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mcbphd1 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Two Months In And Still In PainHi All. I have been lurking for two months, trying to learn as much as possible. Was diagnosed via blood test with super elevated antibody levels on all 4 markers. I saw my GI early last month -- he says since I was already gluten free for a month and the blood levels were so high, no reason to go back on gluten and do the endoscopy. My symptoms were: on and off pernicious anemia, elevated platelet counts, mildly elevated liver enzymes, and fatigue, all for several years. My diagnosis came after I got to the point this summer where anything I ate caused pain. I had awful bloating, gas, constipation, and pain in the mid abdomen as well as in both sides. The gastro symptoms started about 2 years ago - I had a diverticulitis attack that I had a lot of difficulty recovering from. The celiac diagnosis made a lot of sense - I figure I have had this for somewhere between 4 to 7 years before finally being diagnosed.
For the first two weeks gluten free in early September, I immediately felt better. The gnawing pain to the right of my navel went away after a few days, and the gas seemed to get better. However, since then I seem to have gotten worse, and have had a lot of continued pain, gas, and bloating. I am gluten free and 95% dairy free - occasionally I have small amounts of cheese or butter, or small amounts of dairy in salad dressings, like ranch dressing. Otherwise, I have been avoiding dairy because my GI doc said that many people with celiac are temporarily lactose intolerant.
I am concerned about my continued level of abdominal pain and bloating - I got better at first but then seemed to get worse. I'm still learning about cross-contamination, so I have probably eaten things like chips at restaurants that were fried with sopapillas. Here is my question - my GI said that my food sensitivities should clear up after about 6 months. Should I give the gluten-free diet 6 months to work before assuming that some other food is causing pain? How long did most of you have pain after going gluten-free? Is two months too long? Because of my recent history with diverticulitis, any abdominal pain is very stressful, as I am always worried about having another attack.
Another question - currently I am taking medium level doses of magnesium and vitamin A, high doses of vitamins C, E, and zinc, l-glutamine, mega doses of probiotics (VSL3), ginger tea, DGL, and a teaspoon of miralax each day. Should I be supplementing with anything else? Has anyone tried aloe vera? Slippery elm? Does a liquid diet help? Thanks!
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