deficient for the last few years which led to an endoscopy (my diet is pretty healthy and balanced) and thus i was diagnosed with celiac disease.

      Now, I've been eating gluten free for about 2 weeks now and i don't feel one bit different. My question is, how do i know if I'm doing this right? I've cut out all the gluten free foods but please note i still use the same utensils as my family (none of them eat gluten free). I just rinse them with hand prior to using even they have been already washed. Is this good enough to heal my intestines?

      Again, I dont react at all to gluten but intestines's lining is flattened so I obviously have celiac disease.
      • 10 replies

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