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dasuriano added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNeed Assistance With TestingI've been struggling with digestive problems for the last few years. My doctor has said IBS, lactose intolerance, and a few other things. I noticed that it was gluten-containing foods and brought this to his attention. He did blood tests, which showed negative. Went to the gastroenterologist in the same practice. She said I had too low of a negative to say not celiac, so she wanted to test me for everything GI related under the sun, then return to the endoscopy for celiac. I decided to try eliminating gluten from my diet and it worked. It even cleared up things that I never were thought to be gluten related. So, I went back to the gastroenterologist. The first one was out on maternity, so I saw an associate. He looked at the labs, said it has nothing to do with gluten at all, since the labs were negative. He said my problem was residual from a childhood bacterial infection and that gluten was a coincidence. He told me to continue gluten free and come back if anything changes.
Here are the labs, so hopefully someone here can help:
IGA .99 Normal <45.0
IGG 14.05 Normal <45.0
tTG 2 Normal 0-19
Reticulin <1:5 Normal <1:5
Endomysial IGA Negative
IGA Total 65 Low 68-378
IGD Serum <.07 Not sure on this one, since it lists <=15.3. Does that mean less than or equal to in this case?
IGG Total 1310 Normal 768-1632
IGM 141 Normal 60-263
Some co-workers had mentioned that they should have done an anemia panel as well as a total antibody count panel as well. Does it sound like they missed tests here that could have shown the real picture? And does anyone have any tips for finding a gastroenterologist, since I feel like I need a better one?
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