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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About RyanIN

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    1. RyanIN added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Question About Iga Deficiency... Can I Still Assume I'm Not Celiac Based On Iga Tests?
      I just got back my test results and this is what they said:
      Gliadin AB, Iga (GLIAD IGA)      - 1 units   (0-19 being negative)
      TISS TRANSGL IGA (TTG IGA) - 1 Units (0-19 being negative)
      IMMUNOGLOBULIN A                - 19 mg/dl   (68-378 being normal)
      So, while my immunoglobulin level is really low/deficient, are my other test levels low enough to assume that I'm still negative or does having 19 mg/dl of IgA mean that those two other tests are basically useless?  I guess the logical part of my brain says that even with a low IgA level my scores would have been higher than 1 units.  I'd greatly appreciate any input has regarding this.  My GI doctor is very helpful and seems very current in his knowledge of Celiac testing, but I won't see him for a couple weeks and am slightly mentally tortured wondering if I can read anymore into this testing.  I know that he wants me to get the IgG testing (I think that was what he called it).  But I'm wondering if that is just a precaution or if these tests are invalid because of my being IgA deficient. 
      Thanks in advance for any information you can share!
      • 2 replies
    2. RyanIN added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      How Long Before Oily Stools Go Away?
      How long after going gluten free does steatorrhea or oily stools start to go away?  This is probably my least favorite symptom.  Does this take longer since it requires the intenstines to start healing?
      • 2 replies
    3. RyanIN added a post in a topic Any Favorite Gluten-Free Vegan Cookbooks?   

      I'll have to check this book out.
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    4. RyanIN added a post in a topic Instant Behavior Change In Son After Going Gluten Free.   

      I wish there was more research out there on this topic.  It just seems too unlikely that these changes in his behavior could just have happened at the exact moment we made this change.
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    5. RyanIN added a post in a topic Any Favorite Gluten-Free Vegan Cookbooks?   

      I just ordered some Almond Flour so that I can try making that pizza dough!  Looks awesome in the picture!  I just wish almond flour was a little cheaper.
      Thanks for the recommendation!
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    6. RyanIN added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Any Favorite Gluten-Free Vegan Cookbooks?
      Does anyone have a favorite gluten-free vegan cookbook? I have the Gluten-Free Vegan and Gluten-Free Vegan Comfort Foods cookbook. But, I'm hoping to find some more cookbooks worth having and possibly a baking cookbook with good bread recipes that gluten-free and vegan! Any suggestions?
      • 9 replies
    7. RyanIN added a post in a topic Do gluten-free Flours Really Need To Be Refrigerated?   

      I've never put any of my flours in the fridge, but then again I've always ignored that my peanut butter jar says to put it in the fridge too. Though, I agree that soy flour is just not worth having since it does seem to go rancid quickly (and then subsequently ruins what ever you accidentally put it in). But, unless you are planning to take several months to use a certain flour, I wouldn't worry to much. But since most gluten-free flours comes in such small quanities, it usually isn't a problem. That was one of the hardest things to adjust to about going gluten free. I was used to paying $15 for a 50 pound bag of whole wheat flour. And now it cost $10 for a less than 2 pound bag of Quinoa flour.
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    8. RyanIN added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Instant Behavior Change In Son After Going Gluten Free.
      My wife and I recently decided to have our whole family go gluten free. I'd been gluten free for quite some time now, but we'd wondered if doing this for our son might help with some of his behaviors. He is not diagnosed with any autism spectrum disorder. He is profoundly gifted (he took a community college math course at age 7) and so we are never sure what part of his behaviors are from being so extremely gifted and what might be some form of aspergers. Nevertheless, we thought we would try the gluten free diet (as we are already vegan - so we'd long since given up dairy). Within 24 hours, we already noticed major changes. And this was a kid who would have mega-meltdowns on a daily basis. He would be so easily set off into an explosion of anger and frustration and was unable to be calmed. It was truly a stressful nightmare at times. Yet, 2 weeks into our gluten free trial and he has yet to have a single explosion. A few times we saw what used to be the signs that an explosion was coming and then he'd calm down and be fine. My wife and I are nearly in shock. So, we are wondering if anyone else has had this experience with giving up gluten for a child? Can it really work so quickly and powerfully? And if so, does anyone know why? I know it has helped my interms of my gastrointestinal issues and allergies, but this just seems even more miraculous (especially considering how quickly it happened). I'd love to hear about other people's experiences related to behavior changes from giving up gluten.
      • 11 replies
    9. RyanIN added a post in a topic Anyone Else Have Allergies To Cat And Dust Disappear After Giving Up Gluten?   

      I was actually skin prick tested for my allergies about a week before I went gluten free completely. So, it seems a bit too coincidental to think that the allergies happened to disappear right after being tested and at the same time I gave up gluten. Also, the few times I've done 'gluten tests' (aka torture myself to see if gluten really does affect me negatively by eating some - never much fun) my allergies come back (in addition to that darn basketball that grows in my stomach everytime I eat gluten). So, I'm glad to hear at least one other person had this experience!

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    10. RyanIN added a topic in Celiac Disease - Related Disorders & Research   

      Anyone Else Have Allergies To Cat And Dust Disappear After Giving Up Gluten?
      Has anyone else found that allergies to cats, dust mites, and ragweed have disappeared after giving up gluten? Is that even logical that they could be connected?
      • 10 replies
    11. RyanIN added a post in a topic Gluten Intolerance Or Just Really Bad Timing/luck   

      I really appreciate all the responses. I'm working through my second trial period of going gluten-free before I test my reaction to putting some gluten back in my system. I think one more round with similar results will be all the proof I need that my body is not fond of gluten. Hopefully it won't be as terrible as last time. But, I'll be glad to at least not be left wondering was it just a fluke.
      • 0
    12. RyanIN added a post in a topic Gluten Intolerance Or Just Really Bad Timing/luck   

      Thank you for the response! I do wonder if I should go ahead and be tested for celiacs. Is the treatment any different or is the only real treatment giving up gluten? Because, I figure if gluten is causing my latest symptoms, then I'm probably better off just accepting my body does not like the stuff much.

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    13. RyanIN added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Gluten Intolerance Or Just Really Bad Timing/luck
      I recently tried going 2 weeks without gluten because I was tired of always being bloated and having stomach aches (and other assorted stomach related symptoms-aka less than perfect stools). After 2 weeks of making sure nothing I ate had any gluten in it, I had a large piece of fully gluten-ed bread (I know because I baked it). About an hour later, I vomited a little. But, my immediate reaction was disbelieve (and apparently to boldly wave my fist at the symptom). So, needless to say, for dinner I had two more pieces of bread and a muffin (though in total less calories than I normally consume). By that night my stomach was bloated to the point it looked like I could have been several months pregnant. I thought that was where it would end. But by midday the next day, I was vomiting a little bit here and there. And by that night, I had emptied my entire stomach with a few extra empty efforts by my stomach just to make sure. And I felt so terrible afterwards that I think I had a food aversion to all foods (resulting in about 6 pounds of weight loss and extreme fatigue and exhaustion).

      My question is: Did I just pick the worst time to test my gluten reaction and happen to be hit by a stomach flu? Or did I overindulge during my testing and my body gave me the definitive slap in the face announcing that yes in fact I was gluten intolerant?

      I guess my disbelieve stems from the fact that I'd never had symptoms that severe in the past and usually eat lots of bread and gluten related products without vomiting. So, is it possible the two week break brought out these reactions, or again, was it just bad timing and really just a stomach flu creating a false positive. I'm a little hesitant to try and retest, but fear that is probably my only option. I hate being someone who needs evidence for their evidence.

      Any thoughts would be greatly appreciated!
      • 8 replies

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