This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Gosh, this sounds a lot like me, symptoms wise. I was told I was going to die if I didn't do something to lose the weight, get some nurishment in me (I couldn't eat) and reverse my fatty liver. I was terrified. Luckily I found a dietitian who knew what she was doing! She ran an MRT test and we got the results back. I stuck religiously to the diet. After 24 hours of not eating at all, I had my appetite back with a vengence. BUT I still had horrible abdominal pains and nausea and cold sweats, fatigue (like sleeping 20 hours a day! Not even kidding there), jelly legs, etc everytime I had a day that I ate spelt bread. So I stopped eating that. Then I read about gluten and celiac and I removed ALL gluten from my diet.
My next appointment, I told the dietitian about how I feel like a new person. My weight was dropping so fast that she threatened to put me in the hospital... she didn't, but I couldn't help it. I could out-eat my 2 teenage sons, which was a miracle since I couldn't eat before (Okay, I could eat about 500 calories a day before agony and fatigue set in) But I also told her about the spelt and gluten research. She strongly believes that I have celiac sprue. But since I was not willing to eat gluten before the gluten testing, we decided to let the testing go. She said that I could get a false negative if I avoid gluten. So I decided to just stick with gluten free. Every now and then I have an accidental cross contamination and I SUFFER because of it. I shake and sweat from the pain. So you can guess how often I eat out LOL. I MAKE SURE I make my own food or bring my food with me.
I am just over two years gluten-free and I am very happy with it. I feel like I am me! I am also VERY happy to be able to eat again. Sure, every now and then I miss my pasta or my grilled cheese sandwiches. But I don't miss them enough to go through the agony I went through before. That wasn't living. I have a new motto I repeat when the missing food gets bad...