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Lexi1989 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Is It Worth Seeing A Dietician?Hi guys,
I was diagnosed with Celiacs about 2 years ago and thought I had been doing really well on the diet.
However, I haven't been feeling great the last few months - actually feeling sh*thouse* would be a more appropriate term!
I am over tired, despite sleeping 9-10 hours a night. Have a foggy brain (I am studying law at uni and simply cannot keep up because I am forgetful, tired and mostly confused), a host of digestive issues (pale coloured stool everyday, constipation and diarrhoea, abdominal pain, and a recurring stomach bug every 3-4 weeks where I get a lot of reflux and vomiting) and weight-loss. I have also been suffering recurring thrush.
But my most obvious symptom on the outside is the VERY dark circles I now constantly have under my eyes that are purply black in colour and don't disappear no matter how much sleep I have - I have even been told I look like a racoon!
Anyway - I finally got so sick of it I went to see the doc - was tested for diabetes, nutrient absorption (iron, b12 etc) - all came back clear. She has now referred me to a dietician.
I am a very healthy 23 yo female - have cut gluten out of my diet in all foods except for the following:
- I dont know how to read food labels for the additives/preservatives/flavourings I am supposed to avoid
- I dont 100% avoid cross contamination (like other people in my house using the toaster with their wheat bread or eating out at restaurants that could have cross contamination)
- I haven't checked my toiletries like body wash and moisturiser for containing gluten.
However, i recently found I react to quinoa and cut that out, and have found I feel better rather than worse after taking my morning vitamins (a women's multi, and immune defence vitamin, garlic, vit c and horseradish). The all say "no added gluten" but I still seem to not feel that great on them - I stopped taking them for a week and appeared to feel better but not that significant a difference that it could just be 'all in my head' if you know what I mean.
My questions are:
1. Has anyone found it worth wile seeing a dietician? The one I'm referred to is quite expensive and as a struggling uni student I don't want to waste any more $ on doc appointments that get me nowhere.
2. Could my symptoms be related to any other illnesses common in celiacs? I have looked into leaky gut, crohns, candida and diabetes and find my symptoms fit under all of those!
3. Does anyone think that my recent symptoms (over the last 2 mths) are just due to accidental glutening in minor amounts and since I have been on the diet for a while I am just now SUPER sensitive to the slightest amounts of gluten?
I am still quite new to all of this and my original doc (i have a new one now) was not very helpful once I was diagnosed - simply told me to avoid wheat rye and barley and I would be ok!! Most of my info I find on the net or this forum but I am starting to feel a little overwhelmed when I thought I was doing well but realise there are so many more things i need to look out for!!
I hope someone can help to put my mind at ease,
- 7 replies
- 1,244 views
Lexi1989 added a topic in Celiac Disease - Related Disorders & ResearchCeliacs And Mild Lymphocytopenia/lymphopeniaHi all, I am new to this website so hope this post is in the right spot.
I am 23 and was diagnosed with Celiacs a year ago. I have been on a gluten free diet ever since (though I am a very lazy with it sometimes). I am still having some problems with my stomach.
I then got glandular fever and since then have been sick with colds/flus/chest infections a few times since then. On two blood tests (both taken when I had a chest infection) I showed mild lymphocytpenia.
The doctor thought it was just due to being sick and my body fighting infection. She was unaware I have celiacs at the time. However, she referred me to an immune system specialist anyway to figure out why I was prone to getting sick. However to be brutally honest, I have researched a little into the causes of lymphopenia and most of them are not nice (and not related to the Celiacs). I am too scared to go to the specialist in case she is going to tell me its something I dont want to hear.
However some of my research shows that lymphopenia can be simply caused by autoimmune diseases such as celiacs and also leaky gut syndrome.
Is there ANYONE on here who has experience mild lymphopenia which was due to celiacs or leaky gut? or even just due to an infection at the time?
Any advice would be greatly appreciated - I am losing alot of sleep over this. I realise the logical thing to do would be to go to the specialist and get an answer from her but I am just not ready for an answer I cannot handle at the moment.
- 2 replies
- 1,920 views