dasuriano replied to dasuriano's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsOnce I had an idea of what it was, I tended to eat whatever I could that had gluten in it, since I had the mindset that I wouldn't be able to eat it much longer. I recall that the GI I went to first said that I was only tested for celiac markers, but offered no additional insight into that.
dasuriano posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI've been struggling with digestive problems for the last few years. My doctor has said IBS, lactose intolerance, and a few other things. I noticed that it was gluten-containing foods and brought this to his attention. He did blood tests, which showed negative. Went to the gastroenterologist in the same practice. She said I had too low of a negative to say not celiac, so she wanted to test me for everything GI related under the sun, then return to the endoscopy for celiac. I decided to try eliminating gluten from my diet and it worked. It even cleared up things that I never were thought to be gluten related. So, I went back to the gastroenterologist. The first one was out on maternity, so I saw an associate. He looked at the labs, said it has nothing to do with gluten at all, since the labs were negative. He said my problem was residual from a childhood bacterial infection and that gluten was a coincidence. He told me to continue gluten free and come back if anything changes. Here are the labs, so hopefully someone here can help: IGA .99 Normal <45.0 IGG 14.05 Normal <45.0 tTG 2 Normal 0-19 Reticulin <1:5 Normal <1:5 Endomysial IGA Negative IGA Total 65 Low 68-378 IGD Serum <.07 Not sure on this one, since it lists <=15.3. Does that mean less than or equal to in this case? IGG Total 1310 Normal 768-1632 IGM 141 Normal 60-263 Some co-workers had mentioned that they should have done an anemia panel as well as a total antibody count panel as well. Does it sound like they missed tests here that could have shown the real picture? And does anyone have any tips for finding a gastroenterologist, since I feel like I need a better one? Thanks.