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filmguy50 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsAdvice Needed For My Mum!Hello All,
How's it going? I'm hoping you can help me. I'm posting here on behalf of my Mum!
She's had a lot of symptoms which point towards celiacs disease for a number of years, but thus far has failed to get a diagnosis from the doctors.
She suffers from the key symptoms; diarrhoea, sore mouth/ulcers, skin rashes; etc. These rapidly decrease when away from wheat products.
Two years or so ago she began having problems with the tongue -- it gets red, very sensitive, goes a darker colour -- was once bad to the point she could hardly breath!
At first; the doctors thought this was due to an allergy to ibroprofen-- but then, a couple of weeks later, after eating a bread roll; these symptoms came back again.
Somewhere during this process; she was diagnosed with H Pylori - which shares some symptoms with celiacs. She had treatment, a triple anti-biotic; which relieved some symptoms for a while, mostly to do with pain/bloating of the stomach.
I should also add she has gastritis, and gastric erosion -- she was told this was quite possibly caused by H Pylori.
She's had a few tests that have not found celiacs -- but it is in our family, first cousins, etc.
I guess I'm wondering, has anyone had similar experiences, and found diagnosis hard to get? Mum is pretty certain it's celiacs -- although of course, neither her nor me are doctors! And the tests have not helped.
Whatever it is, she is still suffering and it effects her life in quite a big way. She has also had the feeling recently, with her doctor, that he's not taking her seriously -- perhaps thinking nothing is wrong with her!
Any thoughts/advice on next steps, or if you've had similar experiences would be very helpful.. thank you!!
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