This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
My 7 year old son was diagnosed with Celiac Disease this past year. Other than stomach aches, his behavior was the other major indicator that something was wrong. His teachers thought he had ADHA and Oppositional Defiant Disorder. They asked us to get him tested to confirm what they were seeing. He was also depressed, and very angry. One day, we were driving on the highway and he was upset with us. He was threatening to jump out of the car. He was starting fights everyday at recess. I think the principal had me on speed dial. He went from being a sweet and loving kid, to this monster that we didn't recognize. When I'd put him in time out, he would destroy his room. He could not concentrate at school. If we tried to sit down and do some homework, he would cry and scream the whole time. He was just not capable of doing the work in his state.
Once we had the blood test results from the specialist, she wanted us to keep him on gluten until his biopsy took place which was 6 weeks away. I tried to get the test moved up several times, but they couldn't fit us in. His behavior became so scary, I took him off gluten 4 weeks before the biopsy. The biopsy still showed damage to the upper intestine.
I want to share this with other parents because we went through hell trying to determine what his diagnosis was. His whole personality changed - anger, depression, defiant...
Every time he get's "glutened," we see the behaviors return, and they last about 3 weeks.