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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Mae238

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    1. Mae238 added a post in a topic Pamela's Baking Mix: Anyone Get Reactions, Diarrhea?   

      I cannot tolerate Pamela products.  The bread mix has inulin in it -- which is a heavy intestinal irritant for many celiacs (cramping, flatulance, diarrhea).  The pancake and baking mix has buttermilk solids.  A high percentage of Celiacs cannot tolerate milk products.  I am actually allergic to milk.
      1.  Information on inulin and celiacs:
      2.  Information on milk and celiacs:
      • 0
    2. Mae238 added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Glutened By Rice Dream Rice Milk
      Even though Hain CLAIMS their rice beverage product is gluten-free, it is NOT. Since I changed from So Delicious coconut milk to Hain’s Rice Dream rice milk I have had increasingly horrific pain in my upper right flank, low-grade fever, terrible fatigue, and horrible diarrhea for the last six months. My body was acting like I had been glutened. I have spent months trying to figure out what I was eating that had gluten in it. The answer was: nothing. Apparently, I was drinking it.

      Two days ago, I did a Google search for “Rice Dream rice milk gluten” and found many celiac forums and Celiac Disease experts cautioning against this brand of rice milk. Many people have written online in celiac forums about how they react badly to Rice Dream rice milk. When I started using Rice Dream rice milk, I had checked out Hain’s website to make sure that Rice Dream was gluten free before purchasing it. They said it was.

      They lie – and the FDA allows this lie.

      Hain uses a barley enzyme in the beginning process of making the milk. Hain is lying when they say on their site: “Is Rice Dream Beverage a gluten free product? Yes. Although Rice Dream Beverage is processed using a barley enzyme, the barley enzyme is discarded after use. The final beverage might contain a minute residual amount (less than .002%) of barley protein.” They state that they use it and then “throw it out.” But apparently it is still in the rice milk no matter what they say because I have reacted strongly to it. In fact, once the barley enzyme is in the rice milk, how in the world can it be separated out?

      Hain also says that any gluten that might be in their product is below the FDA threshold of 20 ppm. But the problem is that the commercial tests for gluten contamination have some difficulty detecting hordein (the type of gluten protein found in barley) when the hordein has been broken down into smaller pieces or protein fragments.

      It is also possible that there is not enough residual gluten left in the product for testing to detect (at least not with current tests), but there is plenty of gluten in Rice Dream rice milk for our bodies to detect it and be damaged by it, especially in people who tend to be very sensitive to even trace amounts of gluten.
      More and more people do not trust the Rice Dream beverage – and they do indeed react like I have reacted. In fact, I drank the Rice Dream rice milk long enough to do further damage to my duodenum. It could take months and months to get over this glutening episode.

      One would think that Hain would be more concerned about the dangers of gluten (and celiac disease) and not sell products that are made with anything that ever contained gluten. I will never buy Hain’s rice milk again or any of their products for that matter because I cannot trust them. And I will join others in spreading information all over the internet about the gluten dangers in Rice Dream rice milk.

      Please do consider what I have said and do not trust what Hain claims their rice milk to be (gluten-free) because it is NOT.

      The FDA is as much to blame for my glutening as Hain is. The FDA is too lax in what they allow in gluten-free products. 20 ppm is way too high for many Celiacs like myself. Celiac Disease is serious. A teensy tiny bit will make some of us truly suffer. Printing gluten free on a product that has even a smidge of gluten can be toxic for someone like me.

      I have been off the Rice Dream for 2 days. Already the pain is subsiding and I am feeling a bit better.

      I am so angry at Hain, I could spit nails!
      • 14 replies

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