kbh75 replied to kbh75's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank you all for your comments. They have been very helpful and I will make notes from them to share with my doctor Friday. I am even more suspicious of celiac after reading your comments. I agree with the last poster - the procedure is non-invasive. However, I have never had any procedure performed where I have been sedated so I am feeling very anxious over the thought of it. Thank you again!
kbh75 posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHello. I am seeking advice or opinions. I am not sure I have celiac but I am starting to suspect it. At first I thought it could not be possible because I do not suffer from extreme stomach upset, but the more I researched the disease online the more I began to wonder. Here is my brief history: Graves Disease (now in remission due to RAI treatment) - diagnosed 13 years ago Low B12 (diagnosed about 2 years ago) - take monthly B12 shots Anemia (off and on) Have in the past had low potassium and sodium Consipation Morning nausea and immediate need to "go" General symptoms: dry skin, chronic fatigue, irratibility, low mood, forgetfulness, some hair loss, petichae on torso/back My doctor has said that he thinks I have pernicious anemia. He said he can't figure out why my levels stay low (they aren't too bad right now at 434). He recommended an endoscopy but then said that if it confirms pernicious anemia he would not do anything different. I am not a fan of invasive medical procedures so I declined. I started looking online to see if there may be other causes of the low B12. All of them are scary, some more than others. But, I kept coming back to Celiac. But, I do not throw up, I don't often have diarrhea and I am overweight rather than underweight. Just wondering if anyone here expreienced similar symptoms. I have inquired about the blood test and my doctor's office response was for me to come in for an appointment this Friday. I am just not sure if I am worrying over nothing or if I need to research my health issues further. I am wondering if the celiac blood test is accurate. Any advice or suggestion would be greatly appreciated. Thank you very much.