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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About jcp

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    1. jcp added a post in a topic How Long Would It Take To Feel Different/better?   

      We are definitely all different, and some of the differences might depend on if you're totally gluten free and how you've gone about making the changes. I ended up going almost low-carb at first because I found it hard to figure out what to eat, and that can definitely change how you feel in hurry.
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    2. jcp added a post in a topic I Think I Did A Foolish Thing, And Now I'm Having Trouble   

      I'm so glad I started this thread. Thank you all for clearing up some misconceptions I had and for talking sense. I'm not always the most sensible person!
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    3. jcp added a post in a topic I Think I Did A Foolish Thing, And Now I'm Having Trouble   

      I'm not sure what deficiencies. I read it here:

      I went to that website, but didn't see any deficiencies listed there.
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    4. jcp added a post in a topic I Think I Did A Foolish Thing, And Now I'm Having Trouble   

      Thanks for putting this in perspective for me. I was reading something a few weeks ago where a GI doctor really didn't want patients to go on a gluten free diet without being diagnosed with a problem because gluten free diets are deficient. Is this anything to be concerned about, if I add in a multi-vitamin, etc.?
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    5. jcp added a post in a topic I Think I Did A Foolish Thing, And Now I'm Having Trouble   

      Thank you all for your good information and advice.

      Do I need the diagnosis? I honestly might. I have a desire to have it be scienfically verified, you know? I think because my diagnosis was IBS for so many years. But boy oh boy was I in pain. So I need to figure out what I can live with.'

      I was hoping someone would say that once I got over the first few days or week, I'd settle back into my previous level of discomfort. I know, pipe dreams.
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    6. jcp added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      I Think I Did A Foolish Thing, And Now I'm Having Trouble
      Hi, everyone. I'm Julie and I'm hoping I can get some guidance.

      I have had extremely bad IBS for about 7 years. I went from having some problems eating onions to having huge problems with essentially everything that wasn't meat, dairy, or simple carbohydrates.

      I kept cutting things out of my diet, more and more all the time, and kept having trouble, but it would be better sometimes and worse sometimes.

      Last year, I started going to a new doctor who asked if I'd ever been tested for celiac. I said no, I had a blood test, and it came back negative. Of course, I told her, it was going to be negative because I can eat those simple carbohydrates. It's veggies and fruits and fiber and all of that stuff that causes the trouble.

      This year, it was worse than ever. She said, "Are you SURE you don't have celiac?" and I reminded her I'd been tested. She did other blood tests and I have a Vitamin D deficiency. She suggested I see a specialist, but honestly I just felt like I didn't have time. (I'm in law school.)

      Still thinking she was crazy, I decided to show her! I'd try a gluten-free diet for a while and see, thinking that even if it helped, I would still be able to go back on gluten and then go forward with testing.

      So, I went off gluten for about three months. The change was remarkable. Huge. The worst of the IBS symptoms basically went away in a few weeks. The rest faded over the months.

      Still, I knew I had to go back on gluten at some point just to get definitive tests done. Blood work again, maybe a biopsy, seeing a specialist, etc.

      So, I decided I'd try eating gluten again. I started on Thanksgiving. I had two meals on Thanksgiving that involved bread. By the end of the day, I just had a rather odd full feeling, like I'd been gorging all day, though I hadn't. Friday, more gluten. Really uncomfortable now, feeling like my stomach was stuffed full. Saturday, more gluten. Extreme pain by the end of the day. Couldn't take any more, stopped eating gluten, and am now back to feeling mostly normal on my fifth day back gluten free, though boy howdy were the days in between really incredibly rocky, with major digestive issues.

      So, my questions:

      1. If this is a gluten issue, why would I be suffering so much when before going gluten-free the symptoms were not so dramatic? Does this suggest it's more in my mind?

      2. If this is a gluten issue, does this mean the weeks or months I'd have to stay on gluten to complete my testing would be THAT miserable?

      I feel like an idiot for trying to go gluten-free without having a diagnosis, though I really thought it was not going to work. Now I feel a little trapped. Any help, advice, stories, or smacks upside the head would be welcome. Well, maybe not the smacks, but I probably deserve them!
      • 15 replies

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