Have you received your biopsy results back? I have not heard from my GI yet, and my procedure was over a week ago. He did say it would take 7-10 days, but I think I'm going to call tomorrow anyways. I have been gluten-free for a week and I still do not feel well after I eat and I think it is from the gastritis and I can not wait to start feeling better. I also started taking Acidophilus and I am hoping this helps with my GI tract. Keep me updated on your results.
I had my upper endoscopy done this morning. My GI now thinks I have celiac disease after my blood tests were negative and the CT scan didn't show anything.
My duodenum (the first smart of the small intestine) was completely flat with no ridges. My stomach was red and inflamed which he told me was gastritis, and my esophagus showed signs of acid reflex. I actually got to see the pictures and I was amazed by what I saw. I knew something was wrong and I wasn't taking just lactose intolerance for an answer. Anywho, my GI took some biopsies and won't have the results until next week. He also stated that the lactose intolerance is caused by celiac disease, which I didn't know until a member of this board mentioned it in a previous post of mine. He told me in my last appointment that I was lactose intolerant, but I knew it was more than that because I don't have diarrhea, I'm always constipated. He wants me to start taking lactase pills before meals, start gluten-free and he wants to see me in 3-4 weeks to see how I am feeling.
I'm scared because I know this is will be a major life style change for me and I don't accept change very well. I know gluten-free food is very expensive and I keep wondering how can I afford this? I also have a 5 year old daughter who is always constipated but does not complain of her stomach hurting or show signs of bloating. Should I have her tested, just in case?
Can some one please give me advice on how to accept this and how I go about finding gluten-free foods? I know I can find them on the internet, but does anyone know if any chained grocery stores like Kroger has a good selection of gluten-free foods?
I had my EGD done this morning and it went good. The procedure took about 15 minutes and I felt fine after waking. My throat is a little scratchy and I'm coughing some. Yes, I do have a rash and it seems to be mainly on my arms, legs, buttocks, and I get some on my breasts. They start out as little red bumps then the bumps get bigger and form a blister like lesion in the middle. Once they pop, it burns and itches like crazy. I have an appointment with my dermatologist in January and I'll have him do a biopsy on them. I also have eroding teeth as well. I noticed my teeth have turned yellow and I brush and floss as recommended. About 6 years ago, I had 9 cavities at one time and just had my top wisdom teeth removed back in September because they were eroded and almost gone.
My GI told me he didn't think I had celiac disease because my blood work was negative and my CT scan didn't show signs, well my EGD showed otherwise. My duodenum (the first smart of the small intestine) is completely flat and has no ridges. My stomach was also inflamed so I have gastritis, and my esophagus shows signs of erosion (possibly from acid refux). He took some biopsies and I will know the results next week sometime. He told me go ahead and start taking lactase pills before I eat and start on the gluten-free diet to see how I feel and I will see him back in 3 weeks. Good luck tomorrow with your procedure. Let us know how it goes hon.
I am so in the same boat you are. My tests came back negative and well and I am also having an upper endoscopy done this Thursday. I am a little frustrated because I know something is wrong with me but supposedly I am lactose intolerant with no diarrhea! I do not believe that for one second. I know how you feel about going under anesthesia. This will be my 6th time going under and every time I wake up, I get sick to my stomach. If my biopsies come back negative, I am going gluten free to see if my symptoms change after eating. I am tired of feeling bloated, tired, and sick to my stomach after eating... Do you have a rash?
I have NEVER had problems with diary. There are certain foods I eat, within an hour or two I will have diarrhea, those foods are pizza, spaghetti, and lasagna. Well, I am certainly going to see the dermatologist regarding this rash, but I'm not going until January. My gastro said he thinks it's lactose intolerance because I have the symptoms.. am I'm like, no I don't!! I don't have diarrhea. I'm so confused.. I eat and I feel sick. I want answers and he can't give them to me, then I will go see some one else. I am supposed to be having an upper endoscopy done Thursday and he his going to take some biopsies, so I hope those show something..
No, I did not remove any gluten from my diet before my blood test. I read that if you did, the tests would come out with a false negative result. I actually have my CBC results here, and it looks like I was only tested for the IgA (endomysial antibody) which was negative and the Ttg IgA (T-Transglutaminase) and that was <2 with a reference range of 0-3. Yes I did have a full Complete Metabolic Panel as well, and everything was in the normal range. It looks like I did not have the full celiac disease panel done and will ask the gastro when I go in for the EGD procedure on the 29th. If i still can not get any answers, I will go gluten free and see how I feel. I am going to try and upload a picture of my rash with this post, but I can't figure it out.. LOL
No, I have not had the genetic test. My Dad was adopted, so I do not know if any one on his side of the family has celiac disease. Where do I go for the genetic testing? The ultrasound showed no stones, and the biliary tree showed no dilation. I just actually just received a letter from my gastro regarding my results, and he states and I quote, "These results are reassuring with regard to things such as Crohn's Disease, occult gallbladder, liver or pancreatic disease and even celiac disease, which would typically show some signs of bowl dilatation or increased fluid within the intestine". I have taken many pictures of the stages of these breakouts. It seems they itch really bad when they start to form, and as they start to bust open, it burns and turns really red. Looks almost like a blister. Thank you for the advice.
I have been having GI issues for about a year and half and I was first diagnosed with gastritis. The pain is getting worse as the days go on. I have never heard of celiac disease until my Grandma mentioned it after I had a few bites of macaroni salad and I was hunched over in pain and became extremely bloated. I have all the symptoms of celiac disease; I bloat within 30 minutes after I eat and I seriously look 6 months pregnant, and I am 110 pound girl with chronic constipation, fatigue after eating, abdominal cramping and sometimes feels like I'm being hit in the stomach with a baseball bat, small, drop like circular rash on my legs, arms, buttocks, elbows, and even my breasts that busts open in the center. I noticed I break out in this rash the more food I eat, but I can not tell what exactly stirs up this rash. I could eat a handful of goldfish and I have these symptoms, so I finally got fed up with dealing with the pain after eating, so I went to see my GP. My GP decided to do a full CBC and decided to test me for celiac disease. My GP asked for the IgA anti-endomysial antibodies test along with the IgA tissue transglutaminase test. The results came back, NEGATIVE and my CBC was normal. I was disappointed I did not have a diagnosis, but I knew I was going to have to see a gastroenterologist for further testing.
I went and saw the gastroenterologist and he tells me i'm lactose intolerant. I do not have diarrhea what do you mean i'm lactose intolerant? He is telling me all the possibilities, but I wanted further testing because I could not believe what I was hearing. I just had an ultrasound done on my pancreas, liver, right kidney, and gallbladder to rule out any conditions or diseases and had a CT scan done on my abdominal cavity. Those results came back all NEGATIVE. My gastro did mention that my CT scan showed I was "mildly constipated" and had a lazy bowel. I could not believe the mildly constipated because I had not gone #2 in NINE days!!!! I made an appointment to see my dermatologist regarding my rash, but I can not get into see him until January, so more waiting to get a diagnosis on that...
I am going for a EGD on the 29th because I still do not feel well after eat. There is something going on and I do not know where to go from there if those tests are negative as well. I feel deep down there is something wrong and I do not want to give up until I have an answer. Does anyone have any advice on what I should do from here? Could the possibility still be celiac disease even though the blood results came back negative or is it really lactose intolerance?
Thank you for reading my post; sorry so long. I'm confused and tired of self-diagnosing.