Sad story, same here! My PCP brushed me off, wouldnt run tests, prescribed steroid cream for my (totally non-gluten like, I admit) rash. She said, well, if you honestly believe that's your problem no one is stopping you from eliminating it on your own. It would have been easier to committ with some certainty, though. In my family, dad is the only one actually diagnosed with "intollerence" but his niece (my 1st cousin), my brother and I all eat gluten-free of our own choice. It just feels too good to ever even consider consuming one more morsel of gluten voluntarily. It was a bumpy road at first and I doubted my choice but I acheived certainty 7 months in when I decided to try casein (dairy) free as well. In 48 hours I felt SO GOOD, I had no idea how good good felt!! Even though my gluten-free family and I all talk frequently, my dad, brother and I all came to the decision to try casein free separately. It was all in the same 1 week period. Both my bro and I ate Lactaid ice cream (separately) and it made us sicker than anything since we had gone gluten-free. Dad went to a cooking class where the instructor highly encouraged all gluten-free to try Gluten-free Casein-free. Gluten-free Casein-free was the answer for us! Now we are all working to help our cousin learn what works and hopefully she will get better.
I'm 27 years old, my bro is 31. We suspect we've been having absorption problems all our lives based on non-genetic related spine and tooth development. But we both got really sick and immune system related px in our mid 20s. For me it was bad sleep, of all things, that finally got me to start complaining. Now I have no more arthritis-like pain, lichen plants erupting on all new and some old scars, brain fog (I hear others complain of that), normal stool, no more tummy aches, and sleep great (down to 7 hr night from 10)!
My first post on here! The posts others took the time to write have helped me so tremendously! I feel like I am not alone and there is hope!