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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About JDThornton

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  1. I have very similar symptoms, and have been given similar tests (4 MRIs, 3 CAT scans, and 2 EEGs, among others). I got three different diagnosis from a number of doctors, the most popular of which is migraines, as you said. I am pushing, primarily because my neuro and GI symptoms have affected my work a lot this year, and I would like to be able to show my employer a diagnosis that tells them I'm not making things up. Isn't it funny how everyone thinks you're a hypochondriac when your symptoms are "invisible"? I think the final choice is up to you. I have an allergy test scheduled for the 19th, immediately after which I will be going gluten-free. I have an appointment set with yet another doctor in January, but my symptoms are getting out of control, and I've decided not to wait to see him to go on the diet. Best wishes to you, and I hope you'll keep in touch about your decisions and your success on the diet, should you choose to do it. Good luck!
  2. To Be Nosy Or Mind My Own

    I think you just answered your own question. Everyone thinks I'm crazy too; my own mother has mentioned hypochondria a couple times. But it's real and it's out there. You don't have to turn it into an argument; just mention the basics and suggest a full panel. Good luck!
  3. Mostly all my childhood. More severe at 18. Sustained since 26. I am now 29.
  4. Thank you everyone!! I think an allergy test should be sufficient, then I'll be going on to the gluten-free diet. Bought a cookbook for gluten-free comfort foods this weekend, so I'm ready! Thank you all for your advice. I am glad to be here!
  5. Restless Legs

    Calcium is a natural muscle relaxant, and when we cut out dairy, we tend to not get enough. Do you take a non-dairy calcium supplement? It might help. I have RLS too, and sometimes if it's really bad I have a little valerian tea; it tastes horrible, but I mix it with peppermint and chamomile or catnip, which are also relaxants. Helps a lot, and I sleep like a log. But you have to have 8 hours of sleep at least when using valerian (I think it does come in pill form, but I like natural herbs, so I've never tried it). Good luck!
  6. Odd Pains

    Have you ever seen a chiropractor? It really almost sounds like your back and hips could be out of line, which causes neck, back, leg and even chest and abdominal pains. Everything in your body is connected, so being out of place can affect the whole system. It's definitely worth a shot.
  7. Okay, so if you missed my story earlier, I have a long list of typical celiac symptoms, including depression, severe cramps, constipation, bloating, major constant gas, etc. (See "Should I Re-Test", same thread, for the whole story). I have weight gain instead of loss, but my stomach is firm to the touch as if constantly bloated. Blood tests came up negative (still waiting on my copy in the mail), so I went to a GI last week. I am about to just give up on doctors entirely. I sat there for over an hour explaining all my symptoms to the nurse, then again to the PA. Then the doctor walks in and the first thing he says is "I'm not really going to look at your other symptoms, just the GI symptoms." He then tells me he's 95% sure I am not celiac and diagnosis me with IBS. He does not want to do any more testing, just meds and diet changes. Shouldn't all symptoms be considered when making a diagnosis?? I insisted on the biopsy, but his office has not called me back yet to schedule it, and now I'm thinking I should just save my money (out of vacation and sick time for work already too) and just see a dietician and make the change to gluten-free. I haven't started the diet yet because I have an allergy test scheduled for the 19th. My boyfriend says I should get the biospy only after the allergy test, to see if I come up as allergic or sensitive to gluten, but to me it seems like a moot point. Any thoughts on if I should proceed with medical testing or just trust my instincts on this?
  8. Should I Re-Test?

    Very interesting! Thanks for your feedback. I have an appointment with a GI today, so we shall see what happens. Also have an appointment later in December to get allergy skin tests. My low vit D is what started me on this research, because I have D in my multi-vit, take an additional D supplament every day, and drink D fortified milk, so I was like "what?" D didn't explain my symptoms either, but I've decided to go on the gluten-free diet (and probably diary free, at least for the first few weeks), no matter what the diagnosis is. Thanks so much for your response!
  9. Should I Re-Test?

    Thanks!! I requested the test results, so I should have them in a couple days. I also have an appointment with a GI today at 12:30. Crossing my fingers! Also, realized that I have recently developed pits in my nails (but no skin rashes) and hair loss, and this morning I have hives on my stomach area. Getting interesting! Lol. I also am struggling with depression pretty bad, but I am very hopeful. Really, bottom line is, even if they come back and say "negative" again after the biopsy, I'm still going to treat myself as if I have celiac. I am confident it will clear up on a gluten-free diet. Thanks so much for your input! I'll be back with test results later! Looking forward to becoming an active member here.
  10. Okay, here's my story: All growing up I had the stomach flu every year until my late teens. I had bronchitis and strep a lot as well. When I turned 18, I was a nanny for my aunt up in Michigan and suddenly developed a severe stomach issue; I lived on yogurt for several weeks. I went to the doctor and they did several tests, including a stomach x-ray that required me to drink a paint-like substance. Nothing. I don't know what made it subside, but after several months, it finally did. I didn't ever connect it to something I was eating. In early college, I developed temporary paralysis and passed out a lot. I had several MRIs, CAT scans, and EKGs. Nothing. One doctor said stress, one said migraines, another said epilepsy. Stress did seem to affect it quite a bit, and I had a very rough few years in college. Lots of stress and trauma, and suffered from depression. Still had the problem off and on for years, but have not had this issue for a couple years now. However, about a year ago or less, I suddenly had a major migraine and couldn't speak. I was taken to the ER from work and just given migraine meds. Getting two of my wisdom teeth removed seem to have helped that situation mostly, though I still get headaches fairly frequently. 2 years ago I fell and injured my knee at work. I went to an orthopedic, who told me I have arthiritis. I'm in my twenties. About 2 or 2 1/2 years ago, I developed mild gas and bloating. Constantly. Pretty much 24/7. In the last few months it has gotten much more severe, including severe cramping. A few weeks ago my arms started turning purple and my hands were tingling and going numb. I had blood tests done and was told my vitamin D was low. Nothing I could find online attributed D deficiency to my symptoms, but what concerned me most was that my D was low at all. I have D in my multi-vitamin, which I take every day, and I also take an additional D supplement. I also drink a lot of D fortified milk (lactose free as of 5-6 months ago). I found celiac when I was researching causes for D deficiency. I had my doctor test me for celiac and they took blood last week. I got the call today that my test came back NEGATIVE. But I have so many symptoms! Gas, bloating, cramping, constipation, fatigue, anxiety and depression (for no reason), and frequent infections (respiratory and urinary). Not to mention, the arthiritis in my twenties, and my medical history. No one in my family has been diagnosed with celiac, but one of my brothers has been describing smiliar sypmtoms to me. He turned 20 this year and has frequent stomach problems. I've decided to pursue a gluten-free diet, regardless. But should I insist on a biopsy or another blood test? I just want to know why I'm sick all the time! I imagine my boss would too.....