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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Macmuireadhaigh

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    1. Macmuireadhaigh added a post in a topic Help. Need Some Advice   

      I had a blood test for celiac done about two years ago and it was negative, however my GI at the time said I could still have it. Basically when I eat gluten I get a metallic taste, and also deal with joint problems. Not eating gluten I don't taste metallic anymore, so not sure what that means. 

      I've been gluten-free for four months now because my insurance wouldn't pay for my procedures and I couldn't afford them out of pocket. So I decided to do what I could to help the situation and I've noticed I have less watery stools, and now my poop is more solid (yet still not one solid piece), however if I get soy or some other thing I'm not supposed to have I have loose stools again. 

      I guess when I do get my tests done I'll have to eat gluten for a bit so they can see, but my main concern is with PI, or pancreatic insufficiency. I should have clarified that my doctor didn't actually say chronic pancreatitis, he actually said pancreatic insufficiency, but I just assumed he meant the former. Now I'm beginning to wonder if he meant PI as a result of ongoing IBD. 

      So, your fat malabsorption was due to damage to the villi? I'm asking because you said now you don't have that problem anymore. How long did it take before you healed enough so that you no longer had fatty stools?

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    2. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Help. Need Some Advice
      How many of your doctors initially thought you had chronic pancreatitis?
      How many of you had fat malabsorption before or after diagnosis?
      I'm asking mainly because the biggest thing doctors look for in chronic pancreatitis is fat malabsorption, but what if you have it because of damage to your villi instead? How do they check know it's one and not the other? My first GI was under the impression I think that I had chronic pancreatitis, because my fat malabsorption rate was high. However, my new GI hasn't said anything about it, and my colonoscopy and endoscopy tests are scheduled next month.
      I don't drink, smoke, or do drugs, and the first two are main causes of chronic pancreatitis. I don't even have pain anywhere, which is a another typical sign for it. So, I'm just confused why a doctor wouldn't think damage versus chronic pancreatitis.
      • 2 replies
    3. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Gaunt Face/normal Weight
      I've been gluten-free now for about four months. Not so bad, but I'm still getting excessive gas from lots of foods, like milk, soy (D), even sometimes peanut butter (but only when I eat it in large amounts), and I'm tired of it. My face continues to lose weight even though I've managed to put on three or four extra pounds. What is happening? 

      Also, do any of you have more D whenever you get nervous, as if you had a nervous colon? I've had this since this all started and that's why I thought it was IBS. However, that doesn't cause malabsorption. I'm beginning to think I have IBS and something else.
      • 1 reply
    4. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Metallic Tasting
      So, been on a gluten-free and sf diet for about two months now with no metallic tasting (I'm undiagnosed, btw). I had two bites of a cookie today and fifteen minutes later had metallic tasting. Anyone else?
      • 0 replies
    5. Macmuireadhaigh added a post in a topic The Uncommon Question   

      It definitely stops after about eight hours of eating, sometimes longer, because I didn't have it at all for weeks while on the gluten-free diet. Mind you, I didn't have pizza the whole few weeks either so IDK. 
      BellVie, you said that you used to get a similar taste in your mouth after eating baked goods, I'm guessing this was before you were diagnosed? So, then did you celiac cause this or was it a food alergy? Just a little confused.
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    6. Macmuireadhaigh added a post in a topic The Uncommon Question   

      But was this related to your celiac or a food allergy?
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    7. Macmuireadhaigh added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      The Uncommon Question
      So, I've been on a gluten-free diet for a little over a month and decided to go out and try Dominos gluten-free pan pizza. Although they claim the ingredients are gluten-free, they clearly state that its made on the same tables as regular pizzas. There's a risk of cross-contamination. But that's not even my problem. I am undiagnosed and have went on the gluten-free until I can find out what's wrong. Here's my question. Since I've been off gluten for a month, I have not had a problem with vague metallic tasting, until tonight when I ate this pizza again. Nobody has been able to explain this to me, and I find it frustrating because it makes no sense. I was already tested for mercury and other poisonings, and I had none. I find it interesting that I haven't had a problem until eating this pizza (since being on the gluten-free diet), which is made on glutenous pizzas. Any thoughts?
      • 7 replies
    8. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Is This Normal For Celiac?
      Over the past two weeks I've been experiencing some minor fatigue. Its weird too, because I can sleep ten hours, get up, then be tired still. I have a hard time getting out of bed, as well. I'll also mention that tonight has been the worst. I work third shift, which is 11-7AM, and I slept from about 7:30 yesterday morning until 5:00PM. By the time I got to work and around 2, I was ready for a nap! But it was odd, because mentally I'm not tired, but its almost as if my legs are weak and I just want to sleep. Is this common in IBD? I probably need to start taking my multi-vitamin again. Thanks.
      • 1 reply
    9. Macmuireadhaigh added a post in a topic Lower Right Sharp Pain   

      Yea, this is down lower like my appendix area, but I know its not my appendix because I can press on it with no pain.
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    10. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Lower Right Sharp Pain
      So, I'm undiagnosed. I've had loose stools for about 8 years, getting procedures done soon. I have a question, normally I have no pain at all. But the other night when I was laying down, I had to get up to go use the rest room and when I did I had a sharp pain in my my lower right area, like my appendix area. It didn't happen again after that. I tried pushing on it to see if maybe there was something going on, but nothing. This was like four nights ago. Then tonight I'm sitting around and if I bend a certain way, or sit a certain way, I get these vague and very unpredictable sharp pains, but they are so mild and go away so fast that I don't know what to think. Do celiacs get pain in this area or is it just people with ibd? And has anyone else had pain in this area?
      • 5 replies
    11. Macmuireadhaigh added a post in a topic Fatty Stools And Confusion   

      Where do I get bile salt?
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    12. Macmuireadhaigh added a post in a topic Facial Weight Loss   

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    13. Macmuireadhaigh added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Overwhelmed With Gluten Free
      How does one go gluten free? I mean, there are so many things with gluten, and if I were to take the list of "do not" ingredients and go to the store I'd be there for ages. So, is there a list of foods for beginners that are okay? That would be much easier than checking each item's label.
      • 5 replies
    14. Macmuireadhaigh added a post in a topic Facial Weight Loss   

      Thanks for the reply. My problem isn't so much skin related as it is weight in the skin, if I may. Like, for instance, I have certain sunken in features in my face, which tells me I'm losing weight in it. As far as my skin goes, its just fine.
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    15. Macmuireadhaigh added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Facial Weight Loss
      I was wondering, I've lost quite a bit a weight in my face since this all started two years ago, and I'm really depressed about it. When I look in the shady parts at my reflection, I can see how bad it really is. Has anyone else here had this issue and, if so, when you did get diagnosed how long did it take after being on medication or diet did you start to gain your facial weight back? 
      I know the facial weight loss has to do with malabsorption in my small intestine because I have fatty stools and did a fecal fat test to find out I was only absorbing about 70% of my daily fats. This varies I'm sure. But, over time it has done a number on my face. My GP told me men normally lose weight in their hands and face first, and this would make perfect sense for me because my face and now my hands have been the only part of my body that have lost weight. When this all started I weighed about 145, I now weigh 138 in two years. This would be much worse if I didn't drink Ensure's everyday and increase my caloric intake, but I've managed to slow down the process until my insurance will pay for my diagnostic testing endoscopy and colonoscopy. 
      - Jay
      • 6 replies

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