This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Dec 26 ate at o'Charleys (gluten free menu), started with normal uh oh I had gluten response that progressed to anaphylactic shock and ER visit
Jan 11 food allergy testing. Not allergic to anything, but doctor is worried about Mast Cell disorder with wheat and/or gluten as the trigger (this disorder causes allergic reactions to triggers without having a true allergy) started on Zantac 300mg and Allegra 360mg a day. Dr feels I am safe to eat whatever.
Yesterday we ate out (cheeseburger with chili, no bun, FF). I felt a little of my gluten response. I mean just a little (could be the Zantac helping-even though its a tummy med, Techanically it's an antihistamine). About an hour later I started itching ALL over, came home and took the Allegra and within 30 minutes I was fine.
Today, I just took both meds in AM so that it is more in system during day. Wednesday I will start the 24hr urine test and drop it off Thursday am and have blood work done at that time. So my journey continues, but I'm still avoiding gluten/wheat since it is a trigger for something in my body.
I really want to say, lol just to keep from crying. Celiac was ruled out for me also, stayed gluten free anyway because I felt better. Accidentally had some and ended up in ER from anaphylactic shock. So I headed the allergy direction to. On a positive note, you can avoid the the things that bother you and still have accurate skin allergy tests (it's really not as bad you will think). Now I'm at testing for a mast cell disorder (it's means you have allergic reaction to triggers, but are not allergic in the sense that allergy shots help) and have been placed on Zantac 300mg and Allegra 360mg a day. Hang in there, the answer is out there.
Mmmmm sounds good. Found a recipe for sausage pancake bites that I'm going to try this weekend. It would be awesome to have a gallon bag of those frozen (yep started looking for recipe after seeing dunkin doughnut commerical).
I broke down and had a pity party today. I'm sick with a cold thanks to body unable to fight it off due to the 60mg/day prednisone due to allergic reaction (poss. Wheat). On the way home from work, I just felt Soooo bad and wanted comfort food (I.e. kids cheeseburger meal-fast food). I cried, but didn't stop, came home and took a nap. Today was just so hard, then DH is nice enough to tell me he got him something from there. Uggh men!
It is an adjustment...for me it was easy to say no (stomach virus sick within an hour, most recent episode ended with ER trip for anaphylactic shock--testing Jan 11 for wheat allergy vs gluten intolerance with secondary allergy). As to what to eat, I prefer the combination flour pasta (corn, quinoa), even DH said it was good. We do cook both, separate strainers. It is just to expensive to feed 10 people gluten free pasta when I'm the only one with issues-just Sunday dinner, don't feed that many daily
Breakfast is usually egg substitute omlets or chex cereal. Lunch is either left overs or turkey/cheese roll-ups and chips. Make sure to read the labels, some lunch meat has gluten. Chips do also such as Pringles (which happens to be my favorite).