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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About porkchop60c

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    1. porkchop60c added a post in a topic What Tests Should I Do From Enterolab?   

      My daughters and I have had lots of luck with entero lab and I believe they are accurate with results. Call and talk to Kathy and she will tell you what test to take(99 dollars and 3 weeks later you get results). The number is972-686-6869. She is great and will help you. If you can find a doctor that gets the celiac gluten thing that would be helpful. In the wheat belly book by William Davis it tells you what tests to get for celiac panel. Another place that could help you find doctors and good infor is a celiac support group in your area. I go to mine once a month and it is great to get support from others that understand what you are going through.
      I was very sick 2 years ago and 2 years later I am on no meds just vitamins and have great energy. I had acid reflux, joint pain, stomach pain, brain fog, fatigue, rashes on hands, feet, knees/elbow, depression, and more. That is all gone. If I eat gluten by accident I get some of it back but then goes away in a few days. I am so grateful that I know about celiac. Otherwise I would be taking a drug for crohns disease right now because that is what the GI docs told me 2 years ago. I am so glad I did not take that awful drug. Start getting well by taking vitamins and eating well. It may take a while but it is all worth it. Good luck!!
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    2. porkchop60c added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Burning Toes At Night
      Does anyone get burning toes at night? Once in a while I get that and it lasts for 30-60 minutes but it is painful and wakes me up. Any ideas what it could be? I thought maybe glutened or food sensitivity.
      • 1 reply
    3. porkchop60c added a topic in Celiac Disease - Coping With   

      Does Anyone Get Burning Toes At Night When Glutened?
      Just wondering if you get burning toes when eating hidden gluten? Maybe this is something else/ The pain wakes me up and lasts no longer than an hour.
      • 2 replies
    4. porkchop60c added a topic in Celiac Disease - Coping With   

      Toes Burn At Night
      Every once in a while I get woken up by a feeling of burning in my right toes. It only lasts for 30-60 minutes. I thought maybe it is from eating a food that I may be sensitive to but not sure why I get that. Does anyone get this and could it be from getting some gluten by accident?
      • 1 reply
    5. porkchop60c added a post in a topic Al-Cat Vs. Elisa Food Testing   

      I think the skin test is IGE and does not test for delayed food problems which can be very bothersome and cause many problems.
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    6. porkchop60c added a post in a topic Adrenal Fatigue? What Are These Symptoms?   

      I would try and go gluten free for a while. You sound like you could be celiac and the tests are not always accurate. The true way is to go off of it 100 percent and if you feel better then you know. You might have other food problems and could have a elisa food test.When i did the blood test and stayed away from foods I was reacting to I feel so much better. If I am glutened by accident I cannot sleep, get dry mouth, gums hurt, and the next day I get some joint pain. It is well worth it to eat healthy and get off of gluten. No one should eat the poison. Dr. william Davis that wrote Wheat Belly is so awesome writing that book. If I were still eating gluten I would be on many different drugs and would be very sick right now. I feel great and am on no meds except synthroid for my thyroid. The doctors told me 2 years ago I had crohns disease and I am so grateful I did not listen to the doctor because he wanted me to go on Imuran for the rest of my life which is a horrible drug that can cause cancer. It was gluten that made me so sick all of my life and I feel so good now.I do not trust doctors like I use to. I truly believe that if we eat whole foods, exercise, do yoga or something that is relaxing, and have a good attitude, we will not get sick. Drugs are not the answer.
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    7. porkchop60c added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Al-Cat Vs. Elisa Food Testing
      Does anyone know which test is better? Please let me know if you had the test and found it helpful. I had the elisa test and found it to be very accurate. My daughter just had the al-cat test and they never asked her about medications or did any fasting, which makes me think it is not as accurate. The elisa testing they had me fast, wear no make-up, lotion, no brushing teeth, and no medications until after the blood draw. I was much more impressed with the elisa test. Any feedback would be appreciated.
      • 4 replies
    8. porkchop60c added a post in a topic Dr. Peter Green - 2012 Cdc Conference   

      I agree with you. After 2 years of staying off of gluten and taking probiotics, my gut is healing. The doctor I got the probiotic infor has gluten intolerance himself. This is what he takes, so I trust him.It is by Ortho Molecular Products and is called Ortho Biotic. I have had food sensitivities and it is getting better. Once I am all healed up, I expect I will be able to eat many things again as long as I rotate my foods.
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    9. porkchop60c added a post in a topic Maltodextrin   

      Your dietician is wrong.You can be tested for food allergies or I should say delayed food sensitivities. It has saved me. You can be tested through Entero labs (stool sample)and that is IGA which is more digestive and that is how my daughter found out she was gluten intolerant. When you do the blood test it is IGG testing and helps you figure out foods that you might react to a few days after you eat them. Sometimes you just can't do it on your own even if you journal which I do everyday. You might need to ask a different dietician or see natureopathic doctor or chiropractor. Someone has to do this testing. Go on line and google it. Hope this helps.
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    10. porkchop60c added a topic in Celiac Disease - Teenagers & Young Adults Only   

      Fatigue And Anxiety
      My daughter is 18 years old and went gluten free a year ago and does not have anymore stomach aches, and very few headaches. She was tested through Entero labs(stool sample) and found out she was gluten intolerant last year. She was feeling better but now is having fatigue and anxiety at school. She is too young to feel that she does not have energy. I think she has food sensitivities and she will find out in a few weeks, as she was blood tested (al-cat).

      Anyone that was tested through al-cat and feeling better because they are not eating the foods they were sensitive to? I am very concerned that she will have many foods that she likes that will be off limits to her. It will make it challenging to prepare food that she enjoys. Any ideas?
      • 1 reply
    11. porkchop60c added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Trader Joes Creamy Almond Butter
      I had a banana last night with almond butter from Trader Joes. Two hours later I am laying wide awake , feeling like I drank coffee. My mouth was dry, urinated several times, and the next day pain in wrist and above knee. I am very in tune with my body and know when I eat something that is not right. I am not sure if it was contaminated with gluten or if there is pesticides in it that bothered me. Wondering if anyone else has been bothered by the trader joes almond butter. I will buy organic from another company from now on. I do not trust them and I know many of the nuts say it is on the same line as wheat. Why can't these places make it more pure? More and more people are having problems with gluten.
      • 1 reply
    12. porkchop60c added a post in a topic Maltodextrin   

      I am also very sensitive and found out 2 months after going gluten free that I could not have corn. Corn is in everything. Maltodextrin is corn most of the time. If you are not sure, call the 800 number on the product. Be good at reading labels. It has saved me many times. If you are celiac, then you can be sensitive to other foods. It is good to rotate your foods to give your body a break if you are sensitive to a food or do the IGG blood test and eliminate the foods that you are sensitive to. I have been lucky with Elisa food testing. It is expensive but it is well worth it if you want to feel good again. Good luck.
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    13. porkchop60c added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Target-Archer Farms Nuts

      Has anyone with celiac reacted to any of the archer farm nuts? I seem to react to the raw almonds inspite of the fact it says the allergens are other nuts and nothing about being on the same line as wheat. I ate some the other day and I had severe brain fog for hours. Sometimes I get cramps or other symptoms. Where can I get safe nuts that are gluten free and not terribly expensive? Thanks much.
      • 2 replies
    14. porkchop60c added a post in a topic Igg Testing -Recent Article Questions Reliability   

      I agree. I was food tested for IGG and it helped me. I never would have figured out tapioca, turmeric, nutmeg, and artificial flavors were a problem? I know it is true because I write down everything I eat and how i feel. There was a definite connection. I did the test several months later and found out I can eat these things again, but now have problems with honey and a few other things. Meanwhile my gut is healing and eventually I will not have these food problems anymore. It is so important to rotate your food, which then you get different nutrients. I know many celiacs who are good with their diets but are still suffering from food sensitivities. They have brain fog or are easily crabby. I did the Elisa Food testing and you can go through them with your own doctor. Look up "Better Lab tests now" You get a kit and your doctor can do the blood draw.
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    15. porkchop60c added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Flax Waffle
      Does anyone have a recipe for a flax meal waffle or just a few flours in it? My daughter cannot have corn, rice or almond. Thanks.
      • 2 replies

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