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javic added a topic in Celiac Disease - Coping WithHow Long Before Your Mood Symptoms Of Glutening Take To Kick In?For those who suffer from mood or behavioural effects after eating gluten, how long after eating gluten does your mood start to change? Also, what kind of mood symptoms are they and how long do they last?
My son is coeliac and has only mood/behavioural symptoms and I'm curious how it affects others with similar symptoms.
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javic added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseCan Dairy Cause Behvioural Issues In Celiacs?My son is 4 and just had a gastroscopy to test for celiac and we haven't got the results back yet so he is still eating gluten as always.
In the past couple of months, he started up with some really difficult behaviour. He screams and growls and will hit or pinch or scratch. He makes unprovoked attacks on his little sister.
We noticed that when he was not having any dairy (but still on gluten) he seemed to stop this behaviour. Then, when he had dairy again, he started behaving terribly.
Has anyone else seen this with their child? Can casein cause these issues in children even when gluten does not seem to?
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javic added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsShould I Get My Two Year Old Blood Tested?My daughter has just turned two this month. Her brother has just been diagnosed with celiac so we got a gene test for my daughter (via cheek swab) and turned out she is homozygous for the dq2 gene (has two of the celiac gene).
Now that I am aware of it, I've realised she may have some symptoms of celiac.
Around 5 months of age she started waking in the night screaming as though in pain. She continues to do it to this day, not every night, but some nights, even if I am with her she will push me away and scream. She also would seem to scrunch her legs up when she was younger, as though in pain. I thought it could be UTI but doctors did not seem interested.
She was quite fussy during the day when she was young, and still often has days when she seems very upset for no discernable reason.
She breastfeeds constantly still, but does not eat much in the way of solids.
She has some sign of very early tooth decay in between her two front teeth.
She is on 25th percentile for height, but has gone from 25th to <3rd percetnile for weight.
She has recently started saying she has stomach ache - but we are not sure if she is just copying her brother.
I do want to get her blood tested but she is very scared of strangers and I worry it will be very traumatic for her. If I do not get her tested, we will be going on a gluten free diet after my son's biopsy in two weeks. Thing is, if she is not confirmed to have celiac, then we will not know how strict to be with her diet - can she eat cookies at her friends house, cake at school parties?
So should we get her tested while we can, before we all go gluten free? Is the chance of trauma worth knowing for sure?
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javic added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTwo Yr Old Daughter Is Homozygous For Dq2 Gene - What To Do Now?My 4 yr old son had elevated gluten antibodies in his blood and in scheduled for an endoscopy/biopsy on the 10th of Jan.
I decided to get my daughter tested for the gene (via cheek swab aka buccal smear).
They found that she has 2 of the DQ2 gene which, according to the internet, means she has 1/3 chance of developing celiac.
We plan to go gluten-free as a family after my son's biopsy so if I need to get my daughter tested then it should be done now. My son's gastroenterologist is out of office and Christmas is so close. I need to know what to do right away. If I get her to do a blood test she will be really upset. She is scared of strangers and hates being touched. But I also would like to get it sorted now.
Also, anyone know more detail about what it means to be homozygous with DQ2? I read there's increased chance of refractory celiac and lymphoma.
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javic added a topic in Gluten-Free TravelAre There Any Gluten Free Resorts Anywhere In The World?I'm interested in finding a resort that is completely gluten free. I heard about one on the radio but when I did a search on Google I could not find anything.
Does anyone know of any gluten free resorts anywhere in the world?
Or have any idea of a travel agent or other place that might be able to help me find one?
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javic added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsPediatric Gastroscopy To Diagnose Celiac In 4 Year Old - Is It Really Necessary?My 4 yr old son had high positive antibodies in his blood test. The gastroenterologist wants to do the endoscopy. They sent me out info and, of course, it mentioned "risk of death".
I'm so scared! I just can't imagine putting my son through it. And what does it really achieve?! Surely, there are other ways to test for celiac? And if he has issues with gluten anyway (sore belly, distended belly) then surely he should just stop eating it.
Why oh why should I subject my son to this?
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javic added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseDoes Celiac Affect Motor Skills?My son was really advanced with gross motor skills when he was tiny. He walked at 9 months. Just before he turned 4 they tested his gross motor skills and he was behind. Could not stand on one leg or do tandem step. Also, I noticed he can no longer catch a football - this was something he was able to do a year ago, but now he has real trouble with it. Could this be the celiac?
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