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Daisychamp

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About Daisychamp

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  1. Wow! Thanks Mommida! My GI basically diagnosed me and prescribed meds so I'm doing the research on EE on my own.. I am glad I found this forum. I don't feel like this is "all in my head" anymore...
  2. Thanks to everyone for the advice! I'm still feeling out everything. I try to be informed but short of self-diagnosis but then, you know your body and it's triggers, right? I have a follow up with my GI next week and now that I know more about EE than I did when she called me with the diagnosis, I have a ton of questions for moving forward... I'd much rather eliminate bad foods and find healthier options than continually use a corticosteroid... My GI is a "treat it with drugs first" kind of gal... Any advice for making it through the holidays? Do you have recipes for your favorite foods? I don't now how much more rice and mashed potatoes I can stomach... lol Thanks Again, Michelle Suzette
  3. Hello, I am new to the forum. I've recently been diagnosed with eosinophilic esophagitis as a result of what I thought was a very bad collagenous colitis flare... I was diagnosed with CC 3 years ago but have had continual issues with bloat, diarrhea depression, joint pain (primarily in my hips) and issues with wheat in particular but also rye and barley and to some extent oats.Especially around the time of my cycle... Based upon my symptom description my GI ordered B12 and Vitamin D blood tests, a Celiac panel, an endoscopy and colonoscopy. My vitamin D level was 16, B12 normal and Celiac panel negative. Here's part of my issue... I have been trying to eat gluten-free for 3 months, and this is something I shared with my GI. Shouldn't I have introduced gluten back info my diet before testing? Everything I've read seems to indicate this... Is it worth sickening myself and having the test done again? The other side of the coin for me is the esophagitis... Triggers for this type include GERD, asthma and food allergies... I do not suffer from the first two but - wheat, soy, milk, eggs, seafood and nuts are common food triggers - and I already know that wheat is not my friend. A few days ago I had regular mac and cheese (not thinking) and almost immediately had cramping and diarrhea. I'm using a Flovent inhaler and taking a Nexium a day and I'm down to 1.5 meals a day because I don't know what other triggers cause the esophagitis. Has anyone had an experience with having more than one autoimmune disorder? Do you know of anyone who was diagnosed with one issue which was really masking a greater issue? Thanks in advance, Michelle Suzette