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About Kerceli

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  1. Hi gatita, my doctor told me there is nothing more that can be done if I don't want to have gluten for two weeks and then go get a endoscopy. So I guess other than signaling doctors of my "allergy" (at the least) its good. But I wish I could actually find out. I need to check out the over the counter genetic testing.
  2. Hey guys thank you all so much for your responses and advice. Takala i didnt think about putting in my med record an allergy to wheat, rye, barley, etc. thanks everyone this community is invaluable!
  3. Hello! I'm posting in need of some advice. I have been mostly gluten free for years now (and now strict gluten free since my recent be explained). I would always take bites of non gluten free things here and there if I wanted a taste and never worried about contamination, but probably within the last 6 months I noticed I could no longer take little bites of things with gluten because I got horrible stomach aches and headaches. In August, I went out for dinner with friends and it was family style. I was stupid and didn't speak up about my needs so I ended up eating a lot of gluten containing food thinking oh well I'll just bear the stomach ache (this was the most non gluten-free I had had in a longggg time). Well it made me so horribly sick for a week. I couldn't eat at all. I was nauseas 24/7, had C and D, depression, anxiety, cloudy head, body aches.... Just overall felt like HELLLLL. I called my doctor asking for a blood test. It came out negative. I then asked for a endoscopy. My doctor said I would have to eat gluten for two weeks in order for anything to show up regarding celiacs. I told him the sickness I endured was so horrible I couldn't do it again. He said there is no other option for testing though. He placed 'celiac disease' in my medical record. I am now living as a celiac... Worried about contamination, checking labels feveriously... I have found since being more careful, I react to contamination issues now, which is a first. I feel like I have all the symptoms of celiacs, but do I just go about my life saying I'm celiac when I don't really know for sure?? Any advice or thoughts would be helpful. Thanks so much guys.