This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Re: low iron/anemia and celiac My daughter was diagnosed with celiac in February 2012 after a biopsy. Much earlier she had been found to have low iron and we corrected that with twice-daily spoonfuls of Palafer, a liquid iron supplment. We didn't figure out she was celiac for a while but her iron levels were okay at the time of diagnosis. Since then I've worked hard to go gluten-free -- the few times we knew she'd had an "oops" moment and ingested something with gluten, she would get a stomach ache about 2 hours afterwards. It was a specific type of pain that came in waves and although pepto-bismol helped with the pain, I knew that damage was occuring. Still, she has had only three of those incidents since February. However for the past couple of months, she has been pale and last week, she was cold to the touch even soon after a hot shower. She's had a blood test getting ready for her check-up but in the meantime, I've put her back on iron supplments and I feel discouraged.
What I don't understand is this: can an otherwise "healthy (i.e.gluten-free) celiac still become anemic or get low iron? Is it just the state of being celiac OR does the low iron suggest that she is somehow still ingesting gluten but not getting the tell-tale stomach pains? I can treat the low iron but I'm really concerned about how to pinpoint how and when she might be getting gluten. Does anyone know if low iron is very common in celiac patients? I've now started her on Iberogast to help improve her digestion overall but I am really worried about how the low iron came about and what I can do to help her. Thanks!