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Becksabec82 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTest ResultsIGA 86 61 - 356
TRANSGLUTAMINASE IGA AB <1.2 <4.0 (Negative)
My doctor said it's negative, but I may have NCGI or it could just be the IBS.
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Becksabec82 added a topic in Celiac Disease - Coping WithShould I Try It Again?I've had a long list of misdiagnoses. I first started having digestive and skin problems when I was 18 or 19. I'm 30 now. I was diagnosed with GERD, IBS and finally IBS-D. My doctor never did a colonoscopy. When the medication for the other conditions they thought I had failed, I saw a gastroenterologist (who is also the only doctor who could diagnose my mom's colon cancer) and he said it sounded a lot of like IBS, and gave me medication to try. I also started having skin problems around the same time - hives with no known orgin, facial redness, sensitivity. The hives happened on and off for a few years, they never found the cause. I was diagnosed with rosacea when I was 22.
I started having hives and rashes again a few years ago. After an elimination diet, they thought I had a gluten intolerance. I was gluten-free for quite some time with no skin issues or digestive issues either. I stayed on it for a year and a half, but after I had my son, I was told that sometimes that kind of stuff goes away after pregnancy due to chemical changes. I slowly re-added gluten products and everything was fine. Probably about 6 months later, I started having problems with chronic diarrhea, stomach pain, gas, etc. That was about a year ago and I'm still having problems. My PCP just has me taking medication for it as needed, but of course it doesn't prevent it. I don't even see that eating anything in particular triggers it. If I eat anything, my body is going to be miserable. I started having skin rashes just very recently. I've had a red rash on my stomach (which is where I had them frequently before) on and off, and today I started getting a rash around my lips and on a couple places on my face. I just kind of wondered if I should re-visit the gluten-free diet.
Edited to add: I started having problems with having frequent infections about a year ago. My doctor hasn't been able to find a cause. I had bloodwork done a couple months ago, and the only thing abnormal is that my IGA is a little low. My vitamins/electrolytes were on the very low side of normal, but not enough to cause concern.
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Becksabec82 added a topic in Celiac Disease - Coping WithSometimes I Really Hate DoctorsI was diagnosed with a gluten-intolerance several years ago. The tests were inconclusive, but my doctor was pretty darn sure of it. I had previously been diagnosed with IBS-D, and I responded to a gluten-free diet so he kind of just went with it.
After I had my son last year, my doctor had said some people can tolerate gluten after pregnancy, so he said I could slowly add a little in and see how I dealt with. I was able to successfully move to a non-gluten free diet.
A couple months later, I started getting sick a lot and I'm to the point where I get infections every 3-4 weeks (mostly upper respiratory stuff), my anemia has returned, IBS-D has come back as has my rosacea (both were in remission for several years). I've also developed a problem with joint pain, headaches, fatigue. My doctor had said that it was tonsilitis, and so I had a tonsilectomy three months ago. I'm still sick every month, and I have chronic throat pain. I've been on painkillers for probably about 6 months. And I just feel so warn down.
Might be time to revisit the gluten-free diet.
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