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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About surviormom

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    1. surviormom added a post in a topic I Think We Have A Flare Up (Pics)   

      I am putting this in as a reference if anyone has DH questions.  I finished my gluten challenge 13 days ago, and the spots started during the challenge, but I did not explode with them until last night.  Today I am covered.  So, 2 weeks later, it is still in my system and I am in a full attack and polka dotted.  
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    2. surviormom added a post in a topic It Was Supposed To Be Over At Gluten Free! Help :(   

      And if it helps at all, I have found that one slip up going out to dinner and I am doomed for a month. 
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    3. surviormom added a post in a topic It Was Supposed To Be Over At Gluten Free! Help :(   

      That is a good one for me to remember.    I always want immediate results and that just does not happen.
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    4. surviormom added a post in a topic A Few Unrelated Questions About celiac disease/ncgs   

      I walked into a Panera Bread after being Gluten Free for about 6 months, I was only planning to have a coke and meet a friend there, I had to leave and we had to make a quick change in plans.  We ended up at a PI Wi near by.  My eyes watered, I felt almost like I could not breath.  It was awful.  I could not understand feeling that way just breathing it, but I did.  I got out of there fast.  I have not gone back since.  I have been in other restaurants where I know they are baking, but not a bakery.  Do not like the bakery in a grocery either, I avoid it.  I did not realise a problem before going gluten free.  Only that my eyes watered a lot and I had terrible allergies.  Well, I do not have terrible allergies anymore and my eyes do not water a lot.  There has to be some connection. 
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    5. surviormom added a post in a topic It Was Supposed To Be Over At Gluten Free! Help :(   

      You can have your vitamin levels checked.
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    6. surviormom added a post in a topic So Frustrated Not Better Yet   

      A lot of things that are happening to me boil down to inflammation, after you get past the damage gluten did, that is where my sugar bashing came from, my husband, wants me low fodmap, but I think it is sugar, and yes, I am addicted, sugar and chocolate.
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    7. surviormom added a post in a topic So Frustrated Not Better Yet   

      I am trying to drop sugar.  All fructose, adding low Fodmaps, but I think the real culprit to my not getting better is sugar.  Food testing has onions and garlic as safe, but sugars off the chart.  Good luck, I feel your pain, I have been going through it too.  Did everything right, yet still not better, and in some cases worse (my esophagus).  We will figure it out.  I am not giving up.   
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    8. surviormom added a post in a topic It Was Supposed To Be Over At Gluten Free! Help :(   

      You are not alone.  You can PM me anytime as well.  It is exhausting and you want to scream, cry, give up, after talking to a GI you can even think am I nuts?  But, no, you know your body, and the test proves the food issues even if the GI tests are not showing all of them.  Being able to wear something one day and then not the next just because you ate something wrong.  Only someone that goes through it can understand it.  The C my hubby and I joked about it for years, until we realized how serious it was.  Last time in they weighed me, and I said really I gained 7 pounds in a week?  They will not do a colonoscopy, as I am not 50 yet??  Mostly what I eat these days are protein shakes and veggie juices.  I have a list of reflux friendly foods, low fodmap foods, of course gluten-free, and my food testing list, I match them up and see what I can have, and go from there.  I do not even like to go out anymore and I used to love to go out to dinner, we live around awesome restaurants.  Anyway, I get it.  You are not alone.... 
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    9. surviormom added a post in a topic Barrett's   

      Just want the Barrett gone.
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    10. surviormom added a post in a topic Barrett's   

      So she is right I can get this done sooner rather than later. Thank you very much.
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    11. surviormom added a post in a topic Barrett's   

      Sorry for the snappy note. Thank you. I agree with him on this I just really hate the ppi and some of his other ideas. My throat was sore for 5 days and I still feel not normal.
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    12. surviormom added a topic in Celiac Disease - Related Disorders & Research   

      This looks like a good place for this.    Lots of Endoscopies.  Who knows the answer to this.  Me and a friend are debating whether my quake, um dr. is right.  He just diagnosed me with Barretts and wants to burn it out in 6 months to a year, depending on the FISH results that are not back yet.  She thinks he is wrong to wait that long, he is telling me I have to heal from this procedure at least 6 months.  I know I hurt inside, so I know I need to heal, therefore, on this I actually believe the quake, um dr.  So, does anyone know the answer?  How long does it take to heal.  Erosive Esophagitis, Barretts, a dilation, and lots of Biopsies.
      I have to wait regardless or swap doctors, was planning to swap doctors, but the one I am going to is actually an expert in Barretts.  I would be fool to change now, I think, whether I agree with him on all matters or not.
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    13. surviormom added a post in a topic Acid Reflux And Ppi's   

      I know what I need to do, but why do the doctors want to shove the PPIs down our throats.  A little humor there.  Does anyone know?  If they are not good for us, and there is a better way, why? 
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    14. surviormom added a post in a topic Acid Reflux And Ppi's   

      Stupid question here, but why does my GI keep trying to force the PPI on me?  My husband is doing it now too.  The GI has convinced him it is the only way to help my Esophagus.  If there is a better way, shouldn't a doctor be on board?  This man claims to be an expert in Barretts, I think he is just an expert in collecting $$$.  Yes, I am looking for another doctor, but in the mean time, my husband is now believing him, and he wants me on 40 twice a day.  Does anyone know why the doctors that we are paying are not doing what is in our best interest?  I was doing fine when I was adding Betaine HCL, my husband had me go back to the PPI and boom, I am worse, go to the doctor, I am worse, oh I need more PPI.  Really!!!
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    15. surviormom added a post in a topic It Hit Me Last Night   

      Its the doctors that frustrate me now, not the food.  I love real food.  So do my kids and husband.  Shop the perimeter and cook real food.  It is delicious.  i still have my pains, now and then, so I still have a problem and the doctors frustrate me, that will not go away soon unless you have a great doctor.  But the food we can fix that.
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