This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
It is not just the itching that makes me lose sleep. When I have active DH, I wake up around 3 a.m. even if I'm not itchy. Once I'm awake, I get itchy. I'm wondering if there is a possible hormone/menopause connection with DH emerging in women who have never had gluten-intolerance symptoms before. After more than several years of hot flashes, night sweats and insomnia, now I have slightly different insomnia with DH...but perhaps hormones are a trigger, like stress?
For me, popping the blisters is not only satisfying but makes the area less itchy and start to heal. I wait until they get to the perfect hardness. Sometimes the blister fills right back up, for as much as a day. Does anyone else find this to be true?
Also, in the summer I was able to get big spears of aloe. I kept it in the fridge and would put it on itchy areas. Worked very well.
I've also found tea tree oil to help with itching.
How validating to read that since my biopsy shows the rash is DH, that means I have celiac. I also have the gene, but my doc thinks it still could be something else...Who cares? I also find it very impressive how many people on this forum are self-diagnosed.
I remember when the dermatologist called my rash psoriasis and prescribed an ointment to use for 2 weeks on, 2 weeks off FOR THE REST OF MY LIFE?? I wouldn't buy into that and instead went on a cleanse. The cleanse changed the rash from a run-of-the mill (super) itchy rash to pustules and I was lucky enough to read a description of exactly my rash in Wheat Belly. There are some ways that having a condition which is in my control to heal, by eating a healthier diet, has actually been a good thing in my life. (Like losing 10 pounds and keeping it off.) It has taken 3 months of gluten-free diet for the rash to go away (and now it is back, but I will now be careful about soy as well).
My question, because I'm impressed with all you've read/written here, is if you can explain more the iodine factor mentioned, and whether I need to avoid iodized salt.