This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I’m a 19 year old girl, and I worry about this a lot too. I’m nervous about going out with friends for day trips and things, because I don’t know where is safe to eat. I’m studying abroad next year and I’m really concerned about that too.
As far as the girl goes, not being able to eat at cool restaurants is probably not going to be a deal breaker. If she likes you, she likes you, celiac and all. Maybe you guys can have dinner in, and then go out, or bring a protein bar with you if you’re going to be gone for a while. Most of the guys I’ve been out with since being diagnosed have all been really understanding.
I’ve been gluten free for 4 months now( soy and dairy free for 2.5 months), and though I struggled a lot at first, things finally seem to be settling down. I do have a quick question for everyone: now that I have been gluten free for 4 months, I am hungry all of the time! I never used to eat much before going gluten free, and even for the first few months gluten free I didn’t have much of an appetite. I lost about 10 pounds. Now, if I don’t eat a lot of calories and a lot of carbs, I get dizzy, irritable, weak, and exhausted. My legs also cramp up, which is weird. It tends to get worse if I consistently eat fewer than 2500 calories per day; if that happens I get really sick and have to spend the whole day eating to correct it.
I have a doctor’s appointment in a few weeks, but if this has happened to any other celiacs, I would love to know.
Has anyone else experienced problems with Archer Farms (Target brand) corn chips? I picked up some white corn chips by them from Target a few weeks ago. The first time I ate them, I felt sick to my stomach for a few days but didn’t make the conection. When I ate them again a few days ago, I got sick again, and am still feeling “off". Since I’m pretty new to this, I was wondering if this is a gluten reaction? Has anyone else had issues with this brand? The packaging does not list any gluten ingredients, but it doesn’t say Gluten Free either.
My vitamins all came back very good. My ferritin was a 38 (up from 22 in August), my B12 was actually higher than the normal range, and my folate was good too. They’re testing for Vitamin D now, which I have a hunch is low.
I just got some of my blood results back, and my ferritin has finally gone up for the first time in over a year! I’m so excited! 3 months gluten and free and it has gone up 16 points. Still waiting on the vitamin D results, but I started taking 5000 IU a day last Friday and I have been feeling a little better since Monday, so I’m hoping it is connected. I’ll post back when I find out if I am deficient. My school is putting me in touch with a nutritionist to address the weight loss concerns.
Thank you everyone for your input and encouragement. One of my close friends was just diagnosed with Crohn’s, I feel lucky to have a disease that can be largely controlled through diet. Best wishes to you all and your health!
Thanks Mushroom. I was vitamin D deficient last year, so I may just pick up a supplement at Walgreens or something. My levels were never checked to see if they got back to normal and I stopped supplementing last spring. I realize it is not a great idea to supplement blindly, but adding an extra 1000 IU a day until I can get home to see my regular doctor probably can’t hurt.
Thanks everyone! I had some blood drawn at student health today, they are checking my iron, B12, and folate levels. They didn’t check my thyroid because it was fine back in August, but if the labs are normal than I may ask them to. The doctor feels pretty confident that it is low iron, since I have been anemic for the last year, but I guess we will see. I’m hoping it is a vitamin problem, since that is relatively easy to fix!
Ravenwooglass, I do cook all of my meals for myself and I am very careful, so I don’t think it is a CC issue. I am looking to switch doctors soon so I will definitely consider getting a doctor closer to school!
Thanks everyone, I agree with you all on the vitamin aspect. I am going to see if student health can run a vitamin panel, otherwise I will have to wait until Thanksgiving. My parents keep telling me its normal to be tired because I am so involved with school, but it is a very peculiar kind of fatigue-- almost like my arms and legs weigh a thousand pounds and I have to drag my body everywhere. Is that what vitamin deficiency fatigue feels like?
Cavernio, I agree with you there. I had the blood test, and the result was negative--however my total Iga was really low. My naturopathic doctor called a celiac specialist and he said that it sounded like a false negative. By the time I got the results though, I was a week into my first semester of college and would have to wait 3 months to get the biopsy, so I just decided to go gluten free. However, my pediatrician is convinced that I do not have Celiac because I did not have weight loss before starting the diet. It is a very complicated situation.
I’ve been gluten free for almost 12 weeks now and I’ve been on a rollercoaster for every single one of them! First it was the stomach problems, then it was the weird shaking episodes, then it was the weight loss. Now it is the exhaustion.
I feel like I’ve got a pretty good handle on what I can and cannot eat, but I’m so frustrated that I’m still having problems! I thought that when I went gluten free I would maybe feel crappy for a few days and then I’d be a brand new, healthier me. I didn’t anticipate 3 months of struggling to figure out what is wrong, with each week bringing new symptoms! I’m on all types of supplements and a whole foods diet-- I’m taking probiotics, digestive enzymes, and a multivitamin.
Right now I am having problems with weight loss, as my nutritionist has me on a high protein diet. My BMI is in the underweight range. New this week as well is extreme fatigue. I’m a student, so I am constantly running around and fulfilling commitments, and I really do not have time to be sick. I don’t know what is causing the fatigue-- I was just home for the weekend and even though I slept a ton I am still tired. I definitely do not have mono. I want to go to the doctor, but I’m not going to be able to until Christmas break! Even if I do go, he does not think I have Celiac since my blood test was inconclusive, and he does not believe in gluten intolerance. I really don’t know what to do.
I’m really scared that something is wrong and I’m tired of feeling sick. Does anyone have any ideas or reassurance?