Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About FreeMelly

  • Rank
    New Community Member
  1. Thanks for the helpful info, everyone! I am on Day 21 gluten/casein/egg free. I am not feeling much better yet, but I hope to soon. I do have more energy and my "seasonal allergies" have cleared up, but my gut is still pretty messed up. I have switched to gluten-free makeup, shampoos, lotions, etc. I have also eliminated corn for now, as I have the exact same reaction to that as I do to gluten. Honestly, it seems like my gut has gotten worse in the last 3 weeks, so maybe there is an element of "it will get worse before it gets better" in this healing process. For now, I'm following a modified paleo diet and taking probiotics and L-glutamine. Hopefully I'm on the road to recovery!
  2. I've been reading here quite a bit while impatiently awaiting my Enterolab test results. A year and a half ago, I had a negative blood test and biopsy, but that was after 13 months gluten free with only an 8 day gluten challenge. Since I have a son who is gluten sensitive and I've had digestive issues since I was two months old, I was really interested in the Enterolab tests. I feel better on a gluten free diet, but I still have some inflammation and disgestive issues, and Enterolab seemed like a reliable way to at least be pointed in the right direction to start elimination diets. (Other than gluten -- I've been gluten-free since October 2011 other than my 8 day gluten challenge in November 2012. Gluten is absolutely not an option for me)!   Anyway, my results are below. Here are my questions:   1) The gene stuff is really confusing. Although I understand I don't have the celiac genes, I do have two gluten sensitivity genes. I just get confused by the "DQ8" , "DQ2", DQ1, terms I see on this forum. I know I don't have DQ2 or DQ8, but which DQ do I have? In the end, it probably doesn't matter, but I'd like to know so when I hear people talking about a DQ-whatever, I'll know "Oh that's me!"   2) Since I don't have DQ2 or DQ8 genes, I can't be celiac right? Because I have elevated Anti-TTG and some major malabsorbtion going on. I thought that those were celiac things. Especially the Anti-TTG which indicates auto-immune reaction. I had read previously that non-celiac gluten intolerance didn't produce auto-immune reactions, but celiac -- and only celiac -- does produce auto-immune reaction to gluten. I'm probably missing something.    In addition to gluten, I now have to change my diet to eliminate dairy and egg too. (And also walnut and oats, which I find amusing because I've eaten them maybe five times in my life. I hate them both! Not sure how I have been making antibodies to those).    Anyway, I'd be interested in any thoughts or answers to these questions. Thanks!   A-2) Gluten/Antigenic Food Sensitivity Stool/Gene Panel Fecal Anti-gliadin IgA      19 Units   (Normal Range is less than 10 Units) Fecal Anti-casein (cow’s milk) IgA      12 Units   (Normal Range is less than 10 Units) Fecal Anti-ovalbumin (chicken egg) IgA      10 Units   (Normal Range is less than 10 Units) Fecal Anti-soy IgA      7 Units   (Normal Range is less than 10 Units) HLA-DQB1 Molecular analysis, Allele 1      0303    HLA-DQB1 Molecular analysis, Allele 2      0603    Serologic equivalent: HLA-DQ   3,1  (Subtype 9,6) Anti-TissueTransglutaminase Antibody Fecal Anti-tissue Transglutaminase IgA      13 Units   (Normal Range is less than 10 Units) C-1) Antigenic Food Sensitivity Stool Panel Mean Value 11 Antigenic Foods      7 Units   (Normal Range is less than 10 Units)   Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows: Grains: Grain toward which you displayed the most immunologic reactivity: Oat Nuts: Nut toward which you displayed the most immunologic reactivity: Walnut Fat Malabsorption Stool Test (Fecal Fat) Quantitative Microscopic Fecal Fat Score      504 Units   (Normal Range is less than 300 Units)
  3. I am wrestling with the same question. I made the mistake of undergoing bloodwork and a endoscopy after 13 months gluten free with only an 8 day gluten challenge. So of course my tests were all normal. But the 8 days of eating gluten was brutal, and I'm not sure I could have lasted much longer in order to get an accurate test. It has been 2 weeks since my gluten challenge, and I am also back to paleo eating and mostly feeling much better. I wish I had a concrete diagnosis. But ultimately, I know I will never eat gluten again regardless, so the diagnosis probably wouldn't change my lifestyle too much anyway. Good luck! I hope you can find the answers you are looking for.
  4. This is my first post here, but I've learned so much by reading here over the past month or so. My 7yo son was diagnosed via endoscopy last year with a slight gluten sensitivity that was causing acid reflux. Up until that point, I hadn't really given gluten much thought, but we decided the whole family should go gluten free to support my son. At that point, problems that had plagued me my whole life cleared up, including bloating, constipation, and joint pain. I followed a 95% gluten-free diet since last October. I would eat breading on chicken, restaurant french fries, etc with no problem, other than some bloating for an hour or two. Then over the last 8 months, my symptoms started to get much worse whenever I would consume small amounts of gluten. It progressed to stomach cramps, itching on my torso, and a "punched in the gut" feeling. Also, I started reacting to much smaller amounts of gluten than I did previously. When I mentioned this to my son's pediatric GI doc a few weeks ago, he strongly encouraged me to get tested for celiac. Knowing that i have the disease will impact my son's treatment and prognosis for the future. However, the adult doc I was referred to doesn't seem to be as knowledgeable about celiac and gluten issues. Even though i have been mostly gluten free for over a year, she didn't agree that we should do a prolonged gluten challenge before testing. Instead, she wanted to test as soon as possible, and scheduled my endo 8 days into my gluten challenge (I should be grateful, as that 8 days were the sickest I can ever remember being). Here were my symptoms for the 8 Day Gluten Challenge: bloating "soft poop" & cramps stomach ache flu-like muscle and joint stiffness sore fingers acne itchy skin fatigue/"brain fog" nagging headache Hunger So, my bloodwork (drawn 7 days into the challenge) was normal (IgG=<.4, IgA=1.0, TTG=.4, EMA IgA=negative, total serum IGA= 222), and the biopsies (she took 5 from stomach and 4 from duodenum) were normal with the exception of "minimal inflammation consistent with a phase of acute erosive gastritis). No damaged villi found = NO CELIAC! While I should be happy, I can't help feeling like this isn't accurate. I am a little angry at myself for not advocating more strongly for a longer gluten challenge than 8 days. I have read how hard it is to diagnose celiac disease under normal conditions, but after a year mostly gluten free, I have no confidence that 8 days was enough. I know it shouldn't matter if I have a diagnosis or not, because given the way I felt for those 8 days, I will never knowingly ingest gluten again. However, I wanted a specific "label" on my symptoms, so I would have a response ready when well-meaning but clueless friends and family push gluten on me. ("Oh, you and your fad diet!" or "A little bit won't kill you." Umm...yes, yes it will.). Also, if I definitively DON"T have it, then I know i don't need to worry about contaminated fryers, lipsticks, etc. After all, I don't outwardly react from those things and if it's just a simple intolerance, then no harm done. But if I don't react outwardly, but do have celiac, then the potential from harm is much greater. My next step might be a gene test from enterolabs, but I can't decide if it's worth the money. Pros: we would know if my son has the celiac gene, I would know that I have to be SUPER anal about gluten cross contamination, etc. Cons: Cost Sorry for rambling. If you have any thoughts and opinions on my situation, i'd love to hear them. i guess my basic question now is: what next? How gluten intolerant am i, really?! What do I say to others who don't understand how I can get so sick from gluten but get a negative diagnosis? (See, it's all in your head).