This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have had gastric bypass, but not the usual kind, and now am being tested for celiac. My GB was because of a rare cancer, a sarcoma, on the outside of my stomach (part of it had grown into my stomach). The cancer is supposed to be cured, but I lost the distal 1/5 of my stomach, including the pylorus, and my duodenum is functioning as a conduit between the pancreas and the jejunum. So it is kinda like a bariatric GB but not as drastic. Yet I have tested low on copper & Vitamin D for certain. Some of the folks who have had my cancer & stomach surgery experience vitamin & mineral deficiencies but sounds like I am definitely not in the majority there. My GI doctor says she doesn't think my deficiencies are caused by my surgery as they can be absorbed other places besides the duodenum. Celiac fits in with my other symptoms. I wonder about wheat allergy. Whatever, bottom line, I do better without wheat for sure, probably gluten. I did have my gluten test run yesterday. I have not been chowing down on gluten, but never gave it up either.
Another thing that should change is vitamin/mineral levels should improve. You could get those levels tested now and do a follow up later, say in 6 months or a year after going gluten-free.
The above is of concern to my health providers and of course myself. I had them tested in mid September, and am supplementing. They were discovered in July, I supplemented then, but the improvement was slight. So, I am taking more of each supplement. Those deficiencies are being watched regardless of the question of celiac or not.
Sounds like I should go ahead and get tested. From what I've read a couple of the tests could, not saying it is definite, but could point to a wheat allergy. But I guess a person could have both celiac and wheat allergy going on? It's confusing to me.
Well, yes, I did add some more gluten/wheat to my diet in the past few days, with dramatically bad results, I thought. On Thanksgiving Day (Thursday) I had two slices of sourdough bread. As far as I know that was all the gluten I had because we ate a regular sized meal at home because our family get-together was Saturday. A few hours later I started feeling bad. Pains in joints, pains, in abdomen, bloating, and what I later decided was swelling in my throat. I felt like I was being choked, although I could swallow, etc. The next day, about the same, but I noticed my bowels had stopped working, ahem. I developed a bad cough and it sounded like bronchitis, so thought maybe I was getting a virus. Saturday was a bad day, and I began to wonder about allergies, so I tried a 24 hour antihistamine. I started feeling better, at least with the throat problems. I was very depressed most of the day.
Today, on Sunday, I feel so much better. No cough, no throat issues . . . doubtful that it could have been a virus that left in 24 hours. Do I have to eat more bread to get accurate test results? I did ingest more gluten on Friday, but not a lot. If I ate any on Saturday, it was unintended. I have also seen something somewhere on the internet about it taking 6 months of gluten free to get the bloodwork to change. Any truth there? If so I only cut down on gluten in September, but I never did entirely eliminate it as I was not convinced I had anything.
If I have a wheat allergy instead of celiac, can they tell that from the panel? I have to pay for the panel outright as we've started over with our deductible for the year. So is it worth it if I think I will just go ahead and eliminate gluten products regardless? As to timeline, I can take this test anytime, next week, the week after. Thanks for all your help.
Yes, those cautions I have seen--12 weeks seems like a long time. One cracker seems a lot smaller than one slice of bread, too. The latest study I saw said the amount did not matter so much, so then maybe I don't need to be concerned.
I've seen the shorter times, too. So I'm glad (I guess) that you think the couple of teaspoons of flour I would get each day as a for sure gluten is enough. I cannot translate tsps. of wheat flour into a slice of bread, or half slice. But I will eat a slice of bread, or a bun sometimes, just not daily or even every other day.
I do not think it would be hard for me to eliminate gluten from my diet. Life would still be worth living! It would be nice to know if gluten is a problem for me or not, however.
I am to have the full panel testing in the near future. I have such a long story, where to start. I've had few digestion problems until I encountered cancer at age 60. I had a sarcoma removed along with the distal portion of my stomach, and I have a roux en y. That's been more than a year ago, and the sarcoma is considered highly unlikely to return. I have had my share of digestive issues, mostly sorted out. There are some other medical issues, but let's say I've had most every test known to man, and things look good.
So, I went to a GI doctor thinking I had gastroparesis, or something like that, because I had so much bloating and gas, and sometimes voluminous stool, sometimes smaller. (had colonoscopy 1.5 years ago). Not exactly constipated, not diarrhea either. But I did have pain at times, spasms in my colon at times. I've recently had a abdominal/pelvic CT with triple contrast, checked out fine. So the GI thinks I might have celiac, or gluten problems. I like her, she is a good diagnostician. I have had a three vitamin/mineral deficiencies in the past few months that I assumed were because of my partial gastrectomy, with rewiring: copper, vitamin D & magnesium. Since being on those, things did get much better. I am not anemic, although I had been low normal, or slightly below normal, and couldn't get it any higher. I think taking copper helped with that, as it was after I had been on copper for a couple of months, the hemoglobin nudged upward, but I don't know. But the GI was not impressed, thought the deficiencies were unrelated to my surgery.
So, moving onward. During the past few months, I gradually stopped eating bread and bread products. I love bread, or did love it. I just decided it wasn't so good for a person. I have not lost weight, I gained it back from my surgery, however, and I am at a good weight. I never buy prepared stuff. I don't eat out a lot, and am reasonably careful. I do eat bread, perhaps once a week, but then not a lot. I love oatmeal in the morning, don't know what the chances are that is a problem with gluten. I really cannot think of anything that might have gluten in it except for the homemade soups--I eat them almost daily-- I prepare them using flour as a thickener. That would be it.
So I told her I did not intake much gluten, but she glossed over that. When I called a couple of days later to discuss with the nurse, the nurse said, "you're having pain and digestion problems, if you are gluten intolerant it will show up." !!!!! Not sure that is right. I did find a recent study which said that one only needed to be taking gluten for 10 days-2 weeks prior to testing, and these were from celiacs who had been gluten free for a long time.
Finally my question: Will I be wasting the testing if I have it with the diet I have described? I had them check on the cost of the tests as my has started over, and the cost is over $500.
Oh, yes, the GI surgeon who did removed the sarcoma stays out of the fray as far as vitamin and mineral deficiences, and he'd stay out of this as well.