filmguy50 replied to filmguy50's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHey all - thanks so much for your kind responses! Will have a read of these with my Mum and will get back to you all.. thanks again!
filmguy50 posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHello All, How's it going? I'm hoping you can help me. I'm posting here on behalf of my Mum! She's had a lot of symptoms which point towards celiacs disease for a number of years, but thus far has failed to get a diagnosis from the doctors. She suffers from the key symptoms; diarrhoea, sore mouth/ulcers, skin rashes; etc. These rapidly decrease when away from wheat products. Two years or so ago she began having problems with the tongue -- it gets red, very sensitive, goes a darker colour -- was once bad to the point she could hardly breath! At first; the doctors thought this was due to an allergy to ibroprofen-- but then, a couple of weeks later, after eating a bread roll; these symptoms came back again. Somewhere during this process; she was diagnosed with H Pylori - which shares some symptoms with celiacs. She had treatment, a triple anti-biotic; which relieved some symptoms for a while, mostly to do with pain/bloating of the stomach. I should also add she has gastritis, and gastric erosion -- she was told this was quite possibly caused by H Pylori. She's had a few tests that have not found celiacs -- but it is in our family, first cousins, etc. I guess I'm wondering, has anyone had similar experiences, and found diagnosis hard to get? Mum is pretty certain it's celiacs -- although of course, neither her nor me are doctors! And the tests have not helped. Whatever it is, she is still suffering and it effects her life in quite a big way. She has also had the feeling recently, with her doctor, that he's not taking her seriously -- perhaps thinking nothing is wrong with her! Any thoughts/advice on next steps, or if you've had similar experiences would be very helpful.. thank you!!