This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I certainly understand your concern. You're trying so hard but you still don't feel better. I actually faced the same problems. I followed a gluten-free diet for 2+ years after diagnosis but always seemed to feel worse. After 2 years of suffering, I researched celiac specialists after my GI doctor wrote me off and found Dr. Fasano at the University of Maryland Center for Celiac Disease. He told me that I was "extra sensitive: and even the little bits (less than 20ppm) of gluten I was getting from gluten-free foods was too much. I was prescribed his elemental diet. I was on this diet for 3 months before I could gradually introduce more foods. It essentially reset my immune system and for the first time ever my TTG, etc. scores were in normal range. You may want to consider making an appointment with this center (he isn't seeing patients after December) but there are other good doctors there. My insurance didn't cover my visits there, but trust me it was worth it. This is just my opinion but I hope it helps.
Sorry to hear about your diagnosis but you're going to be able to get through this. With the holidays approaching, I certainly understand your anxiety. I find it helpful to share gluten-free recipes with my relatives to encourage them to make at least a few dishes safe for me. You should plan on making a filling side, perhaps stuffing, gluten-free, so you can be sure to leave the meal full. You also mentioned pizza on Christmas Eve...I buy frozen Udi's pizza crust and top them with my favorite items and cook them ahead of time. That way when friends and family are eating pizza, I don't feel left out. Best of luck!
Hang in there, you're going to be able to handle the gluten free diet and trust me, you'll feel so much better soon. I too had mental fog and my blood work was in the 90s when I was diagnosed. I would reccommend trying to to stick with certified gluten products at first (they have a specific label) so you know you're not getting cross containinmation. I like pop chips, stoneyfield yogurt, jovial pasta etc, and trust them. Also, try to eat naturally gluten-free foods like vegetables, rice, meat, etc. Best of luck and would be happy to help you along the way.