elliemay32 replied to elliemay32's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks for all the tips/help so far, keep it coming! I live in the US so I know I can get the gene testing, I just don't know how much and if insurance covers it. Like I mentioned, I am more concerned about whether or not my son could develop it some day. I only care about diagnosing me for certain so that we can be aware of him, especially since I know several people who had no symptoms whatsoever but have Celiacs, so waiting until he "has symptoms" doesn't seem like the best game plan to me. I would ideally like to get gene testing done on him to find out if he has either or both gene, just not sure how to go about it. If it isn't celiac's for me, then it very well may be the gluten intolerance, because even for such a short period of time off it, I felt tons better.
elliemay32 posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi, I'm new here, and I am hoping someone might have some advice/info that might help me out. Here is some history: I was diagnosed with GERD as a 24 year old (all the symptoms came on kind of suddenly), no meds helped, so they did a surgery to fix it. Sort of improved for a year or so, then symptoms came back. Also diagnosed as IBS (which I think just means, we don't know what is causing your issues), after a myriad of testing etc. I have had 2 tests for Celiac's, 1 inconclusive, 1 negative. I had also tried gluten free, and didn't really feel any improvement (only did this for about 1-2 weeks since testing didn't validate it). Both tests were before having my son. Now, after having him, things are on the rise again. Most notable are the horrible stomach cramps/pain either right after eating, or within 1 hour, and diarrehea. ( I also am hypothyroid, very low adrenal, vitamin D def., and low progesterone, have been anemic, but not sure if I am now) I decided to cut out all breads, etc. I still ate rice and corn products, to see if my symptoms improved, and it seemed to help (been on it for a little over a week). Went off that diet the past four days, and the horrible cramps and diarrehea have come back. I am obviously believing it was adding the grains back in, but I am confused. Is it possible for my testing to say negative but my still having the disease? I'm wondering if maybe the pregnancy/birth triggered the celiac's in me and if I got tested now it might be positive? I'm going gluten free again now because I felt so much better, but I'm concerned about the possiblity of my having the genes, and having passed them onto my son. Any insight would be so great. I also wondered if anybody knows about the gene testing, how it is done, how much is it, etc. Thanks for your time!