lucycouture replied to Megan1980's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi there Megan I'm new here too and came to post about the same thing - gluten challenge! I've had a mix of positive and negative results over the years and they are trying to come to an affirmative conclusion. I've been on the low FODMAP diet this year which is low in gluten, so now I am having to undertake a gluten challenge. I ate two pieces of toast on Tuesday night and have only just stopped feeling awful and being in agony My dietitian said it would only be for a few weeks, say 3 or 4. This feels like a lifetime to me though, how are we supposed to do normal life stuff? I certainly can't leave the house when my symptoms flare up as I get awful diarrhea. How are you coping so far? I wish I had advice but all i can give you is my sympathy as I'm going through the same thing! Lucy
lucycouture posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi everyone! I'm new here and about to face a gluten challenge... To recap, I've suffered with bad gastro symptoms for my whole life, but they got worse in my teen years (I'm 26 now). In 2006 I had the TTG blood test for coeliac disease, which came back positive with incredibly high numbers. I then had a biopsy which came back negative, so I was sent away with a diagnosis of IBS. My symptoms continued and I wasn't taken seriously again until 2010 where I had the TTG blood test again. They said sometimes the stomach biopsy can only take from healthy tissue and miss the unhealthy tissue if it's patchy, so if the results were positive they would do a more detailed biopsy. This time the blood results came back completely negative. However, this year I had been on and off gluten free diets and hadn't eaten wheat bread or pasta for years. I hadn't completely eliminated gluten, but certainly wasn't eating a lot. This year I was put under a dietitian and put on the low-FODMAP diet for IBS. I showed some improvement but my symptoms didn't completely clear up. Mainly diarrhea (steatorrhea), cramps, bloating, nausea. The diet is very low in gluten but not gluten free. So now my dietitian and gastroenterologist have looked through my history and think that they may have missed affected patches with the first biopsy and then I had a false negative result in 2010 because I wasn't eating enough gluten... and they want me to do a gluten challenge this month and then have more tests. Which means I have to stuff my face with it for a month or so to get the antibodies back then have blood tests and biopsies again! I just wondered if anybody else has done this and what their experiences were? I ate two pieces of bread on Tuesday evening and was in agony all day Wednesday and yesterday. I haven't had the courage to eat any more as I am so terrified to feel like I used to... I became agoraphobic and didn't want to leave the house because I had diarrhea all the time and didn't even feel like socialising because I felt so rubbish. I do want a proper diagnosis because I think all signs point to coeliac disease, but just wondered if anyone had some advice or information from doing a similar gluten challenge? Thanks!