This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thank you for your response. I received iv iron in '09 but there was more of an effort to increase my hemoglobin & iron quickly rather than diagnose the cause. Anywho, it's a good thing you replied because I just realized I bought magnesium instead of iron a few weeks ago. I should be taking this iron twice a day, not magnesium. Maybe that's why I'm so tired!
I don't think I would have caught this had you not mentioned the iron. Thank you!
So my doctor saw a pattern in my old labs and said my body isn't absorbing nutrients and have been this way for years. In addition, I have sleep apnea and my kidneys aren't holding onto water so I'm limited on FOOD, AIR & WATER.
The doctor is ordering a CPAP for me and has put me on weekly IV nutritional therapy along with increasing my iron, vitamin D (10,000 IU.) and probiotic supplements.
Has anyone had IV nutritional therapy and, if so, how long did it take to start feeling better? I just had my 2nd treatment and it's wiping me out. I'm less active than before and doc says to be careful. :/
I also found success with the food intolerance blood test. Mine was a different company. As soon as I eliminated those foods, my inflammation calmed and I could raise my arms above my head (literally was in too much pain previously). I still struggle with my health but quelling the constant inflammation has allowed my gut to heal.
Thank you! I wish I had gone through Mayo years ago when a friend of mine recommended it. At the time, I was too ill to figure much out. Looks like the closest one is in Arizona. My doctor is waiting to be certified by Mayo and I assume that means certain testing will be available to her. I had so many doctors at one time who couldn't figure much out and all private practice. It would have been nice to go through a systematic process with a team approach as it sounds like Mayo provides. My cardiologist was going to have me wear a holter. Beating my chest 3-4 xs a day, as odd as it sounds, is raising my heart rate and BP so she wants to see how that pans out.
Interestingly, my doctor sent me home with an at-home sleep test a few months ago. You just motivated me to do it! There are a few more tests she's going to run in the next week. She wants me to push over the hump (employ mind/body healthy practices). She has also referred me to a naturopath who she hopes can help me with reactivity.
I received my bone density test results yesterday and must begin weight bearing exercises. It's tricky avoiding the heat and the "boom boom" gym across the street would send me to the ceiling. Weightlifting never steered me wrong (an old love affair) and so will start with some dumbbells at the house. This should motivate me towards light cardio.
Last night I drank some adaptogen tea that was very relaxing and calming to the nerves. I'm going to research it more. The only thing bothering me right now is my elbow because I slept hard on it all night.
My cardiologist says I have a mild-moderate leak in my tricuspid valve that needs to be monitored. I'm full of symptoms right now and seeing my regular doctor tomorrow. Don't know if the summer heat plays in (and I'm sure stress does) but it feels like I have hot stickers rattling through my body. It's truly shaking me down. I am having difficulty turning down the internal heat and have become fearful of it. I'm rubbing my thymus, drinking cucumber water and sarsaparilla tea. I put my feet in water and am cooled. I am eating every three hours to reduce stress to my adrenals. Those hot stickers go through my heart and I'm concerned about inflammation. It feels like something I should get under control immediately. Saturday my head felt like it had fallen asleep and I was so scared from the symptoms, I was in bed all day (that was before getting my echo results). It makes me wonder if I have another AI or if I'm having adrenal issues. I have no idea.
Most of all, I feel desperate to reduce the inflammation in my body because I know it's not good for the heart. I had reintroduced some intolerant foods in March and it's been downhill ever since. I am back on my safe foods only but am having symptoms with some of those now. Any suggestions for reducing inflammation would be appreciated. It feels crucial.
*Edit: And no, I did not shoot up with street drugs. That previous cardiologist told me not to shoot up with street drugs and I'd be fine. No follow up. No nothing. What a jerk.
I stopped eating out until getting in better control of this thing. I haven't been glutened this year *knock on wood* because, with two lucky exceptions, everything I ate, I prepared myself. It's getting easier to speak up for myself the more I've healed (and with experience). Currently, I let my husband go to battle for me once I begin stuttering but that's happening less and less as I become stronger. He is gluten intolerant and doesn't have as severe a reaction but, because of me, his reaction towards the restaurant is severe when they serve him gluten. As he goes to restaurants with friends and business associates, he educates along the way. Hopefully, he's clearing a path as he doesn't mince words
Someone on here says she only goes to fine restaurants because the chains aren't always well-trained (or trained at all). Whenever someone gives me a cavalier attitude, I pass on the meal. I've eaten a little something a few hours before going out with others (with snacks in my purse for later). That way, I'm fed and, if it feels safe to eat in a restaurant, I still have room to make that decision too. I've also gone ahead of time to talk to the manager and can usually get a good sense from that. It's getting easier to tell who understands the seriousness and who doesn't.
Use the words "severe celiac" (it elicits a more serious consideration) and there are also restaurant cards to print: http://www.celiactravel.com/cards/english/
I haven't used the card. Like I said, but for a few exceptions, I stopped eating in restaurants until my gut has had more time to heal.
Thank you I wish he had co-workers. That's the rub. However, the request seems to have had a positive impact on us both so far. Better for the heart? It's curious. In the meantime, a friend of mine just had a heart attack and he's not going to make it. What a crazy time this is. I feel like I'm floating through space right now.
I haven't started the sleep test yet. A lady who hadn't seen me in two months told me today that I looked healthier and had more color in my face. That is encouraging.
I really don't know. In 2011, I began taking a liquid magnesium bicarbonate to help me sleep and that's around the time that the arrhythmia started. I was suspicious and took it into the cardiologist I was sent to at that time. He brushed it off when I asked him if it could have an impact on the heart. However, last year when I was told my heart beat was slow, I showed it to my current doctor and she said it could absolutely have an impact so I stopped taking it in the hopes that my heart rate would improve before May (that's how long I was told I could wait before seeing a cardiologist).
I'll ask this new cardiologist about magnesium next time I see her.
Thank you! That is good to know! There have been a lot of articles lately that reported higher cortisol in someone who just witnesses someone having a stressful moment (or even watching a stressful TV show). I have been noticing my inner dialogue and am making changes to the wording I use. That's a process. Just a few days before my appointment, I told my husband I couldn't be his sounding board right now. He has a stressful job and I've always listened and supported but it leaves me tired and stressed.
What I'm noticing most of all is that, it's true, so much depends on my current condition. Sometimes I get onto myself for not trying harder and then I'll catch a look at my bloated face in the mirror. You're right. The health is a step ahead of the mind and the stronger I am, the easier the mind and boundaries are to define.
So, that being said, my doctor called and left a message last night. The cardiologist is asking for bloodwork, specifically WBC, RBC and thyroid (she said it in that order). Now I'm scared again. She wants me to go get it soon. It could be any number of things, of course. I found a little snippet on a livestrong article that says, "Inflammatory diseases can cause slow heart rate as well as sleep apnea" and since I happen to be doing a sleep test right now, THAT'S WHAT I'M GOING WITH. That and your experience. I do know stress causes inflammation and am doing what I can to mitigate it. Right now I want off of this merry-go-round but it doesn't help me to think it.
I don't really know what to do with myself. I don't feel well but I still have responsibilities. I don't know whether to take it easy or to push. My face looks better today than yesterday. The last few months I've been bruising and bleeding during acupuncture and that's new. The MCAS possibility makes sense and I hope that's what it is. My husband has just come down with his second cold this year and *knock on wood* I've been spared so far. That's GOT to mean something good immunity-wise, right?!
Guess I need to make a new checklist and get this all out of the way. It seems that one test begets another. Maybe this is just to rule out the big stuff that is very, very uncommon. Or maybe my thyroid needs some help and it's good it's being checked. (Argh)
It sure is nice to have the windows open and a cool breeze blowing today.