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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Perspective

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    1. Perspective added a post in a topic Could It Be Celiac?   

      Hi honey, I'm new here too, but also new to the celiac world. It's funny that you mention this problem you're having because I just watched a video today that seems to correlate with your problem. I'll post it here, and just hang in there. She's very articulate and describes what was happening to her really well. Here it is:

      I have always had hypoglycemia, (low blood sugar). They tested me a loooong time ago and I almost passed out during testing. As I have recently discovered I have a problem with gluten I noticed certain things changing when I removed the gluten. One thing was that I no longer had the huge hunger cravings accompanied by the hypoglycemia episodes I would have. In fact, I had no shakes, no mood swings, no nothing. My conclusion: my blood sugar stablized.

      Well, this girl talks about reactive hypoglycemia, which is where she would feel awful AFTER eating, especially after eating gluten.

      Anyway, I see nothing wrong with cutting out gluten for 30 days to see how you feel, and the re-introduce it to see how you feel after. You will learn a lot. This is how I discovered I have a problem with it. However, you might want to get your blood sugar checked before hand, and obviously just discuss all this with your doctor to see if anything else is going on.

      (I see you've had the blood sugar fasting... sorry about that... still makes me wonder!) Would still think about what this girl has to say and try a gluten-free challenge.
      Good luck to you! :-)
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    2. Perspective added a post in a topic "it's All In Your Head!"   

      It took 7 years before I was diagnosed with Endometriosis. I even had an Indian doctor, who was filling in at the time, tell me that the pain I had was because I had experienced pre-marital sex. I should go to Jesus for forgiveness and I would be healed. This was a leading clinic in Atlanta, Georgia! I was raised in the church. No amount of prayer stopped the progression of pain I have experienced through the years.

      I went to Dr's for years until finally my family Dr. told my OBGYN to schedule an exploritory surgery, or HE would. I was in the next Monday. They found the problem.

      After 5 years of being married and complaining about such terrible pain during menstruation and other problems, my husband never believed me really. In a panic and in more pain than I could stand anymore, I drove myself to the emergency room, crunched over the wheel the whole way. They sent me home with a valium. Finally, several months later an OBGYN did a surgery. He discovered that my bladder, colon, right ovary, stomach, uterus, and gall bladder were all bound together by adhesions (thick scar tissue)and my colon was almost completey constricted. Every time I had my menstrual cycle EVERYTHING burned and pulled because of this. Only then was my husband a bit understanding when he found out what was really going on. On top of this, Endometriosis.

      I am just discovering the links to gluten. I have discovered how good I can feel without gluten and they are testing me for this. Along with pains of all kinds in my body, arthritis pain, extreme exhaustion, swelling, constant bowel problems, infertility, and a lot of endo pains, what amazes me most of all; I still go to work every single day and work my butt off. It sucks, but I do it. What sucks even more is the silent suffer. No one even really knows or can even comprehend how much pain you actually have to put up with, how much you really have to do in order to function. But you do it. You just do.
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    3. Perspective added a post in a topic After Years Of Infertility And Pain   

      YOU must be one amazing woman! It breaks my heart that people don't speak more freely about infertility. Women need to hear and know they are not alone. I have never had a child, but know that just because you have had one, or even five, it doesn't stop the sting of infertility any less. And just because you have had five and adopted two, the one that didn't make it is just as close to your heart as the others in one way or another. We looked into adoption and went through classes as well. I learned a lot listening to the voices of adoptees. For a lot of reasons, adoption was not the right path for us at that time. We have gone through a foster care program here in the Netherlands. It is wonderful to have been accepted and one day have the privilege to help a child and a family in need. I know that I first need to close this door though. We are hoping that through Egg Donation we will have two embryos to replace and have a successful pregnancy. Any embryos that are left over/ frozen, we want to donate to another couple. This is our hope. When we are ready, we would love to foster a child.

      A benefit of having all of these "problems", searching and research, infertility etc... it sure helps you become aware of the world. It makes you more compassionate, understanding, and empathetic to everyone. That's the positive side of things.
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    4. Perspective added a post in a topic After Years Of Infertility And Pain   

      Thank you ravenwg for sharing your experience with infertility/fertility and celiac. It is comforting for me to say the least. I will definitely have the immunologist check everything, as we are on the top of a list for an egg donor.

      For information on birth defects relating to Celiac Mothers, I would say it is inconclusive, though something to ponder. Here are the a couple of sites I have found:

      Just the beginning. :-)
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    5. Perspective added a post in a topic After Years Of Infertility And Pain   

      I'm so sorry you had to suffer so many miscarriages. People don't really realize how much suffering there really is to it, do they? You never forget. Never. I was just telling my husband tonight that maybe it is a blessing that we never carried full term, or even further than the 4 1/2 weeks, if I have an undiagnosed case of Celiac. I have read that pregnancy in undiagnosed Celiacs is a cause of all kinds of birth defects. Not that I wouldn't love any child God blessed me with, but maybe suffering all these years from infertility have spared the heartache of a the challenges that may come with possible complications for a child. At least now we can make sure I am healthy and a baby will be given the best possible chances.

      I don't do too many gluten-free products. Only 3 simple ones I can think of. For the rest, it's veggies, fruit, and bio-meat. Healthy.

      Thank you for your warm wishes and kind thoughts!
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    6. Perspective added a post in a topic After Years Of Infertility And Pain   

      Thank you so much Mushroom for your reply! It's just nice to hear that others don't think I'm nuts. The allergies did go away. I had full blown allergies when I removed the gluten, and then the allergies returned when I added it back in. They actually returned in a full-blown attack for two days while I was testing gluten re-introduction, and then stopped just as soon as I removed the gluten again. To be fair, "maybe" there was something coincidentally in bloom for those two days that I reintroduced the gluten??? I'll have to test this out during a full blown allergy season in the spring. :-) And yes, it's AWESOME to feel normal again! To FINALLY have an answer. I'm so thankful for people who speak up and for studies that have been done so that I could google certain things to find this link.
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    7. Perspective added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      After Years Of Infertility And Pain
      Hi everyone, I'm new here and undiagnosed. Gee, where do I start? I will try to summarize where I can to make for less reading.

      I have been married for 10 years, 36 years old. I was engaged at 19 to someone else for two years and never used birth control, never pregnant. I have never used any birth control and have never been pregnant (past four weeks), but have had three chemical pregnancies with my husband.

      At the age of 21 I was diagnosed with a minimal case of Endometriosis. No blockages, everything normal, but a very minimal case. Three years ago I had another surgery confirming again the presence of minimal Endometriosis. I have had 3 failed IVF cycles, in two cycles many eggs but only one embryo to replace, growth was arrested. Last cycle at 33 years old, no mature eggs, cycle canceled. Advised to use Donor Eggs.

      From the age of 16 I developed allergies along with painful menstrual cycles. At the age of 19 I remember going to the Dr. complaining about pain in my knees as I walked up or down stairs. From the age of 21 I would sit behind my desk at work counting the minutes to go home to be able to release the built up gas in my belly, day after day, not knowing where this was coming from. Eventually I accepted that this was just a part of aging. I accepted IBS, or "need to strengthen my muscles around my joints". But as I continued to age and pile on the complaints, watching them dismissed one by one by doctors, I started to think I had an autoimmune problem and that all of these things happening to me were not just coincidence, aging, or normal aches and pains, but that they are all connected and related to a single autoimmune problem.

      My complaints got much worse throughout the years and are as follows:
      Allergies (cat, grass, trees, dust, idk... air
      Unexplained Infertility (even with Endo diagnosis, I stumped doctors because I had such a minimal case)
      Joint pain & swelling
      Extreme water retention (didn't matter how much water I drank or reduced salt, I swelled. Fingers and ankles as if I was 9 months preg or kidney failure)
      Every day would be a surprise what kind of BM I would have. Runny: Check. Stopped up: Check. Normal: NEVER
      Constant gas pains
      Depression. This is situational as well, but I will explain later...
      Sensitive pressure points: I thought myself that it was strange that it would hurt when my husband would jokingly poke me and I would bruise. This is strange. Certain points with the smallest bit of pressure were very painful.
      Tingling in my fingers (especially when waking up after sleeping) and feet. Very strange tingling/ burning/ pins and needles. Very disturbing.
      Wow, I could go on with this list as there is a lot more, but I won't. I've made my point.

      Finally, after having enough and the Dr.'s not doing anything, I went on an angry hunt on the internet. I found one culprit for many of my complaints. A common factor: GLUTEN. So I removed it. I tried a 30 day gluten-free diet. WOW! EVERYTHING, and I mean EVERYTHING went away!!! Within 3 days the tingling stopped and I started having normal BM's. My energy came back (FINALLY!) Within a week, I had no aches or pains in my joints! I really couldn't believe the difference! I noticed so many changes I was convinced. My mood was normal again, no extra sleeping (DEPRESSION LIFTED!) Yes, I have had to deal with a lot of crap that would justify depression, okay, but the big heavy cloud was just gone. GONE. And my energy, normal ME was back!

      After 30 days gluten-free, I played around with gluten to see what would happen. Lo and behold, I got joint pains and allergies back right away. Tingling came back, and actually all symptoms came back the more gluten I introduced. I also had symptoms leave the weeks or days I left gluten out. All in all, this experiment lasted three months. The most amazing thing I accomplished in the last month: Pregnancy. I miscarried at 4 1/2 weeks. Many women would say that was nothing. For me, a positive pregnancy test was everything. I also have a very non-bloody picture of "something" the size of a pomegranate seed, raw chicken/ flesh like, little tiny veins and a confirmation from a doctor that it indeed was an early miscarriage. Strange though that it seemed bigger than it should have at 4 1/2 weeks. So who knows how far along I really was.

      I have had the Celiac blood screening test and it was negative. (not a shock as most gluten was already removed) I have an appointment for an immunologist to do further testing.

      I am convinced, not that I am a Celiac, but that I do have a significant gluten sensitivity. I would like to know if after reading what I have provided if others might agree. My body says yes, but even my husband thinks it could be a placebo effect. Funny, that's what a lot of Doctors told me for years before they found the Endometriosis. (It's all in my head). HA!

      Thanks for any comments. I only hope that "SOMEONE" out there may Google something and find this post and recognize something in it so that they can be saved years of wondering and maybe come closer to an answer for their problems.
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